Stage 3 c with infraclavical lymph node cancer

TJ61

Bc invasive. T2 N3a MO. . Any one with similar diagnosis?  

clariceak

I'm 3C and had cancer in my mammary lymph nodes which was inoperable.  I was treated with AC/Taxol and radiation.  My treatment ended in 2010 and so far I'm ok.  3C is a scary diagnosis and I would recommend staying away from Dr. Google.   You will have the strongest possible treatments thrown at you and there will be no quibbling about whether you should do chemo and/or radiation.  This board was my lifeline, and you'll notice there are a number of 3C women who are doing very well. 

Jasmin123

Clariceak, can I ask you why your lymph node was inoperable. I had an non-operable internal lymph node that disappeared after chemo.

clariceak

I was told that because it was too close to the bone, it was not operable.  I believe I received additional radiation to the node and it was also recommended that I participate in a clinical trial that would have included two additional doses of AC.  I had a terrible reaction to my first dose of AC so that idea was dropped.  

Jasmin123

I got a similar treatment.  I got four AC doses, twelve weeks of Taxol, and radiation to the intramamary nodes. Did they recommended you additional screening?

mary625

I remember seeing somewhere, buried within all the words in an MRI report, that I had one node light up in the intra-mammary area.  I did not see that until after I'd done all of my treatment.  No one discussed it with me.  In the MRI report after chemo, it was not noted, so maybe chemo got rid of it.  I sure hope so.  I was very uneasy when I read about it.  I don't think it was surgically removed.

clariceak

I see my onc every 6 months. I haven't had any additional screening other than lab tests and chest x-rays.  She has recommended that I stay on Femera indefinitely and I also receive a Zometa infusion every 6 months.  I had requested Zometa because there is evidence that seems to suggest that it may help prevent bone mets.  She was willing to prescribe because I had crappy bones.

I was worried about the node, but realized the whole scenario was frightening. My chemo brain doesn't allow me to remember the details, but I think one inter-mammary node is equivalent to x number of lymph nodes when staging.. I had vascular invasion, numerous nodes, but 4 years later I'm still here and grateful.

TJ61

After 4 x AC my clavicle cancer eradicated.   Celebration time.  Now 12 weeks of pax then 4 weeks radiation.  My nausea still here but hoping next 3 months easier.  At least no more operations. Good luck gorgeous girls. We WILL BE OK. 

JacquelineG

I, too, was diagnosed a 3c with a positive  intra mammary lymph node which worried me constantly! the PET scan after chemo showed it to disappear, and I had radiation on that chain of lymph nodes as well. Four days ago was my 6 year anniversary of diagnosis, and I'm doing great!!

Jackie

overjoyed4life

I was pT3 pN3a June 2010. It gets easier with time. Keep your head up.

Sarahlou50

I was T1 N2 M0 cancer had spread locally to the supraclavicular nodes.  Very scary at the time, but I am now into my 16th year. Hope is a great thing....

ann273

Thanks for coming back to post Sarahlou. You just made my day.

elliejdan

i too had intra mammary chain dx, but no radiation to that area. i was told im high risk for recurrance, that scared me more than the original dx. i get pet ct every 3 months and have one coming up in august

Anonymous

Tj61, Try asking your team to prescribe Emend to help with the nausea.  The anti nausea drugs really worked for me.  I was on the emend during infusions and also pills to take for the first day after infusion.

Anonymous

Sarah, you had how many positive nodes -?  It is absolutely awesome you are doing so well !! That makes our day !  

Shelly

Sarahlou50

Hi Shelly

I had only one positive node under the arm, but two weeks after my surgery to remove the tumour I discovered a lump in the nodes above my collar bone.  I had a biopsy days after the discovery and the following week I started chemo.  It all happened very quickly and looking back I didn't think, I just did as I was told and am glad I did just that!!

lovujja

Thanks Sarahlou50 for posting this wonderful news. It gives us  hope and strength to think and live positive. Happy summer to all my sisters.

Momine

Elliejdan, how come you did not have rads? 

DeeMay

Hi all, this is my first time actually posting anything here, so I  would like to say a big thank you to the ladies who have, without knowing, been with me through some very scary times over the last 2 years. I was diagnosed, stage 3c with 13 pos nodes.  I had 54 removed in all! So, as has been echoed here, I like to think my lymph nodes did a good job at keeping things contained. I am currently on tamoxifen, had a total hysterectomy last November, awaiting reconstruction, and living a very "normal" happy, full life.  So, thanks again for being there! x Dee 

Runner2014

Hi, this is my first post. I was diagnosed in February and have been through the path of mastectomy , 6 x chemo, 3 weeks of radio and am 3 months clear of treatments. I'm just waiting for my 3rd bone scan on Monday to check a lesion in my bone hasn't grown and therefore could be An old sports injury, still worrying.

Is been a massive jolt in my life that has left me at times exhausted, scared and wondering if I will ever feel safe again. The posts I've been reading give me hope, thankyou...when do you stop worrying about it all daily, does time really help?

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