Is there anyone out there that is ER & PE negative but HER2 +?

MarieNJ

From my biopsy that was done, it shows that I am ER & PE negative, but I am HER2 positive.  They said after the surgery it will be more conclusive of these levels.  I was also told that there is a med Hercepton.  My tumor was 5mm, 10 cm from the nipple. BS said it was early and very small.  I hope this is my saving grace.  Anyone out there doing well with this type?  Thank you for you help. BTW, getting a lumpectomy on Tuesday.

Faith316

There are lots of us who are ER-, PR- and Her2+.  And nearly all, (If not all), get Herceptin as a standard treatment.  There was a movie made a few years back about the creation of this drug that starred Harry Connick, Jr.  It is very informative plus it is also just a good movie.  The name of it is Living Proof.  It is available from Netflix.

Good luck with your lumpectomy next week.  I'm sure you will do just fine.

MarieNJ

Thank you Faith.  I know I'll do whatever it takes.  Did you have much side effects from the Herceptin?  Even though my BS said it was small and the radiologist said tiny, I am still so nervous about this whole thing.

Faith316

I didn't have any side effects when I was taking Herceptin.

amyo

I just saw this board and that is my diagnosis. I start AC in about 2 weeks and will be on Herceptin for 1 Year.

Anyone else having chemo for I year? I was stunned by that news.

MarieNJ

Someone told me about a good movie that was on Lifetime awhile ago called Living Proof.  If you have Netflix you can order it.  I don't so I ordered it from the library and it's in today.  Going to get it in a little while. It stars Harry Connig Jr as a doctor/researcher to developed the Herceptin.  I was very concerned when I saw on the pathology report ER-/PR- and HER2+, but my BS's nurse said it is not conclusive until the lumpectomy when they have a larger piece.  Amyo what is AC?  I know the Herceptin will be a year but does that mean you will be on chemo for 1 year as well?  I am also joining a support group in my area.  You may want to check out the nearest hospital in your area to find a support group.  Good luck to all of us!  Hugs!!

Faith316

AC is a chemo combination of adriamycin and cytoxin.  That is a pretty common combo.  Most likely your Herceptin will be for a year but the AC will not.  The movie, Living Proof, is really good.  Very good story about how Herceptin was developed but also just a good movie.

maevictor

Year of Herceptin is standard of care for women that are Her 2+.  There are minimal side effects but I won't say there are none as everyone is different.