Need to hear positive stories for stage 4 diagnose

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Badasscrybaby
Badasscrybaby Member Posts: 2
edited March 2015 in Waiting for Test Results

I was just diagnosed with stage IV IDC with lung mets. First time and it is so advanced. Need to have an MRI to see if it's in the brain. I fear it is. Need to hear of any survivor stories. Thank you!

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2015

    crybaby,

    This is a tough time for you as it's always a punch in the gut to find out you have mets. I don't have lung mets, but I bone mets. I have been doing very well for almost 4 years. There are many factors that come into play with each of our diagnoses and subsequent treatment. I know someone with lung mets will post soon snd, there is a lung mets thread (will post the link in a few minutes). Good luck with your MRI and try not to get too ahead of yourself with worry. (I know, easier said than done).

    Caryn

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2015

    https://community.breastcancer.org/forum/8/topic/7...

    This is the link to the lung mets thread. Check out this and other threads on the stage IV forum

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited March 2015

    I have lung mets from the get go. Celebrating my two yr anniversary April fools day. I had BMX, chemo and rads in 2013. Now on tamoxifen. Scans clear.

    My biggest side effect is fatigue. I blame tamoxifen for it. I manage to take care of my two little ones. House cleaning takes a back seat most of the time. I generally lay down most afternoons but don't always sleep. Just have to prioritize.

    It's very scary right now because you don't have a plan. You can do this. Right now they are going to check everything. I used my time waiting for results and surgery to clean, clean, clean. It kept me busy.

    They will be checking you out thoroughly. I have just now graduated to every four months for scans but am still seen every two.

    Hang in there. There's always someone here to help or listen.


  • Badasscrybaby
    Badasscrybaby Member Posts: 2
    edited March 2015

    Thank you for your responses. One day at a time!

  • Erika37
    Erika37 Member Posts: 10
    edited March 2015

    I am sorry to hear what you are going through. I know this forum is so supportive and we are here for you!

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