Medullary Carcinoma

Maree155

Hi I have just joined the group....I am 6 weeks post op from a left side mastectomy and 1 week post op from having my ovary's removed. I am suspect for the brac1 gene... just to add to every thing... but I don't know the answer to that untill I see the geneticists...I start on my chemo in two weeks it is 3x FEC100 and 3x Docetaxel then 6 weeks of Radiotherapy...Is there anyone on here that has the same type of cancer as me that I can chat with? Thanks

Meadow

Maree, I too have a rare form of cancer, but it is not the same as yours...I have Inflammatory. I just wanted to say hi, and welcome to the forum! I hope some one will respond soon, that you can share with. I have yet to meet in person another IBCer, but I have "met" several here, and I love them! Hugs to you as you go thru treatment

Maree155

Hi Meadow, Thank you so much for your welcome...It is great to have contact with other people going through this fight...I live rural so I can't get to support groups very easily...I hope to talk to someone with similar cancer soon... Do my medical details show up on here for you to see? I thought I had set it so they do...but I can't see them on my post...take care.

Meadow

You are so welcome, yes your details are here, do you see them now? I can see my own so you should be able too, I think only on the intial thread question post, that first one, they do not show so you should be good to go now If you have not already, explore the website here, there is a thread for your surgery month of March.and for your chemo in May and later, your Rads month too. I joined the September 2013 Chemo thread when I was diagnosed and I was so glad I did,as it was great to have support with ladies doing it at the same time. We became a sisterhood and are still support each other. Check it out!

Moderators

Maree-

We want to welcome you to our community here at BCO. We're sorry for the circumstances that brought you here, but we're so glad you've joined us, and hope you find the support you need.

Hopefully we have other members who share your diagnosis, so you can connect with them. At the very least, you'll find people here from all walks of life, with all forms of breast cancer, and we're sure you'll this group to be helpful in the coming weeks and months.

Please don't hesitate to reach out to us via the private message function if you have any questions at all. That's what we're here for!

The Mods

Cocker_Spaniel

Hi Maree,  Meadow on the TNBC site gave me your name as she noticed you are in New Zealand.  I live in Taupo.  I am 3½ years out now from diagnosis.  I had left breast mastectomy, then three months of chemo and five weeks of radiation at the Cancer Lodge in Hamilton.  All the ladies on our site have different diagnosis and you are very welcome to join us but sorry that you have to.  They are a wealth of information if you have any questions or just want to cry, rant, swear, whatever.  We will be there for you.       
Annie

Meadow

Maree, as Cocker said, there is a triple neg thread called, "Calling all TNs" that is WONDERFUL! so pop in there and introduce yourself Have a great day

Maree155

Hi Annie...nice to meet you :-) I am in Nelson... I have had great care here at Nelson Public they have a fantastic team that can't help enough...I am pretty much at the beginning of my journey, so it is great to be able to talk with others in the same boat...I will follow the tread to the TN's and intro myself thanks for your reply. Take Care Maree.

Maree155

Thanks Meadow... I will go take a look this is a great site.

Rehoboth-Pam

hi everybody, my name is Pam and I live in Delaware ind the U.S. I was diagnosed with Medullary carcinoma 10 years ago and treated with chemo and radiation. Last year I got triple negative breast cancer and started treatment all over again. My biggest issue is the constant production of fluid on the right side a year after sugury but apart from that all is well.

Moderators

Hi Rehoboth-Pam, and welcome to our community, though we are sorry you had to go through cancer again. We are glad you are doing well, minus the fluid. Thanks for sharing!

Meadow

Hi Pam, welcome! As I said above, If you would like to pop in "Calling all TNs", I think you will find a lot if good info, and some super nice people!

Moderators

Pam, here's the link to the thread Meadow mentioned: Calling all TNs. Definitely hop in there and say "hi" to meet some other triple-negatives!

We hope this helps!

--The Mods

NATSGSG

Maree155 :

Hope this message finds you well and recovering....just stopping by to share this link below provides scientific articles of Medullary Carinoma that I hope will be of use to you. May need to sift through the titles to find the ones that are pertinent.

http://www.ncbi.nlm.nih.gov/pmc/?term=Medullary+Carcinoma

In the meantime, if you are interested to find out if there are immunotherapy treatment being used to treat Medullary Carinoma, you may wish to consider writing to the Society for Immunotherapy of Cancer, or request to be on their mailing list to keep you updated of new developments? 

http://www.sitcancer.org/sitc-meetings/presentations?utm_source=Email&utm_medium=April%20IM&utm_campaign=IM%20PL%20edu%20Opps 

P.S.

Below VIDEO link talks about the use of immunotherapy in cancer treatment (current hot cancer treatment topic) and fascinating to watch.

http://videocast.nih.gov/summary.asp?Live=15875&bhcp=1