Need help!!! :'-(

Annamaus

Need help!!! :'-(

Annamaus

Hi girls, I'm new to this group, thanks for welcome! I had breast cancer last year (Triple Negative) and my treatment ended in August last year. (chemotherapy, mastectomy, no radiotherapy). Since my last chemo I have many strange symptoms and feel worse for month. No one can help me to figure out, whats going on with me and I'm afraid it kills me... I search for girls, they experienced with the same issues or symptoms like me. The main symptom is that I feel very dizzy, like I'm drunken, EVERY DAY! I have a very painful neck, back of the head and teeth. I often feel tightness of chest and if I just speak, makes it the symptoms worse. My pulse going up, if I'm standing till 120bpm and more. My hands, arms, legs and feet turn blueish if I'm upright. I have circulatory disorders of the little blood vessels. Cold sweating, nausea, feeling very unwell and sick. I'm the only one with this strange symptoms after cancer treatment? Come from Germany, but cant find someone with familiar symptoms or problems. The neurologist think, it can be dysautonomia or an autonome neuropathy??? But not for sure... feeling bad for 5 month, I'm so sad. Thanks for "listening".

RebzAmy

Hi Annamaus

So sorry you're feeling so ill and hope that somebody can come up with some answers quickly for you. I'm afraid i can't help you but I hope somebody will come along who can.

Hugs

Moderators

Annamaus, we are so sorry to hear about what you are experiencing. Are you on any medications that could be interfering or causing side effects?

dlb823

Annamaus, the one question I would have is, have you had scans to rule out any recurrence or progression? Hopefully, that's NOT the case, but in the US if you've had breast cancer and then have unexplained pain or odd symptoms that last for 3 or more weeks, that's the usual protocol -- to order a PetScan or CTScan, maybe a brain scan or MRI -- just to be sure it has nothing to do with the bc, and to hopefully uncover whatever is going on. (((Hugs))) and welcome to BCO! I'm glad you've found us. Deanna

Annamaus

Where's my reply??? Whats happened, it was here for a view minutes?!

Ok, it was a very long day, I go to bed and write tomorrow again...

Good night, Annamaus.

Elizabeth2020

yes, unfortunately sounds like dysautonomia. I have it. Not much they can do to treat it. The high pulse w standings is referred to as POTS, Postural Orthostatic Tachycardia Syndrome. It's awful. I'm sorry.