Just diagnosed too

Lisamarie6864

Hi all. Reading all of these post has been so helpful. I was just diagnosed with DCIS grade 3 this last Tuesday and my mind has been spinning!!  I now do not feel alone reading posts from my fellow sisters. I am waiting (feels like a eternity) to meet with my surgeon.  the waiting from the time I felt the lump to diagnostic mammogram and ultrasound and finally to biopsy and dreaded phone call was excruciating to say the least. I feel different from hour to hour....I am thankful to have this resource.  Telling my family and close friends has been so hard....like I want to spare them from the grief when it's me that's going through it. I feel like I need to console them and put on a strong face.  It's exhausting.  Thanks everyone for all your honesty and insight. 

Holeinone

LisaMarie, 

Sorry that you need this website. Excuse my language but it all sucks !

It will get easier though, hopefully you like & feel very confident with your surgeon. ( mine is my favorite Dr. ) Also, being diagnosed with DCIS is much less threatening than being diagnosed with invasive. 

Lots of women get 2nd opinion, regarding the surgery options, lumpectomy vs. mastectomy. I did not, my surgeon & personal Dr. Both recommended a lumpectomy, so that is what I did. Chemo was a nightmare but I do not think generally a diagnosis of DCIS warrants chemo. Obviously every situation is different. Keep posting, we all "get it". Your friends and family are great, but impossible for them to understand the constant anxiety. 

Lisamarie6864

Thx holeinone for your comment 

Hopeful82014

Hi, Lisamarie - so sorry you're here but glad you found this place to help you through the waiting. With luck you'll be facing minimal treatment and an excellent prognosis, but waiting to KNOW is rugged. Hang in there and try to remember to take a few deep breaths from time to time. It does help!

lynnetteb75

I feel the same way lisamarie when it comes to family ecspecially my mom she worries so much about me since im the baby of the kids so I try not to say to much about it to her cause I find my self trying to cheer her up and it is exhausting...im just took a genetic test since my surgeon wont schedule surgery till he gets the results back from that and when he ever said 3weeks I thought another wait....just when I thought I was going to get going with treatment....everything is hurry up and wait  but we are all here to help u threw those exhausting days and worry filled nights and even if you just want to yell and scream we all are fighting with you....I have found the ladies here have helped me threw so much ...now when I question something or am curious if something is normal like how fatigue I always am ny husband says ask yourladies im sure they have felt that way..lol but just know we have all been there or are going threw it now..

Lisamarie6864

Thanks  for your kind words Lynnetteb and encouragement. "One day at a time" now has a whole new meaning in my life. I feel much better now that I have told most of my family and close friends. I will now allow all of their positive energy to help me through this nightmare.  

Lisamarie6864

Thanks  hopeful!!!  I was on the edge of my seat reading your posts. I am so sorry about the dreaded call but am so glad you had these ladies on here to support you.  I am still waiting to meet with my BS....hurry up and wait!   Hugs!!!   I am here for you !!

vbishop

One more word of advice to help keep pity parties at bay:

Go with what you know.  Base your thoughts on what you know, not the what if.  So...what do you know?

DCIS is non-invasive.  That's a good thing so overall prognosis should be good.

Your cancer is grade 3 - that's not so good in that it means it is more aggressive.  This really means don't delay treatment by months, but you also don't have to have surgery tomorrow (because of the DCIS part).

You will know more once you meet with your surgeon.  Treatment options and post treatment follow-up should be much better for you than most.  Best of luck!

 

Ariom

I had the same Dx almost 2 years ago and felt just as you do, before I learned all I could about my Dx.

There is some wonderful DCIS information on this site. I printed it off and gave the copies to my Daughter and my friends so they understood exactly what was going on with me and what DCIS actually is. It was the ideal thing to do, because there was no misinformation and everyone was on the same page, so to speak.

Take it a step at a time, remember to breathe! I wish you all the very best!

Moderators

Hi Lisamarie, and welcome, although we're sorry you have to be here... But you're not alone and, as you can already tell, this is a welcoming and supportive community!

If you want to follow up with Ariom's helpful advice, here is the Breastcancer.org section where you'll find reliable information on DCIS — Ductal Carcinoma In Situ (just click on the link).

Here in the discussion boards there is also a specific forum on DCIS for those just diagnosed, in treatment, or finished treatment for DCIS where you may find find interesting to read or post.

We hope this helps!

The Mods

Butterfly53

Hi Lisamarie,  I also got diagnosed this past Tuesday.  It's stage llb, triple negative, grade 3 invasive ductal carcinoma.  It was so hard telling my family and friends.  My daughter got strep throat suddenly thereafter and I felt responsible for upsetting her.  My Mom is speechless and I wish I could say something to her to make it better.  I did see my BS on Friday and she laid out a plan and that took a lot of pressure off me.  I'm sure it will be the same for you.  I went in shaking and came out much calmer.  I Iwill keep you in my thoughts and prayers.  We have to believe that everything will turn out perfect.  Sending you a big bear hug!