Recurrent Breast Cancer of the skin

JunePat

Had mastectomy left breast (8) eight years ago, spots left on skin, triple negative, diagnosed this last February, stage III.  Oncologist told me "we would watch it" for five years after the surgery and chemo.  Finally I stopped going to him and lived with the spots till my primary care physician asked if he could do a biopsy.   Came out cancer positive in all five of the spots.  Pet scan detected no cancer otherwise in my body.  Surgery, chemo and radiation was suggested by new oncology doctor.  I had 10 chemo treatments, the spots seem smaller and a bit faded.  I made decision to stop and not have surgery or radiation or chemo. I am 81 years old and no quality of life when having chemo.  Alternative treatment is my goal. 

Seems no medical person can talk about this in detail, no encouragement, and I am wanting to know more, to not feel so alone.  Can anyone relate to this or what would you do?????

Moderators

Hi JunePat, and welcome to Breastcancer.org.

We're sorry you're going through all this and feeling so alone. We hope you find support and information in this wonderful community.

You can post/read also in the Alternative Medicine forum if that is your goal. You'll find it here: https://community.breastcancer.org/forum/121

Hope this helps!

The Mods

lyla92

Hello JunePat, I just read your post and I hope that you are doing well. I am so very sorry about your recurrence. I have a "spot" that they are taking a "watch it" approach with. i know that it is frustrating and scary to live with not having an actual answer. This is a post I wrote on the radiation thread. Does it by any chance sound like what you have had? I am just trying to find ANY info to see if I should go ahead and push for a biopsy. Thanks so much for posting.

>>>I finished 6 weeks of radiation in 7/11. I have been experiencing what I have read so many of you are also experiencing: rib pain, poor range of motion, LE, etc. since finishing treatment. About 2 months ago I discovered an extremely red spot at the bottom of my treated breast. It was about the size of a silver dollar and looked like a sever sunburn. I know it came up quickly because I go to my LE therapist every 2 weeks and she had not notice anything. I was very worried about IBC so I went to my onc. and had mammo, MRI and ultrasound of area, all of which showed no signs of anything - no thickening, no masses. Dr. decided to not do a biopsy at the time due to my LE and fearing making it worse. Now, a month later, it is still there. It does not hurt, but if scratched it does feel like sunburned skin. I am just wondering if this sounds like anything anyone else has experienced.<<<

funthing42

Hi

I need hope.

I have had breast Ca 3 x. Stage 1 less than 1 cm both times. Estrogen+ progesterone- her 2-.

I was told her2 + Estrogen+ progesterone- but I'm currently on herceptin.

No nodes either time.

Chemotherapy also completed July this year.

Only 2 mos after its back, Now in the skin where breast once was.

Estrogen + progesterone- her 2 -

Is this a sure death sentence?

I was told it's 1 yr 5 yr 10 yr maybe before it reoccurs in other organs.

Then what chemo again...........? Then a few months then death. ??????

They suggest more radiation now.

Please I just visited a Doc who stole my hope and courage.

Pet Scan Negative.

I posted this on another board .

I found the lumps Sept. I panicked.

I ran to the best of the best.

So I was told to leave them and get Rads, but I had Rads the first time 2009.

Sorry post was late. I'm happy to have found you. Unbelievable journey everyone is having.

Someone gave me back my courage in the board waiting for the other shoe to drop.

Sorry for sounding like a babbling idiot. I'm trying to help.

Up until now I was Introverted. Lol.

I had a biopsy ASAP. In breast surgeons office.

funthing42

Hi,

I deleted my post. Now thinking why.

Hi I to had 7 little lumps in my skin. Right after b/l mastectomy and two months after chemo while still on Herceptin .

I also was recommended : one of my options was a watch it and see. This was by one of the top 5 Ca Centers.

The others suggest Rads again. So needless to say I'm ready to puke now.

Really haven't found two many with similar issue. Until now.

Thank you for sharing. I wish I had some wonderful suggestions.

I'm baffled. I wish the best for all.