Breast Changes Post-Mastectomy after DCIS

epink

Hello,

I was wondering if anyone has had any surface breast changes after DCIS.

I am coming up on my 5th anniversary...had DCIS (no microinvasion, but very close margins) in both breasts and opted for a bilateral mast with implants.

I haven't felt any lumps but I have noticed a change on one of my breasts..not really puckering but sort of a sucking in of skin in one area..like there is a tiny little hole in my breast--like the skin is pulling inwards in one small area. There is also some pain and itching in the left breast, and I just don't know if this is normal five-year-wear-and-tear, post-mastectomy. When I raise my arm up, it's totally smooth. No thickening, etc.

I emailed my surgeon, and he said it was most likely fat necrosis, but is having me come in anyway.

Up until this point, my skin has been totally smooth, so I don't know if this is just the aging process of the breast...and I was fairly young at diagnosis (39) and don't have anyone to ask.

Would love to hear if anyone has experienced this....

Thanks,

Eva

april485

Eva, my breast definitely looks about the same as you describe and it is more painful than before. For me, it has been only 2 1/2 years since my diagnosis. I had two lumpectomies within 3 weeks of eachother for close margins which worked. Now my margins are all over 10mm.

One of my margins had been <1mm and that was too close for my radiation oncologist since I was in a partial breast rads clinical trial. I had high doses in a very concentrated period of time (2 x a day for 5 days) instead of the usual 5-6 weeks of rads.

 Since I had radiation so that could account for the shrinking of my breast but the pain is strange. I am going to ask my MO to order an ultrasound when I go in June to see what if anything is going on.