moving so fast

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Jaxzgirl
Jaxzgirl Member Posts: 14
edited June 2014 in Just Diagnosed
moving so fast

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  • Jaxzgirl
    Jaxzgirl Member Posts: 14
    edited April 2014

    This past month has been a whirlwind of Dr appointments.

    Today was a crazy busy day. I met with my oncologist this morning. 

    I had my PET scan at 1:00 and then at 4:00 I did my in person pre registration for my port placement surgery.

    Monday I am having an echo cardiogram.

    Tuesday I am getting my port.

    Wednesday I am getting my first dose of chemo... I should also get the results of the PET scan then too.

    Thursday I have to get some kind of blood building shot.

    I'm exhausted just thinking about things.

  • MusicIsMyTherapy89
    MusicIsMyTherapy89 Member Posts: 5
    edited April 2014

    i totally can relate to you right now! it almost seems surreal...like is this really happening to me right now or is this just a dream? its so hard to just sit back and actually process emotions.

  • JWoo
    JWoo Member Posts: 1,171
    edited April 2014

    Ladies- I know it moves fast and you feel like you are in some kind of strange vortex, but try to keep yourself informed, get 2nd opinions, make sure you really talk to all of your doctors and have a general understanding of your options, and don't second guess yourself. All easier said after going through it all, but find a patient advocate if you need one through your local cancer centers, or if you have a friend that can help you navigate this crazy trip that is great as well, someone that is organized and level headed. You have a great community here, and we all try to help one another as best we can. This website and the forums have been a major lifeline for me. Also, journal your experience in some way. I have a blog,  and so do many others. If you don't want to share with the world at large, then at least get it on paper. Being able to look back at your experience is great. Blogs are great for providing others insight about your situation as well so you don't have to explain things to everyone individually in your life. My family and friends really found it helpful. 

    It is scary, but you can do it. We are here to hold your hand. 

    Take a deep breath, let it out. Keep doing that. It will be hard, but it will be okay. 

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2014

    To connect with others who are at the same stage of treatment you are, check the forums about Chemo, Surgery, Radiation or Hormonal treatment. You'll usually see a thread for each month, where you can talk with other members about the ups and downs, questions and new experiences as you work through treatment.

    Also, the big sections on each treatment type at the main Breastcancer.org site can tell you what to expect from each. For example, the Chemotherapy section.

    • The Mods

  • mjm1
    mjm1 Member Posts: 139
    edited April 2014

    Hi Jaxzgirl,

    it's a bit overwhelming how many doctors appts there are at the beginning isn't it?! No one tells you just how BUSY you'll be after a diagnosis.

    Things do seem to settle down into a bit of a routine before too long where you at least have a chance to take a breath and process things instead of constantly bouncing around between doctors and nurses and testing places.

    All the best.

    PS, if the blood boosting shot is Neulasta, a lot of women seem to report benefiting from taking Loratadine/Claratine (an over the counter antihistamine medication) to avoid side effect of bone pain. It's still being scientifically tested, but if your oncologist says it ok for you to take, may help avoid one more side effect.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited April 2014

    you probably have be told this, the anti- nausea drugs causes constipation. Prevention is important. They also cause headaches. 

    Good luck..

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