Starting Chemo March 2015

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Good luck with your interview!

    Perhaps we need to motivate our weight changes with an ass-reduction/ass-expansion diet and exercise thread? There are weight threads, but they're thousands of posts long.

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Good luck with your interview!

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  • pboi
    pboi Member Posts: 663
    edited July 2015

    Good luck Eileen! Yay for the phone interview, you can dazzle them with your knowledge and intellect while sitting at home in comfy sweats! 😊

    Ksusan...I'd definitely be interested in a thread like that...something to keep me motivated.

    PB

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  • wpmoon
    wpmoon Member Posts: 270
    edited July 2015

    haven't made it to my PCP yet for the funny stuff cuz of radiation appointments. And the whole not wanting to get out of bed thing. But I know I need to go in.

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  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    I was thinking an exercise thread in the chemo group would be helpful. I've been pondering starting one during chemo because I think it is very helpful to exercise during chemo. People in and just post chemo tend to stick with the chemo forum and not venture too far, so often the exercise forum doesn't get visited until much later.

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  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2015

    In the chair now and not nearly as emotional as I thought. Maybe becUse MO just informed me that I back for Herceptin next week. 😒 I thought I was going to get a break for a few weeks! Grrrrrr. And I guess the Herceptin will be a higher dose now since it is every three weeks. I hate surprises!!!

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Yuck, Carrie!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Carrie- that IS a bit of a let down, still, you earned your victory and we are all proud!

    E- Wishing you a fantastic interview today! I know you will blow them away!

    Allison- Tutti is somewhere in the middle. Sometimes she gets a bit "crazy kitty" on me and attacks my toes, and a couple of times she jumped on my face when I was still sleeping. I unconsciously batted her a few feet away and she hasn't done that again. Jack tolerates her very well, but he kind of guards me when we are sleeping or resting, and she is learning to behave during those times. Instead, she likes to creep along the headboard behind my head like she's on a balance beam. She get to the window via this route, or to my glass of water, which she helps herself to. Mostly, she is very good at entertaining herself, and puts on a daily floor show

    Leigh- so sorry about the frustrating weight gain. I know we all retain water during chemo, so make sure to go by your clothes, not by the scale.....having said that,

    KSusan and Kbee, I am down for a new exercise and diet thread. You will all have to be patient with me because I am close to ground zero with my fitness and core strength. I have nothing, I started this mess in poor shape, mainly due to a serious illness last year which i had not recovered from. There will be no 80 minutes in the treadmill, distractions or not, for a long time. I don't even know where to start. If I walk to my mailbox and back I am seriously winded. Any ideas? I am so concerned because I have been told ad nauseum that estrogen hides in fat tissue and plays a major role in recurrence. I have said fat tissue.

    Leigh and Allison, I so wish you to get to meet face to face. I have to believe that would be a real boost to our girl before or after surgery, even if brief.

    T- glad you are burning up the road, like I thought. You will get faster!

    I'm trying to get somewhat in order here for my brother and SIL visit (coming from Philly tomorrow!) but I'm afraid both I and my house are a lost cause. I am close to just hopelessly waiting for them, house strewn with boxes in anticipation of the move, and a litter box that needs cleaning, ugh..

    Sending good vibes and mojo to Bekah and Carrie for the rest of the day and week!

    Hugs to all,


    Katy

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Katy, walking to your mailbox is more than not walking to your mailbox. Playing with string to get the kitten tired is more than not playing with string.

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Here you go: A chemo/radiation diet/exercise/well being thread: https://community.breastcancer.org/forum/69/topic/833450

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Here you go: A chemo/radiation diet/exercise/well being thread: https://community.breastcancer.org/forum/69/topic/833450

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  • pboi
    pboi Member Posts: 663
    edited July 2015

    Carrie...sorry you didn't get the break you wanted...but does it mean you'll be done with Herceptin sooner? That would be something to look forward to.

    Ksusan...thanks for starting that thread.

    Katy...love the Tutti pics and stories. And come and join the exercise thread. Each of us have a different starting point (even if it is just to make it to the mailbox). I'm hoping the point is to encourage each other to keep moving forward and keep each other accountable. I certainly need that. Otherwise I have many lazy days where I just don't want to exercise! And I need to!

    PB

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  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    Eileen - best of luck to you! You'd be perfect for the job. Take the interview in your Joe Boxers!

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  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    So call me a Debbie Downer. I'm cleaning out the closet, and all the sudden it occurred to me that I don't think I'll be as fun post-BC. I used to LOVE to have fun. The world was my oyster. I'm not depressed or anything, I just see the harsh realities of the world now that, fortunately, I've been sheltered from for most of my life. My body is no longer a playground for good food and drink, and I'm pissed about that. I guess it's now, what do they say, a temple for me to treat well. I guess I can get into that, but shit! I hear people say they just enjoy each and every day, and I will try to do that, but it's not as easy as it sounds. Don't know where this came from--sorting through things in a closet...

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  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Sue, I've noticed that I'm sort of reacting in the opposite way - I'm frantically trying to plan lots of vacations to get in all the people and places I want to see in the next couple of years. I have 3 airline tickets booked for the next 2 months! I guess part of me is assuming the cancer is going to come back any second so I need to get this stuff all out of the way? I think any and all of our weird reactions and feelings are normal right now. I'm hopeful we'll settle into some sense of normalcy as more time passes.

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  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    I've had to cancel the last 3 vacations I had planned due to medical issues for my husband or me. So re: my beloved travel, I think I'm supersticious or something, but am afraid to plan another trip.

    And I find I keep to myself more. Don't really need or want company.

    I liked the old me better...

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Sue: I understand how you feel. I was just telling my sister a few minutes ago how I NEVER worried about BC. NEVER. Not because I felt special or anything but because I was pretty flat chested before I had implants 30 years ago. I figured the chances of me getting it were next to nothing. I was sheltered too.

    Then I think about the people who have had multiple people in their family get it. My heart just breaks for them. Then there are others who will never be affected by it. I just don't know.

    I think you will have fun again.

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  • rleepac
    rleepac Member Posts: 755
    edited July 2015

    Theresa - how is the Herceptin only going? Any SEs to be forewarned about?

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  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    Tryler, I think I should give up cleaning closets!

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  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Oh, I'm definitely buying the insurance on airline tickets, which I never did before!

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Yes, Sue. Not cleaning closets = more fun.

    Molly: Check the fine print. I am not sure if cancer is considered coverable since it's preexisting. The only reason I thought about it was because I had to cancel plane tickets for spring break and I was going to file a claim for travel insurance with my credit card. I guess American Airlines felt sorry for me because they finally refunded my non refundable tickets. I was only asking them to confirm my info and cancellation so I could file the claim when they refunded me. But it got me to thinking about when I book my flights to NOLA. Will I be covered if something happens if I book insurance?

    I am the same way about travel. My husband asked me where I want to go on a trip when all this is over. I can't even think about it. I can't even think about life when all this is over. I have to live my life one day at a time now. I am dying (excuse the AWFUL pun) to go to Europe now with the Euro in bargain basement territory. I am thankful we went last fall to Italy. I will cherish those memories for the rest of my life.

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  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Allison, it does include preexisting conditions! Thank goodness. You're lucky American gave you a refund - I pled my case for a trip we had to cancel in April but they only agreed to refund about half the cost of the tickets and I can't get anyone on the phone to explain why.

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Some trip insurance covers pre-existing medical, some covers cancellation for any reason. We had two complex, expensive trips entirely covered when we had to cancel this year because of my medical.

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    I can help you, maybe. Hang on.

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  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Molly: I don't know what airline but this guy writes a column for the Chicago Tribune every Sunday. He has a list of contacts at each company you will see on his site. I had gotten nowhere with the usual customer service people so I copied the AA guy that he put on the list and lo and behold, refund! Good luck.


    http://elliott.org

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  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    Bekah, so far so good on Herceptin only. After 1st infusion, I felt like I had mild flu-like symptoms and went home and laid around like a slug and watched television. The next day I was fine. Last go round, no flu like symptoms, but three diarrhea episodes the same night. Other than that, nothing. But I wanted to let you know about the diarrhea since you appear to get smacked with it pretty hard.

    Hopefully it will continue this way - keeping fingers crossed! 7 down, 10 to go!


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  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Thank you for that, Allison! I am forwarding him my latest email right now.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Sue- I'm sorry you feel like a Debbie Downer today. I wanted to say, from the outside looking in, you are VERY FUN to have around. On days like today, you just have to take our word for it. You probably won't be exactly the same girl as you were when the shit sandwich was first put on your plate. But you will still be a fun girl who likes to cook and eat, and keep your friends laughing.

    You must limit closet cleaning to one per week. For every closet you clean, reward yourself with a fun, short exercise. Something you will learn to love. Like me, we will love it because it will show we are loving ourselves. It's a stretch to call my body a temple. But I should treat it like one anyway. Thank you for the suggestion.

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  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    I love you, Katy! And your darling pets too!

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  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2015

    Now I am annoyed. It's my fault for posting on Facebook. Grrrrrrrr!!!!!! I posted about last chemo day. I haven't shared too much on FB but I haven't been keeping it a secret anymore. One of my "friends" shared my status which means ALL her friends can see my post. I didn't even know people can do that. Anyone know how to make it so people can't share your post but still see it. I feel totally stupid for being upset. Am I overreacting? I haven't even seen this "friend" since diagnosis. In fact she told me it's hard for her to see me and another friend of hers who is also diagnosed. I am sure it is but why would you share my post? I would take it down but other people are respectful and like the update. Ugh

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