IBC ladies please,how are we all doing!

MoreShoes

It's bad. The cancer is in the left breast, it starts going to the right breast and there're two lymph nodes affected. One in the neck and one in the armpit. Monday I've an appt with the oncologist. She has already made a plan, I don't know how soon I'll start with the chemo.

Please tell me there were more people on this forum in the same situation who are still around.

Meadow

Moreshoes....Yes I had the same scary diagnosis, and I am here 2 years later disease free. I had my cancer like you, left breast, under arm, around the collar bone, down my left leg to my knee, probably more. But IBC is very responsive to chemotherapy. I could feel a difference in my cancer after one treatment. Do not despair. You have to stay strong. You can do this!

Start your chemo asap...do not let them put you off, your onc will prob start you soon anyway if she is worth her salt as my grammy used to say.

Traveltext

As Meadow says. IBC reacts well to chemo. It did for me too, and with following surgery and radiation, plus good old Tamoxifen, I've never felt better.

Go for it, start chemo asap and stay positive.

MoreShoes

Thank you so much. It does help me to know that it can be done. I've a good team of specialists I trust, surgeon, oncologist, radiologist, even nurses which are doing their best. I didn't want to have to go through it for the third time.

kathyszcze

hello ladies, new to this group, my question is my tumor markers jumped in one month from 200 to 600, is this considered a very high #? Thank you

Kathy

Meadow

Kathy, welcome!, I do not know the answer to your question, I am hoping someone else who can help will respond soon. In the meantime, have you had a chance to explore this wonderful website? I hope you find tons of info and support here.

Kicks

I'm 'still here' and still NED (No Evidence of Disease) 6+ yrs since DX.

My TX plan was different than most - I did both neoadjuvant and adjuvant Chemo while most do 2 different Chemos both neoadjuvant. In my case, my Drs (Chemo and surgeon) wanted to get the neoadjuvant to shrink and get margins and do surgery. Then anything that might have not been gotten in surgery would be hit by a second batch of Chemo before rads. Obviously worked for me though there were 19 positive nodes at surgery..

I too like Meadow knew that the A/C was working before second infusion - could feel it forming into a lump that was 'feelable' (if that's a word). Time is imperative in getting into TX - I was 17 days from DX til I started neoadjuvant, some are even quicker. (I was DX a week after I found the enlarged node that had not been enlarged the night before).

I am living and loving every day - I'm as active as I every was - even at 69 now.

MoreShoes

Meadow, thank you for your advice. I don't believe I'm saying that but I'm happy to start with the chemo tomorrow. MO wanted to start soon anyhow, and when I asked her what are we waiting for, this thing is growing and I feel I'm not doing anything, she arranged everything for tomorrow. Next week I'll go to a different hospital to discuss participating in a clinical trial. With three times cancer, TN, and lousy prognoses, I'm grabbing everything I can.

Meadow

sending you love and support

Mamiya

How are we all doing???? I am one treatment into a clinical trial. Hopeful but a bit freaked out as I had progression on chemo... How about you???? How are you? Anyone?

ibcmets

Happy many are doing well. I was stable on Femera for 5 years. On my sixth year I got a pituitary tumor & liver tumors. UCDAVIS is doing a great job with me, but I'm back on chemo forever now since I'm no longer ER+. I also have so many doctors & testing.

I'm exhausted, but hanging in there. Scans show improvement & will have another PET very soon.

Terri

LMN

Hi I am just finishing radiation. Monday at 3:30 will be my last treatment of 44. It has been twice a day for 22 days. I enjoy reading about other people experiencing this disease. Thanks for your support

Meadow

Bon I am so glad you have an option for your pain. SO GLAD!

LMN, Very Good! You go you warrior! So happy for you

Geeper

ibcmets- I am glad to know that the scans are showing improvement. 

Bon-  Great to hear that your dipping into that good stuff. Glad to know it is helping alleviate some of the pain. I hear great things about Rick Simpson oil. I am trying to do more research on it and follow the holistic medicine threads.  

LMN- Monday is just right around the corner. Glad to know that you will be done with radiation treatment, you are a trooper!  

Valstim52

So glad to hear from all of you. Geeper, Bon and all the rest. Such an inspiration. I'm just past number 3 of AC. After the hospital stay my body was thrown so far off, but seeing my way back from the SE's. I can tell a difference in the redness, and the size of the tumor myself, and was not surprised when MO said definitiely can tell a response. Always something to worry about. Response, now, but what about later. So I've decided to go one day at a time. Only way for me to hold some sanity.

Val

Meadow

ibcmets I missed your post earlier. .SO GLAD you are seeking a response. You are such a fighter and inspiration! Love to you.

VAL, I am very excited about yourresponse to the chemo! This is the best news and so encouraging. Prayers for more!

LMN

Bonnie, I so want to make it 8 years past my IBC diagnosis. That will allow me to see my daughter through high school. Right now my treatment seems as bad as the cancer itself and I want it all to be worth the disruption chemo, surgery and rads have been in my life. I suppose time will tell. For now I have tomorrow. We are going to the Biopark and the weather has been great here (hah that could change I suppose!).