Joining the Triple Negative Forum

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SweetMaggie
SweetMaggie Member Posts: 18

Hi Ladies - I've posted a few times over the last few months during my diagnostic phase, but thought I would like to joint this forum now since I am also triple negative.  I am in the midst of my treatment, just recovering from a single mastectomy with nipple sparing reconstruction (am being treated at Johns Hopkins, and it's a 2 hour drive each way, but I think it's worth it as we have no local breast center where I live.)  I have no children, but a wonderful supportive husband.  For some reason I'm crying like crazy as I'm typing this.  I seem to have some days where I know that most women, (even us TN) beat this disease.  But then I have a day (like today) where I feel like I will for sure be in the other category. Anyway, I should get my drain out this Friday and will probably get a little more saline in my TE.  I don't need radiation!  I'm not quite sure why I didn't have the chemo first before the surgery (I've only read about this recently), but my doc said this was the best plan for me. I trust him so I guess that's all that matters at this point.  I plan to go back to work next Wednesday (assuming my drain comes out.)  So life will hopefully get back to something other than sitting at home feeling sorry for myself.  I am an awful Dr. Google person, and am really trying to swear off of that habit. But I thought at least posting here would be helpful in sharing with others who are having the same feelings and treatments, as well as encouragement from others who are years out and enjoying life.  Oh, and Friday I also meet with the wig folks, that should be a treat :)  I'm sure I'll cry through the whole appointment. Thank God for my strong husband.  I've read probably everything there is about this disease, and TN in particular, and know I have a very good chance of beating this.  But sometimes like today, it's like, damn it, this wasn't supposed to be me.  BTW I met someone else thru this forum that lives near me and we've connected thru PM so that was most helpful! 

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2014

    Maggie, we're sorry you have to be here, but really glad you found us!! As you'll see, these boards are a tremendous source of support and knowledge -- we're all here for you!

    Lovely to hear you've found someone physically close to you -- what a great bonus to have a friend close by!

    Let us know how your wig appointment goes on Friday - we'll be thinking about you.

    --Your Mods

  • Rui4willbeat
    Rui4willbeat Member Posts: 1
    edited July 2014

    Hi

    I'm just nearing the end of my holiday,was told it was okay to go,was ok with that as few weeks ago I thought I was dealing with a small7mm cancer,hopefully still small but I now know it's triple negative,so I'm joining you ladies for support.

    I will be having a lumpectomy on 14th of July, so fingers crossed no lymph nodes involved.

    trying to stay positive but i am terrified,

  • sally9876
    sally9876 Member Posts: 27
    edited July 2014

    Maggie, I was diagnosed with TNBC in May/14.  Since then, I'm having a really rough time lifting myself from depression.  I sit at home all day, mostly crying ans worried whether I will be able to beat this disease.  I am currently in treatment ans surgery at the end of Sept/14.  I am stage 2b and grade 3.  No lymph nodes affected but who knows what they'll find once I get into surgery.

    I wish I could connect with long them TNBC survivors with lumpectomy.

    I wish you all the best Maggie! My prayers are with you.

    Sally

  • sally9876
    sally9876 Member Posts: 27
    edited July 2014

    is there anyone out there who has had Dr. Francis Wright as a surgeon at Sunnybrook Hospital in Toronto? I would love to hear about your experience with this surgeon.

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