Finally dating NED!

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lotusblossom
lotusblossom Member Posts: 121
edited June 2014 in Triple-Negative Breast Cancer

Hi eveyone,

I usually post on the stage IV thread but was asked to share my story here.

In June, 2009 I was told that I had metastatic cancer of unknown origin. I had so many mets that they could not find the primary ( lungs, spleen, biliary tract, bones, pericardial sac, chest wall, lymph nodes, uterus.....).

So, I was given a cocktail of Xeloda and Gemzar to see what it did to me. After a few months, it was decided that I had Triple Negative breast cancer. Since then, I have gone through the original Xeloda/Gemzar, Doxil, Taxol and Navelbine.

The Navelbine seemed to work the best of all of the regimens, reducing the mets significantly. Howver, I began to have an auto-immune reaction to the Navelbine, much similar to rheumatoid arthritis. In March, the reaction was so severe that I could not get out of bed for 3 days and lost most of my hair.

My onc decided to give me a chemo break, saying he did not want the chemo to kill me. He also said that he had never seen a reaction like mine to the Navelbine and suspected that the auto-immune reaction might be attacking the cancer.

So yesterday a PET scan was done:NED!

I am stunned. I still cannot believe it!

I went from being told 5 years ago to put my affairs in order to yesterday being told it is all gone.

It's like waking up from a nightmare. I cried more yesterday than I have cried in the past 5 years, like a dam just burst and everything came flowing out...

I am not sure how long NED will last or what the next steps are since my onc gave me the news over the phone. He was also so emotional that all he could say was, "Good news, it's gone. Have a nice weekend" as his voice choked up.

So this morning I woke up to a rainy day, but I don't care. In my heart, it's a great day!

Never give up!

Lotusblossom

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