Conflicting BI-RADS and Path Reports - HELP

Jodi1126
Jodi1126 Member Posts: 3
edited March 2015 in Waiting for Test Results

Hello,

My original ultrasound at my regular breast center on 1/23/15 found four masses in my left breast with the radiologist diagnosing BI-RADS 5. The same radiologist recommended only 2 of the masses for core biopsies that resulted in a Negative path result citing dense stromal fibrosis, which was discordant with the ultrasound reading. Further core and surgical biopsies were recommended by the breast surgeon at that hospital.

I had all images and biopsy slides / blocks sent to another hospital for a second opinion. The path report there cited atypical lobular hyperplasia. I found out today that the second radiologist diagnosing from the original images from the first hospital stated BI_RADS 0. Both the second radiologist and the second breast surgeon have recommended MRI, plus further ultrasounds and possibly core biopsies that I have scheduled for this Monday.

I am very high risk with a mother having bilateral BC before age 50, very dense breasts, no children and am an Ashkenazi Jew so a full genetic panel is also being done (sent off today). I am 57 years old.

OK so I have been muddling through this for, going on, 6 weeks which has been making me crazy, but finding out today about the GIGANTIC discrepancy between the two radiologist's findings of BI-RADS 5 and BI-RADS 0 is the straw that has broken the camel's back. I know I just have to wait for all the results, which I can do, BUT

Does anyone have any idea why there would be such a huge difference in the BI-RADS readings????

Thank you in advance,

Jodi





Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2015

    Birads 0 just means they can't assess without further information.

  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited March 2015

    I had this happen too... I'm not clear on the details... but I remember clearly asking why I was seeing a birads 0 after the original 5... the explanation had something to do with the fact that my tumor had already been identified and classified. Sorry I'm not much help, but it might not be as much of a discrepency that it appears to be.

  • Jodi1126
    Jodi1126 Member Posts: 3
    edited March 2015

    Thank You Melissa & Jen. I think I am understanding it better. My brain is starting to go into fog mode from the stress.


  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited March 2015

    understandable. Cyner-hugs for you.

  • nmh35
    nmh35 Member Posts: 96
    edited March 2015

    yes as stated above, birads 0 doesn't mean it was necessarily downgraded, it means that further info is needed to make a determination. I had an ultrasound biopsy and an MRI, and it was a Birads 0 until they got an MRI biopsy. I hope you get some answers soon! The waiting is the worst part.

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