Ugh...

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Trvler
Trvler Member Posts: 3,159
edited February 2015 in LCIS (Lobular Carcinoma In Situ)

I am really confused. I was diagnosed and received my diagnosis just under two weeks ago. I had an MRI and they called and said it didn't show anything different than the original path report which included no mention of lymph nodes at all. Now, I logged into my test results account and it says abnormal lymph nodes. Why did they tell me it was consistent with the original path report where lymph nodes are not mentioned at all? Now I am freaking out a bit. I was feeling pretty good until I read that. I know that the real test is the surgery but why did they tell me one thing if it was not true?

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  • Trvler
    Trvler Member Posts: 3,159
    edited February 2015

    Great. I just googled the results and it says it isn't the enlarged node that is the problem or increased the likelihood of it having spread but the 'loss of fatty hilum'. (sp)? Mine said there is no presence of fatty hilum in that node. WHY DIDN'T THE NURSE SAY THAT?

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  • Trvler
    Trvler Member Posts: 3,159
    edited February 2015

    I called the doctors office and talked to a nice scheduler and she said the reason the nurse told me that is because that's what the doctor wrote for her to tell me. But based on what I am reading, this is not good. Does having in your nodes always mean chemo? That's what it says in the literature. Anyone?

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  • leaf
    leaf Member Posts: 8,188
    edited February 2015

    By definition, LCIS and nothing worse has not passed through the basement membrane. The basement membrane lines the ducts and lobules of the breast. So if your diagnosis is ONLY LCIS, by definition, it cannot have spread into your lymph nodes. If you have invasive breast cancer, then by definition, it has 'broken through' the basement membrane and can spread to other places in your breast, and potentially, in your body.

    If you have breast cancer that is invasive, then it can spread into your lymph nodes. People can have enlarged lymph nodes for many reasons, including things like infections, that are not cancer. I don't know what 'loss of fatty hilum' means.

    We all want to be ready for whatever is ahead. I'm sorry you're going through this worry. I don't know if having cancer in your nodes always means chemo, but no matter what happens, there will be someone on this site who has probably had a situation similar to yours.

    Waiting is awful. Hang in there.

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