November 2014 Starting Chemo Crew

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    Erica

    You hit the nail on the head. You are right, it's to help us and I am going to make a grateful list for the bumpy days

    Omg so sorry what a shock to have that visual when you're so close to starting. Am thankful an angel in that counsellors timing saw it and reached out to you :) I would have struggled, but maybe better that it happened today than be a worse shock day of..hugs I am scared too, but Monday we face it together, I will be thinking of you...do you have someone going with you?

    Hugs hugs and hugs seeing and taking it to Jesus calms me instantly, sometimes I just get so caught up I forget who's with us :)

    How are the twins??? Walking and getting into everything ?

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  • Leslienva
    Leslienva Member Posts: 489
    edited November 2014

    Bonnied--I've been out on disability since my double mastectomy so I decided to stay out through chemo. I work at a large company in a fairly stressful job and with it being cold and flu season, I thought it would be best to go back after I finish chemo. I may see if they'll let me work from home but they don't like employees to telecommute

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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Chris. . You're right Jesus is, always has been and always will be with us. And that's enough to be so thankful for. And I said the same thing, it's better to get the initial shock out of the way, it made me feel just a little more prepared for Monday. My husband is going with me...and as far as the twins woooh 😰where do I begin..they are walking/running all over the place, bumping their heads on things including these hard as rocks tissue expanders on my chest lol. They're saying a few words, they can point to their little body parts (eyes, ears, hair, hands, mouth, nose, stomach, and toes) lol. They keep me Smiling. The weekend is here and we know what's ahead of us, so let's hold our heads High and finish this Fight. Friend I believe we will be just Fine.

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    Amen to that! Follow the light, you'll be alright!

    Good glad you have company, with you in spirit and until then it's the weekend! Yay that!

    Good the twins will distract you, but hoping they leave your tissue expanders be

    Wow that is really good they are doing great to know the words and relate them!!! They absolutely must keep you smiling, and giggling, kids are straight up fun - until they or you get tired.

    Enjoy your weekend, reach out if you need a shoulder, with you on Monday. Fine is good for me :)

    Hugs

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  • Redhead01
    Redhead01 Member Posts: 47
    edited November 2014

    Erica....I also responded to you on another board....my first T/C  chemo was 11/13... and am very relived i am feeling great!  But have been proactive thanxs to tips on theses boards, loading up with ginger root tabs/tea/candy/snaps....and drinkign 100 oz of juice-flavored water for 2 days now to flush the toxins.  No nauseu to speek of...I also took the dr presribes meds whether I felt any coming on....no harm...take it before you "May" need it.  Today is Neulasta shot, but have taken the advice of others here to take Claritin 3 days before and for a week after {more than drs say)   can't hurt.  VERY mild bowel issues so far.. i've had worse after a bad meal out.   Worst was having a blood pressure of 181/110 when they sat me in the infusion chair...anxious, much? So they reduced that with a shot (had my port put in only 3 days prior....no numbing cream but they iced the area...it was still sore and healing but that wasnt too bad either).  I'm also taking B6, D3, and magnesuim to head of neuropahty issue....alll cleared with my onc team.  Hope this helps you hunny, praising God I found the angels He sent here to help us along the way.  Blessings....cant wait to hear bout your story now.  Hugs  Ginny

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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Ginny thanks so much. .I'm so glad things are going good for you, gives me alot of hope :) I started taking the B6 a few days ago, got a couple 100 oz jugs of water and I Love POM juice can definitely add that to the list along with the magnesium. I read that B6 helps with nausea as well so double the benefits! I got a ginger root tea recipe from Bonnied, that I plan on making tomorrow but will also add the ginger candy and snaps to the list. I got the Claritin too haven't started on it yet but it's ready to go! How are you doing with the metal taste or were you able to ward that off as well? Thanks again I really REALLY appreciate the tips I'm sure this will help me so much! And there's a chance i may need the Anxiety premeds as well lol!


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  • bonnied
    bonnied Member Posts: 74
    edited November 2014

    Hi Leslie, It sounds like being out on disability is the best for your situation. I hope the healing is going well for you. I ride around in a car all day visiting clients and looking at their trees. We work year round and thru the winter months. So I guess my office is my car. It is good to have an office staff to set my appointments out in the field and can give me light days for when I don't feel great. I decided to tell my work peeps right away about my BC and am keeping them in the loop. Lots of support and glad i shared with the team at work. Even the higher up bosses call me from time to time to see how I'm doing. I am lucky i think with respect to work support.

    Speaking of ginger candies…i found these awesome ginger chews at the local asian market (Lotte asian market) on the asian aisle. They are individual wrapped little ginger candies that are similar in texture to gummy bears. You suck on them and they stick to the roof of your mouth while you suck on them. They are not as intense as the candied ginger and will be a nice thing in the chemo bag or purse.

    Are you going to Fairfax? Not sure if i asked you earlier. I am at inova Loudoun out in leesburg. The team approach between all doctors has been excellent including the breast nurse navigators who are awesome as mentors.

    Now you have me thinking about the claritin…not sure i will go that route. I love the herbal approach and will see what i can do with different herbal teas that can manage the congestion. The ginger tea should help too with that.

    Haven't thought wigs or hair pieces but i got a kickass black hat and added some bling this past week..and some scarves. I am practicing my tying skills. YouTube is great for scarf tying vids. Everyone has an iPad these days. I think i must be the only one who doesn't have one so thinking this might be time…hehe.

    OK, enough rambling.. I have beef marrow bones defrosting for this weekend's stock activity. I thought it would be best to make it now because smells of beef roasting might not be great during chemo…


    xoxo to our November crew… <3

    Bonnie


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  • bonnied
    bonnied Member Posts: 74
    edited November 2014

    Erica, add chamomile teabags to your list. Tulsi tea might also be a good choice too. They are relaxing teas that can support times of anxiety and are gentle to the system. I hear lavender is also an herb that relaxes you…

    xoxo

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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Bonnied, will do! Thanks :)

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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Wondering how Kiwi is doing, haven't seen her post lately, hope you're doing well with your treatment, you're in my prayers.

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  • TallyLassie
    TallyLassie Member Posts: 56
    edited November 2014

    Thanks for the notes of support, everyone. My approach to the "Chemo was Bring It On!" because I knew it would start killing those cancer cells. Erica, you have already gone through surgery, so you are farther along than me. I was surprised at how easy that first long day of Chemo was. They started me off with IV Benadryl, which fights any allergic reactions, but it has a sedative effect that really calmed my nerves. I drank lots of water, and they filled me with 7 IV bags of various things that took 7 hours, so I had to keep dragging my IV to the bathroom. I'm glad I wore warm, comfy clothes with slip on pants that were easy to pull down and up, since I'm going with an IV in my hand and no port. The steroids they give you actually provide a boost of energy and I was running around cleaning my kitchen that night. Even the next day for the Neulasta shot, I felt ok, and shocked my sister's family by showing up for a birthday party that night. Then I had three rough days with nausea, but now thanks to everyone's advice I'm taking the meds and today it is better. I was glad to have soothing music on my I-pod, and even surprised that I was hungry during the day. Like everything else, you will get through this.

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  • knittingPT
    knittingPT Member Posts: 156
    edited November 2014

    Bonnie, I'm curious about your work. What do you do with trees? I'm also very lucky to have a supportive work environment. I didn't want to go on disability because I enjoy my work so much. I am a pediatric physical therapist. My coworkers are letting me limit my work to the neonatal intensive care unit (very clean, few infections, and less heavy lifting!) and to babies under 6 months in the outpatient area. We've labeled my room "Ms Caryn's super duper clean room" and we wash it down several times a day. Everyone knows to wash hands before coming in and no sneezing allowed! It was tough to let my older patients move on to another therapist but every (both patients and coworkers) are extremely supportive. I've gotten so many card, drawings, well wishes that it is sometimes overwhelming. The only down side to having every body know is that everyone is always asking . . . how are you? how are you feeling? It gets exhausting having to repeat myself so much but I know they are meaning it as support.

    I'm gearing up for my second A/C treatment this Thursday. So far, my main issue has been fatigue. I can deal with that!! I'm waiting for my hair to fall out because I know that should be happening in the next week. I got some cute hats and scarves. I'm thinking about crocheting/knitting some "hats" that look like disney characters' hair/hats to wear to work. I think the kids would like them.

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  • Nik1966
    Nik1966 Member Posts: 431
    edited November 2014

    Hi Ladies. I am here. Just been through day 10 after treatment, and I have been ok. I have been lucky and had very few side effects in terms of fatigue and nausea (thank goodness for seabands). I have only had my infusion day off work, and managed to pretty much keep to my normal schedule for everything including the kids activities.

    Here's the but ...... I ended up back at the hospital on Thursday with an infection in my port incision and the most horrendous case of Mucositis (basically ulceration of the roof of my mouth). Apparently it is very common (40% of FEC chemo patients get it), and other than gargles and gel there isn't much the Doctors can do for me (antibiotics for the port infection). Even swallowing water hurts, and it is further complicated by my wearing braces. The Doctor said that it should resolve once my white blood cells come back, and if it doesn't then they will reduce my chemo dose or delay my next treatment.

    I had my wig fitted yesterday, it looks ok. I also asked them to shave my head which was my way of taking some control back I think. I had started getting some inflamation on my scalp so it was a matter of days before it started to go. I had visions of being in a gust of wind and it all flying off! I have several hats and buffs to wear. It does feel weird though. I get a fright when I look in the mirror, but everyone else in my house hasn't batted an eyelid. I must have prepared them well :-)

    Hope everyone is doing ok.

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  • Leslienva
    Leslienva Member Posts: 489
    edited November 2014

    Ha anyone used the Formula One shampoo that's on the Brian Joseph website? I saw it when I was looking for the brow gel.

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  • knittingPT
    knittingPT Member Posts: 156
    edited November 2014

    Kiwi! I'm so sorry you had to go in the hospital for the infection. How annoying to not have any SEs and then have that!! Did they end up giving you IV antibiotics? The mucositis doesn't sound like much fun either. I hope it resolves sooner rather than later. My neutrophil counts and platelets were down at my visit on Thursday so they pre-emptively put me on antiobiotics for the weekend. I haven't shaved my head yet but did cut my hair very short. I hadn't thought about using buffs but have several that I use when cycling and skiing. Thanks for reminding me!

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  • bonnied
    bonnied Member Posts: 74
    edited November 2014

    Thank you for asking about my job. I work in a sales and consulting role, helping people, both residential, commercial and municipal clients make decisions about their trees. I enjoy the work and like knowing that I am helping people have healthy and beautiful trees. I work with 2 other sales arborists plus my sales manager, office manager, and about a dozen tree guys who perform all the work we sell. I have been with this company for 14 years (starting 15 years on Jan 30). Sometimes I give talks to garden clubs or other organizations. I served a 2 year term as president for our industry mid-atlantic chapter (last 2 years) of over 1100 arborists from VA-MD-WV-DC areas. It is an interesting job for sure. I love all the people i have met over my 25 years in the tree care industry.

    One day i want to change to a culinary type job, maybe teaching home cooks who want to learn cooking skills using whole food ingredients or consulting privately with people who are ready to transform their kitchens from one that has lots of processed stuff to a better way of eating. I am learning to use herbs for health, starting tinctures, salves, teas, and of course culinary. I am a total spice nut! About 8 years ago i threw out all of my spices that had no smell or taste and started over, buying mostly whole spices and have been growing herbs during the growing season. This year I bought a dehydrator and have dried a lot of the fresh herbs (chives, parsley, sage, rosemary, thyme, mints, etc) for use during the winter months. Last January I began a 6 month online plant based cooking certification. I learned more than i ever thought over those 6 months ranging from making soups & salads, to world cuisines and raw cuisine (3 weeks of the raw cuisine was fascinating!). I am an omnivore and love everything but i also love vegetarian and vegan eating and cooking.


    My former life was spent as an international flight attendant for the now defunct Pan American Airways. I was based in London, New York and Washington DC during my 13 years. It was a great chapter of my life and one I never regret.

    My motto: Variety is the spice of life.

    Thank you for asking me to share… I'd love to hear from our other team members on who you are and what you are all about.

    xoxo

    Bonnie

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  • knittingPT
    knittingPT Member Posts: 156
    edited November 2014

    Hi Bonnie! Was PanAm like it is in the tv show? What was your favorite place you went to? (I'm trying to start planning by post-cancer treatment vacation already!!) I have a dear friend who is a tree pathologist working for the forest service. I myself am not very good with plants. I am also not much of a chef so the kind of classes you are talking about teaching would be classes that I would take. I like to cook but really just follow other people's recipes with a few tweaks. I have moved away from the processed type foods over my adult time but still am not super creative. I am more into the physical activity side of things. I'd much rather hike, run, climb a tree than garden or cook. However, I do like to eat!!

    As for work, I actually started out in archeology and was interested in bones/forensics. That was too depressing and I ended up becoming a physical therapist. My favorite thing about my job is that I don't have to sit still and get to move around all day. It is a lot of fun! So, it is a little bit weird being on the patient end of things for me but at least I am not afraid to ask questions/push for what needs to happen. I have also had a lot of time in hospitals and understand how/why things work like they do. That has been VERY helpful.

    What's everyone else do in their "other" life? you know, the one before cancer. I think our hobbies and interests are going to help us get through this crap!!

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    In my former pre cancer life...

    Seaglasser, collecting sea glass, shells, rocks, driftwood & other stuff which washes ashore to turn them in collections in ball jars, jewelry (wire-wrapped, don't beli in drilling glass) and sea glass mobiles. Was working on getting an Etsy shop going but my parents were badly injured in a bad car accident and have been nurturing them back to Heath, happily they are much better. You're ne at rest when your loved ones are ill. They are 88 & 89 and I am very blessed to have them alongside me during my healing journey :)

    I am also interested in photography and had been practicing soft focus shots on my garden and porch plants. I'd grown those to give beauty and nuture to my Mom and Dad while they recovered and were housebound and like a boomerang it came back to bless me with cheerful flowers and indoor plants still lasting into November- although the garden outside is probably going to go soon as I'm in the northeast :( I did manage some herbs but would like to restart an indoor garden if I can find seeds online as my chemo is 6 months and I will be on TDIas the commute is long and the environment is steady/busy and immune concerns with 450+ people I interact with...

    Because I am a computer person in my day job :) which is fun, it's fun, it's never the same and LOL everybody knows my name. Last day was Friday as my chemo starts Monday and I felt very teary as there's been a lot of love and support.

    I also love to dabble with drawing and painting... I did not have an iPad but splurged on iPad air 2 and am loving it!!! It's got some drawing & painting apps I've purchased, along with I Love Lucy videos from tv series- I will always laugh wTching her!!! And oh yeah this game called Covet, fashion app, fair warning very addictive!!!

    I live with my Mom & Dad, totally blessed as they are amazing and two beautiful black cats rescued from the local shelter last year. Zoey is my cat and she's been keeping a close eye on me lately- so sweet!!! I have a beautiful 32 old daughter, 11 year old grandson and a great son in law who I call my son. Never got married but having a good life.

    I'm glad to part of all of your lives, I'm an ear if you need one:)

    Sorry wordy huh???

    Stocked up veggies frozen fruit greek yogurt, kefir,lentils, black beans, spices etc. nd making a chemo soup in the crockpot and going to dye my hair one more time. Tomorrow my daughter is helping me put pink streaks in, I love the color pink, luckily it coincidences with breast cancer colors LOL

    Hugs and Love to all of you

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    Hugs Kiwi, hoping that Mucositis clears up for you - and so sorry to hear of the port infection. Hoping that is the big bump and you are healing and feeling better soon. Would a straw help you get stuff past the roof of your mouth???? Saline rinses? (I only mention that as I had a tooth extraction that would not clot up for hours and at 8 o clock at night I started soaking the gauze pads with a room temp salt water mix and it helped it clot and heal for me. Not sure if that would heal up the Mucositis though) Wishing you lots of wellness and hugs!

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    Bonnie thanks for the Chamomile tea idea :) bought mine today and some ginger too!!!

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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Kiwi, happy hear you're symptoms are minimal but really sorry about the infection. Sorry I don't know of any home remedies that will help, Pray it clears up soon.


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  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited November 2014

    Chris, I also made my "chemo soup" today... actually still in pot simmering. Magic Mineral Broth! image

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  • cc3373
    cc3373 Member Posts: 100
    edited November 2014

    Erica that looks good, I'll be over LOL ;)

    I love soup, I didn't have a recipe, made it up...let's see how that goes, my taste buds probably won't care anyways.

    Also dyed the hair, last 2 weeks for long and bottle blonde soon to be shaved, probably with my daughter who insists upon doing it! Another blessing to have that love :)

    Hugs my friend!

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  • bonnied
    bonnied Member Posts: 74
    edited November 2014

    Good morning ladies!

    I was having my morning coffee and browsing the internet. I thought i would share these links for some cool but funky chemo hats or skullcaps.

    Thought you might enjoy looking at them too. For your Sunday browsing…

    >: )

    http://bowsgallery.com/Hats.html

    http://www.domadesigns.com/hats4.htmhttp://www.headcovers.com/madison-two-tone-turbans...


    http://www.headcovers.com/headwear/turbans/?material=14395,14398,14399,14400

    http://www.hatsofempowerment.com/fleece_headwear_for_cancer_patients.htm

    Bonnie

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  • Tigger2
    Tigger2 Member Posts: 17
    edited November 2014

    HI guys! I was off having some fun for a few days but I kept thinking about our little group and how wondering how everyone was doing.

    Tomorrow is a big DAY 1 for many! Good luck girls!!

    Just like Silverbell I read everything so here goes my responses...

    Vintagegal! Is your second dose early? I was thinking we were on the same schedule/drugs. I am so sorry about your hair! I just got mine cut short and it is "traumatized" thats what hair dresser said! We had to stop and wash it with warm water in the middle of the cut. The back of my head still feels "weird" and COLD!! I haven't had my hair short in 35 years! I love the cut! Praying that your lung clears!!

    Karen, I hope your Dad is peaceful in his new home. My Dad is in the last stages of ALZ and in a home. He LOVES all the nurses and treats them like his girl friends. Its precious.

    Hi Nitengirl! I have the numbing crème and it works great! Someone here mentioned putting a clear bandage over it (you apply 45 min prior to appointment) and I will do that next time as I just slapped it on and took off! I hope your port is less tender now. Mine was a little sore but not too bad. If you have trouble swallowing you should tell someone. Glad you are here good luck on the 18th.

    CC3373 you are cracking me up with the "one night stand" SO TRUE… funny story… I had one – one night stand and I married him!! LOL I remember the walk of shame the next am UGH. I was mentally kicking myself as I do not "do that!" … He called me that afternoon and asked me out. 22 years married last week!

    BONNIED – please stay! Love your smile and comments! Trees!! I love trees! Your job sounds fantastic. Sounds like you have plans for the next chapter in the work career! Very interesting with the culinary twist!

    Erica hang in there. There are definitely good days to counter the bad. My advice – take the anxiety meds!! Not all the time… just when you need them. Day 5 my hubby came home to me circling the kitchen mumbling to myself "I can't do this, I won't do this, no more." I was a mental mess. All he did was hug me and say "call the doctor" The on call asked me what meds I had and suggested I take the pill. Why not?! Well it was a life saver. I don't like taking the extra stuff but it is there for a reason… sometimes this is all a little too much to deal with. Since then I am good! Praying for you!!

    TallyL - you and I are on the same routine! I started on Nov 4th… so I am ramping up to round 2 just before Thanksgiving. Have you tried the anti nausea bands? They are working wonders for me. I wear them 24/7. When I forget to put them on after the shower I know it soon after!

    Bonnied brings up a great point… have you guys noted that food does not have a taste (Im at day 12 after first round) So sad. Can't wait for those cook books to come and try out making some yummies.

    KnittingPT I love your Disney hat idea for the kiddos! I purchased some great hats from a cancer survivor in etsy that are awesome but I was thinking the same thing… would love to knit something fun for myself. Your job sounds very rewarding! It will be a good distraction I am sure.

    HI KIWI!!! I love that you shaved your head! I think I will do the same after my college age daughter comes home. She has not seen me since the diagnosis and took it rather hard. SO sorry to hear about your infection! Does not sound like fun at all!! Love my sea bands too!!

    There… all caught up. I feel so blessed to have found this group. You guys are so bright and insightful. Love the love that is pouring out for each other!

    I am a full time Mom since 2002. Prior to stepping away from the work madness I was a globalization consultant. Fancy title for making sure that sw programmers built products that could be easily localized around the world. Prior to that I studied how people worked and designed applications/interfaces that made work "more easy" lol. Automation. Got to love it. I did. It was hard to leave work at first but then I fell into Mommy mode and never looked back. I have three beautiful daughters – 20, 16 and 14. I thank God my genetic testing came back all clear.

    This may sound weird – or maybe not. Life has become so simple with the big C and I have never been happier. I feel like I am living everyday… simply just living. Nothing matters but those I love and doing this so I can be with them.

    Thinking of you all! Much love and hugs to those starting on the 17th/18th.

    Wendy

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  • Tigger2
    Tigger2 Member Posts: 17
    edited November 2014

    Hey Bonnied those are really cute!! Thanks for sharing. I found some "natural" eyelashes this weekend in the health store too! The comments for this product line have some great application ideas! I have baby fine, twisted and tangeled lashes... loosing them and wearing lovely full lashes will be an interesting twist!

    http://www.amazon.com/Eye-Splashes®-Pairs-Lashes-Bundle/dp/B007WW1AOE/ref=sr_1_1?ie=UTF8&amp;qid=1416145311&amp;sr=8-1&amp;keywords=natural+eyelashes

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  • thatcameragirl
    thatcameragirl Member Posts: 16
    edited November 2014

    Hi! I haven't been on in a while as I have been busy just living life before my chemo starts on Tuesday. I'm surprisingly not that nervous. I related to Erica's story about walking into the chemo room since I did that one day to get done papers from the chemo nurse and I did cry. I felt bad crying in front of the other patients but I'm sure they understood. I feel better prepared now for Tuesday though.

    I like hearing about everyone's life, so I'll tell a bit about me. I am 38, married with 2 kids (8 and 10) and I homeschool them. I write a blog at www.perfectionmyenemy.blogspot.com. I'm also a photographer for children, families, and seniors. I've sort of put that on hold for the moment. I'm just trying to get through the days one at a time. I relate to whoever mentioned they enjoyed having cancer for it causing her to focus on the present and I totally agree! No more pettiness and dumb worries here anymore. Everything is in it's proper perspective. We moved to Florida from Ohio last year and I love that while going through this trial I am able to enjoy the beach and sunshine.

    I have friends who want to set up bringing meals to me. For those of you that have started what days would you recommend I tell them to bring them? I'll have chemo in Tuesdays so I was thinking maybe Thursday and Friday I won't feel like cooking? What about the week after chemo, will I feel like cooking that week?

    I'm going wig shipping again tomorrow. I've been to 2 stores and can't find the perfect one yet. My friends went with me and were joking that it's like wedding dress shopping...I still need to 'say yes to the wig'!! Haha!

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  • TallyLassie
    TallyLassie Member Posts: 56
    edited November 2014

    Hi all: Love your posts! Just a quick note to wish you well in your first chemo. I'm just keeping my head down and taking it one thing at a time. You will get through that first day and it will be one day closer to the end. I'm headed to Tampa's Moffitt Cancer Center for a second opinion, even though I've already started chemo, I just want other eyeballs on it. That's an overnight trip for us, and I will miss being home. My husband and I have been going there for the last five years for his MDS (bone marrow disease), so we joke that this time he's the notetaker for me. He is healthy with a ridiculously low neutrophil count, so I tell him he has to stay healthy for me this year.

    Next up is a short short haircut and wig shopping before it all goes. Still dealing with nausea, and sea bands never worked for me on the ocean, but I'm going to buy some and give it another try. I'm also going to ask the Dr. if the behind the ear patch trans scop might also work.

    Turns out I have a lot in common with some of you besides the Big C. Will save that for a future post.

    I'm thinking of you tomorrow and Tuesday and looking forward to learning more about your journey. T

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  • silverbelle11
    silverbelle11 Member Posts: 8
    edited November 2014

    So I've been off for a few days. After my first chemo on Thursday, I went for the neulasta shot on Friday. Friday night I had an allergic reaction. I have never been allergic to anything in my life, so I guess it was chemo or the shot. Red, itchy rash all over and light headed with weird breathing. The hospital gave me benadryl, pepcid, and steroid shots, so that helped a lot Friday night. Saturday was just a steady dosing of benadryl all day and evening. The rash is much better today! What a relief since I go back to work tomorrow and face my middle schoolers! So far, no other se's. Overall, I'm pretty positive about it.

    I'm sending love and prayers to all of you who start your chemo this week.

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  • BreatheInExhaleSlow
    BreatheInExhaleSlow Member Posts: 11
    edited November 2014

    Hi everybody, this is my first post. Thank you all for sharing your experiences. I feels good to be in good company. We will make it through this! I start my first chemo in 3 days. I hope I can go back to work the next day. Has anyone done that? Is it wishful thinking?

    Thank you all for your great suggestions and information.

    I'm in with you...November 2014 crew!

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