Clinical trial?!

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LillieRose
LillieRose Member Posts: 112
edited April 2015 in Just Diagnosed

Hi all,

As I posted before I am recently dianosed.... Healthy 30 year old mom with TN IDC...I'm posting this in the TN forum but I welcome any advice

I am currently at Dana Farber in Boston and I went in today to discus my options. They said chemo, surgery, radiation. They also said that I have an extra option due to my age and the TN. It's a clinical trial using different chemo instead of the standard AC + T. I will either get Cisplatin once every 3 weeks for 12 weeks OR Paclitaxel once a week for 12 weeks....this would be INSTEAD of AC + T. I would only get the standard treatment if for some reason this chemo didn't work....

She said it gives me more options chemo wise because if this doesn't work I can always try the standard mix but they can't try the Cisplatin on people not in the trial... I guess they have had great results with Cisplatin...

I'm scared to do the trial or to not... What if it doesn't work and my cancer spreads? What if I don't do it and the standard treatment doesn't work? Help! I know nothing about this disease... I need advise please!

Thank you so much!

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2015

    Sweetie, it sounds like your mind is racing. I have thought about clinical trials myself, felt as you, and since I have a good relationship with my oncologist, I talk to her. If you can do the same, that would be best for now. Others will weigh in, hopefully, since I see I'm the only one who answered you.

    Claire in AZ

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