has anyone tried dichloroacetate (DCA)

rodeogirl

Its been a few weeks since my diagnosis and the shock is subsiding. I just got forwarded this info on dichloroacetate (DCA) .on human’s cells; it killed lung, breast and brain cancer cells and left the healthy cells alone.

http://www.youtube.com/watch?v=GbQM-0nzXtU

exbrnxgrl

correct me if I'm wrong, but this is not a natural substance, is it? I was no genius in chemistry, but isn't it related (analogue?) to acetic acid? I realize that alternative doesn't have to mean natural.

rodeogirl

It is an alternative, not a natural substance. There seems to be some sucess with no side effects and it is available to purchase. I will be looking at alternatives as not doing chemo and radiation.

leggo

Hi rodeogirl. I've been on DCA for 5+ years now. Been doing fairly well on it. Be careful purchasing it off the internet. A couple of times I got baking soda, not DCA...though for the most part those shady sites have been shut down. The best way to get it is for your doctor to prescribe it. If you're in Canada, I can give you the name of a pharmacy that makes it with a prescription. They don't deliver to the States, much as the US stuff doesn't make it across the border. Just be aware of the scammers. Also, a good chemist (if you know one) can easily make it up. Seems everyone has been silenced on the drug so the legit stuff can be hard to come by, including Dr. Michelakis' trials. Also, it's not without side effects so research and be careful. I know several who are on it with varying degrees of success, so if you have any questions I can answer, just pm me. 

rodeogirl

thank you leggo

I am in Australia, I will find out a bit more. all my results will be back in a week in regards to auxillery and possible mark on humerus

leggo

Hoping all your test results are favourable.

pipers_dream

I know nothing of DCA, but if you want to get something made up in the US, search for "compounding pharmacy."  Leggo, can you discuss your experiences?   

leggo

Hi Pipers dream. I've posted several times about my experiences. If you do a search with DCA, they should come up. The important points are that it saved my life, side-effects include neuropathy, it can potentially harm your kidneys, it has the potential to make some cancers worse, dosage is questionable, it had been used for years to treat mitrochondrial diseases and a Doctor/cancer researcher at the University of Alberta discovered that it kills cancer cells, leaving normal cells unharmed. Early trials showed great promise, particularly with brain cancers. His trials have been virtually shut down due to lack of funding from pharmaceutical companies so all funding has been through private donations. Every extra single penny I have goes to him. I have some neuropathy and kidney damage, but I attribute that to the several years of toxic chemo and bisphosphonates. Because it's a drug whose patent expired many years ago, no one stands to make any exorbitant financial gain so it's pretty much been shelved. Fortunately, it can be gotten through prescription and there are, I believe, two cancer clinics in Canada, where it is in use. Don't quote me on that....this was just info I got from another member who lives in Eastern Canada. If you've got nothing to lose, it's worth a shot, IMO. The difficulty lies in getting it. Also, fortunately, it's simple acetic acid, in which three hydrogen atoms have been replaced by chlorine atoms. This formula is found naturally in some types of seaweed. Because of its simple chemistry, it's easy to replicate. Simple, cheap, no patent, used for years for other mitrochondrial conditions. Perfect storm to make sure it doesn't make it into mainstream cancer therapy and to make sure scammers have a field day. There have been plenty of nay-sayers who say it doesn't work, but the thing to keep in mind is that people who are using it are in the final stages, at which point it doesn't have any better chance of working than chemo. Your organs have to be healthy enough for treatment, just as for chemotherapy. Not to mention, many desperate people who've been scammed with cornstarch and baking soda. All of this is just how I see it and my own experience so I urge anyone to do their own research before swallowing. It's certainly not a benign drug....never has been and I didn't expect it to be when it comes to cancer treatment. It's definately a risk vs. benefit scenario...or Russian roulette, but I had nothing to lose.

leggo

Yes, I know about those studies. Big pharma is hard at work to take credit away from his discovery. Only a few small human trials were completed and it will likely stay that way until a pharmaceutical company gets their greedy hands on a combination to re-patent....just like you said. Lots of people don't have that kind of time. Not to mention that it, in combination with several supplements, has been working just fine on its own for me and several others. 

joyoflifegirl

I have been on DCA since July, 2014. I was diagnosed with TNBC (full mastectomy + 5 sentinel nodes Nov 2013) with two nodes positive, ACT dose-dense + radiation. I had my Circulating Tumor Cells tested using Maintrac prior to chemo, and had a total count of 500,000. After Chemo the count was 3,250,000. I waited a month and tested again, the count had skyrocketed to 6,000,000. Apparently this is a common effect of chemo, and if this happens the risk of death is very high. Working with Dr. Kahn at Medicor in Toronto, I went on an oral regime of DCA with supplements to prevent side effects. A few weeks later I tested again and the count was 1,000,000. I was ecstatic and so relieved. I tested again a couple of moths later and the count was 250,000. I don't notice any side effects other than a bit of fatigue and some absent-mindedness. Dr. Kahn carefully monitors blood tests and any signs of neuropathy. It is expensive, but I consider it a miracle. I am going to stay on it and hope the count gets to zero. I highly recommend these blood tests for anyone, and at least trying DCA with careful monitoring to make sure it is working. Get it from a reputable provider who knows how to prescribe and prevent side effects. I can post the Maintrac results if anyone is interested.

leggo

Hi joyoflifegirl. Glad it's working for you too. I'm going to reiterate what you and I have both said in our posts. VERY important to obtain it from a reputable source (preferably a physician) and be monitored. I know several taking it who's doctors are unwilling to prescribe it but are willing to monitor them....so that's a good thing.

Anonymous

I know I asked you this before.  Can you tell me again about dosing?  I have 50 grams of DCA from Canada.  I need to know how someone like me, who is doing fairly well, just had a good scan, no liver issues, can start taking this as a supplement.  I'm speaking dosage.  It is in powder form.  Can I just take 1/4 of a teaspon mixed with water once per day to start?

leggo

I take 10mg per kg of body weight four times a week and 6mg per kg of body weight two times a week. One day off. I divide the dose and take it twice a day. I put it in gel caps (available at health food stores). I measure precisely using a pocket micro scale (purchased at head shop). Also drink 6 cups of caffeinated black tea and a B1 supplement. Some say it works better when drinking the tea and taking B1. Don't know how much truth there is to that, but I do it anyway because that's what was in the initial clinical trial protocol.

Joy, how much do you take? Do you drink black tea and take B1 as well? 

leggo

Forgot to mention, that amount has changed over the years based on how I'm feeling and what scans show. The amount I posted above is what I take currently. It has been more or less at times. If the next set of scans still show stable, I'm going to reduce it to 6mg/kg for all six days.

joyoflifegirl

I take 500mg capsules 3x per day, two weeks on and one week off. I also take B1, n-acetyl l-carnitine and R-alpha lipoic acid 3x per day. I drink green and black tea and coffee - just because I do but I have also heard it is helpful with the DCA. My Dr. also recommends taking Metformin with it but I had side effects with that so I stopped taking it.

Again, I have heard horror stories of terrible neurological side effects from taking it unsupervised, so if you are going to try it please get it from someone reputable. Dr. Kahn in Toronto can prescribe it and monitor it remotely and I know there are doctors in the States that can as well. If someone is interested I can probably ask him for other doctors that he knows. I had very bad neuropathy with chemo but none from DCA. I hope I don't because he is very strict about taking patients off the drug until it goes away. I plan to stay on it and try to get my counts down to 0, then continue to monitor. 

Just a clarification based on questions from another post - the Maintrac test numbers are total counts, not per ml. They test several ml of blood, then multiply the amount. Here is a link

http://laborpachmann.de/pdf/Publikation%20139.PDF

Leggo I am very glad it seems to be working for you!