diagnosed with sumpin

Jeeper4

I'm a cancer without a forum right now. Still waiting on final path report but the preliminary said dcis and small area of invasion. super stressed and reading as much as i can on this site. It looks like so many are diagnosed with something milder at first but then end up being diagnosed with something worse. Since my pathology is taking so long, I am terrified. Not sure if I will land in dcis w/microinvasion, idc, or something worse. It's all bad anyway. Surgeon told me Mayo pathology is running more staining tests. Does anyone know what that could be for? Is that where they test for estrogen and all that other stuff? Or do they do that after a lumpectomy or mastectomy? Also, he does want me to go for an mri scan and was lucky enough to get one on Wednesday. Is this when they check lymph nodes? What other tests will I need to do before I can get these boobs off of me? I don't say that lightly. I think that may be a good choice for me based on what I've read so far. Also, what is a reasonable time span for surgery? End of Jan? Feb? wish i could sleep, headache, and starting to feel sick to my stomach.

Sjacobs146

Jeeper, please try not to jump to conclusions or make any treatment decisions before talking to your doctors. Waiting for information is the hardest part of this whole thing. Talk to you primary care doctor about getting anti anxiety meds. While I did not use them, many women have found them helpful at this stage. This disease is very treatable, try not to focus on worst case scenarios. These discussion boards are a wonderful place to find support.

While it is true that some women find out that things are worse than originally thought, that is not the majority. Try to think positive and take things one step at a time. Scheduling surgery all depends on availability of surgeon and OR. You will get a lot of info when you meet with your surgeon. One last thing, please stay away from Dr. Google, much information that is out there is outdated. This site is a very good place to fin accurate information

Jeeper4

thank you. trying to keep it together. last night was a long night. hope i sleep better tonight!

Lisamarie6864

Hi Jeeper!!!

I so know what you are going through right now , your mind racing and not knowing what's next. You will know so much more when you meet with surgeon and feel much more in control when you have a plan. I know it's hard but try not to go to that worst scenario place....you found it early and with your new army of doctors you will get through this. We are here for you. Hang in there (((hugs))).

Moderators

Dear Jeeper4, we welcome you to BCO but sorry you have had to come here. This is a Forum with a lot of helpful and knowledgeable people who are willing to share their experiences.

Waiting for results is a horrid time, but try to focus on what you know and not what may be. Everyone here has gone through the waiting and can relate to what you are going through.

You may find reading information, from our main site, on DCIS — Ductal Carcinoma In Situ, Diagnosis of DCIS OR IDC — Invasive Ductal Carcinoma where you'll learn about symptoms, diagnosis, treatment, etc. of interest.

All the best

The Mods

Beachbum1023

Good evening Jeeper4, I think you know me already!! I just joined this journey in July so it has been fast and furious. But please do not waste too much time on worry and stress. Everyone will tell you that waiting is the worst. It has been hurry up and wait for me. Now I am waiting for results from my surgery. I feel like I have one answer at a time. It can be overwhelming to process all of the information, keep track of appointments, and stay organized through it all.

I have invasive triple negative BC so a little more frustrating for myself and my Doctors. But it is on the run, I made it through all of my chemo treatments, and surgery. So I hope the New Year brings a new start for me. I hope everyone here has a great year too!

I always keep a notebook and pens handy so I can list all of my questions for each of my Doctors. That way I won't forget when I see them. It helps to keep me organized, and I have all of the answers. Everyone has treatment plans and Doctors so it is hard to compare between us.

Remember it is nothing until it is something, and we never know until the reports are back. And if it is something, you pick your battles! And being here, you have a lot of support! Take some time to enjoy the New Year, take a bubble bath, do your nails, and have a sinful amount of your favorite beverage. In other words, be you and spoil yourself rotten. A little normal will go a long way right now.

Take Care and I hope you have good news!

Holeinone

Jeepers, not sure how all diagnosis are handled, but mine, they did they punch biopsy on the sentinel node, when they biopsied the breast. So, when I got my results, I also go the info, Lobular, er & pr +, node +.

After the lumpectomy it was much worse. Then I needed a PET scan because my nodes were bursting with cancer. THAT is not the norm. Most ladies are dx with node negative breast cancer. Lots do not need chemo, or they get chemo lite & rads.

I know this is really difficult, not knowing the facts is torture. Be kind to yourself, good time to be a little selfish. DCIS is the best you can ask for. Keep posting, we all get it.

Jeeper4

thank you ladies for all your support, encouragement, facts, and what to prepare for. i would be in the looney bin right now if it weren't for this site! amazing what women can do when we unite! feeling cared for right now by all of you

Tomboy

Glad you found us, Jeeps!