Newbie
Hello I'm a Newbie! I went today to discuss my treatment plan. I placed my life in the hands of a 29-yr old doctor whom I've could have birth. She had compassion and tried to explain every step. The reason for me using the word "try"" is because I'm just stepping out of denial and have a habit of getting lost in my head. It was suggested that I join a support system, which lead me here! Upon reading most of the post I enjoyed the compassion shared and most of all the information. My biggest fear a r is the lost of my hair (because of the size of my head (big)) Most of m other fears has got on their w a y at this current time I have st a get 2 Cancer all of the cancer in my breast was said to have been remove, but one out of the 3 lymph nodes that was removed had cancer. A week from now ill be starting a regiment ofTaxotere Carboplatin Herceptin every 3wks for 6 cycles if my heart is strong enough if not Ill be doing Adamyan Cytoxan ever 2 weeks for 4 cycles followed by Herceptin Paclizixel every 2 wks for 4 cycles. I've read about other and TCH , but none about the latter. Please help! Thanks!!
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I'm sorry you've found yourself here, but this forum is a fantastic place for support. Filled with wonderful, caring, knowledgable women who know exactly what you're going through. I'm sure they'll be popping by soon to offer support. Weekends can be somewhat slow here.
It's hard at first to absorb all of the information. Have you been taking someone with you to your appointments to take notes? It's very helpful to have another set of ears to remember everything you can't. Also, check to see if your facility has a cancer nurse navigator. I have one at my facility and she is a wealth of information and has helped explain exactly how things work, has retrieved and deciphered test results for me and connected me with other local survivors/fighters. I also attend a local BC support group at my hospital that meets once per month. I've leaned on those ladies quite a bit the last 8 months and made some pretty awesome friends. You might see if you have one nearby.
My advice is to make a binder to contain all your test result and treatment information. I too get lost in my head (cancer just made it worse!) and having everything in one place makes it easier to keep track of and kind of calms me down knowing I can reference it in a moment if I need to.
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