Looking for Her2 Positive survivor stories

zjrosenthal

Just had my third mamo after treatment. 3 yrs with no evidence of disease. God is good. Love, Jean

rozem

Hi her2 ladies

Checking in...6 years this month for me !

I remember scanning this site for positive stories and promised myself I would share mine if I got through this mess ok,

keep strong! It's a tough road but you will get through and before you know it you will be posting your own positive storie

Anonymous

Checking in at 6.5 years. Knock on wood. If someone asks if I am doing ok, I just say, I don't know that I'm not so all good. I still have issues with the not knowing for sure what's going on, so will continue to be vigilant about as much as possible. But, loving life, travelling and my ten month old grandson!

Tara17

thank you ladies for posting - it really means so so much for those of us who are actively facing this. This forum really saved my sanity . I cannot wait to be one of those ladies who gives back in ten , twenty and so on years from now !! .

Maryan

Thank you so much ladies for the positive stories, we all need encouragement and hope, I recently was diagnosed with breast cancer, just before I turned 30 , I had the worst birthday ever 😬 I have a 5 years old daughter , also Her2 positive , and ER-/PR- ( have ATM Gene) they say it raises the percentage of getting cancer in my age by 10% , my oncologist put me on neoadjuvent treatment, I have now last round of AC and will start Taxol and herception and Parjeta in three weeks. Mine is multicentric and Her 2 so I felt very bad about it that it is one of the worst types but there is still hope, and it pushes me to go on when I read these positive stories. And it will help also if you share weather you changed the diet you are following, I cut sugar , lower carbs, no dairy and red meat now and added more veggies and fruits. I hope for the best , but I know i will be long hard trip

moodyblues

Thank you to everyone posting the positive and encouraging posts!  I was dx'd on Feb 22, 2017 and all I heard was reoccurrence, reoccurrence, reoccurrence--it was overwhelming to say the least!  Being triple positive and reading up on it, I thought it was the beginning of the end.  Thank you for posting and letting us know of your success stories and life beyond BC.  

For all of you Triple Positives that are 5 years and beyond, what have you consistently done differently with your nutrition/diet since your dx? 

Melanie

Fitz33

7 years since diagnosis. I never miss taking my night time Arimidex. I live with ant side effects and can't complain since I am, after all, living, thanks to my great doctors and follow-up care

Alicethecat2

Hello from a five-year HER2+ survivor. Thank you Dr Slamon and the team for Herceptin.

Good luck to everyone.

Alice

Cowgirl13

I'm 8 years out and life is good. I didn't think so at the beginning but this is all doable. You are in my prayers and you will get through this.

mistyeyes

I am so happy to read these. Thank-you so much for taking the time to post, it really does help. Especially right now for me, because I have been doing a lot of "stinkin thinkin" and making myself a crazy nervous wreck. Reading these calmed me down and helped me to look forward more positively.

moodyblues

Fitz, Alice and Cowgirl thank you for posting and giving us encouragement!!!!!!!!

Mistyeyes, I go there sometimes too....  Darn stinkin' thinkin' times " 

moody001

Love to hear the survival stories! Gives me hope. I am HER2+ (Positive Breast Cancer. I have had 12 treatments of Taxol, Projeta,and Herceptin every three weeks. Am now faced with surgery. My last MRI found no evidence of cancer in my right breast of in the two lymph nodes that had looked suspicious. I was overjoyed and was pleased when my surgeon said he would do a simple mastectomy testing the sentinel node and removing maybe three nodes. Then my oncologist said he would instruct the surgeon to remove all nodes and to do a radical mastectomy. I am inclined to ask for a second opinion and am scared to death especially when I learned what was involved in a radical mastectomy. Any input would be greatly appreciated! I am 76 years old and play the piano and would like to continue. I am still playing in spite of nephropathy I acquired thanks to chemo. He then plans to keep me on herceptin and then do radiology. That sounds reasonable but not the radical mastectomy. Carolyn C.

Alicethecat2

Hello Cowgirl, Misty Eyes and anyone dealing with Her2+, thank you for your replies. My friend is triple positive and nine years out. I am five years out (see stats). There are a lot of us around.

Best wishes

Alice

Cowgirl13

Carolyn, definitely get a second opinion from another oncologist. I would also speak to your breast surgeon about the onc's opinion. Keep us posted. Thinking of you and please keep us posted.

moodyblues

Moody001.  This is a beg decision, if you are unsure and having mixed feelings, get a second opinion.  I agree with cowgirl.

Melanie

raleighgirl

Moody001,

Your story sounds so much like mine. I also had a breast MRI post chemo which also showed no cancer remaining in the breast or two lymph nodes that had been positive. My first surgeon wanted to do an axillary dissection. I went for a second opinion at MSK and the surgeon did a clinical exam and told me he felt the best option was first do the sentinel node during surgery and decide whether or not to go forward with the axillary dissection based on pathology which would be sent out during the surgery. I got so lucky and had a complete response so no axillary dissection was necessary. .

Getting a second opinion for myself was pivotal. I am so happy I did. I don't think it would hurt for you to get another opinion as well!

sheila888

Moody001......I'm a Her+ survivor since 2005

I had a lumpectomy then.......

When I was diagnosed again it was a new primary THIS TIME it was HER-

You can PM me if you have any specific questions

Good luck to you Hugs

Sheila

hlya

My friend was dx 8 years ago with Her2 postive with 2+ nodes involved, she had the problem breast removed. She's been quite well since then and her life is almost back to normal now.

moodyblues

Hyla. 8 years...awesome!

Kattis894

Love this thread! I am only one year out still NED but come here to check. If this website and myself are still going after 8 years I promise I will post here as well.

mistyeyes

Katties894- I am currently taking Herceptin. In a year I want to post and I will come back

in 8 years and read your post!

maryannecb

Today is 12 years from my diagnosis. Living large and still dancing with NED. Fists up!

katykaty

congratulations maryann!!! I so hope to follow in your footsteps xx

mistyeyes

Good for you Maryann - glad you posted!!! Fist Bump!

Corinne6

I'm a nine yr Herceptin survivor. Happy with life. Had Her2 and Er+, four lymph nodes were involved. Thanking the Lord for his goodness. Joined www.rowstrong.org in 2011. It's been a great source of encouragement and exercise.

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moodyblues

Maryann and Corinne.  Woo Hoo!  Congratulations!  This gives me soooo much hope!

Kattis894

Mistyeyes I am looking forward to read your post in a year..:) ...congrats and thank you all that are posting...positivity is a good thing...

MKTOC92315

Today is my 2 year cancerversary. Thankful to be alive and kicking and hope to have many more years to come. I still think about it every day due to lingering side effects, but am hopeful for the future!

beach2beach

My sis is 9 years out with IBC and HER2+.

moodyblues

Thank you for sharing MKTOC and Beach2beach (for sharing about your sister), I love hearing these stories.  I look every day at this thread for more stories as it encourages me so much!

Melanie