Anyone recently diagnosed, Feb 2014 here

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  • Meadow
    Meadow Member Posts: 2,007
    edited August 2014

    Jules, crying happy happy tears for you and your great path report! and yay on one hideous drain down!

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  • Akevia
    Akevia Member Posts: 209
    edited August 2014

    Happy for you Jules!! :-)

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  • Jules_NY
    Jules_NY Member Posts: 276
    edited September 2014

    Hi everyone...how's it going? 

    Akevia, hugs to you for today!!

    Started rads yesterday, they are using Intensity modulated rad therapy (IMRT) with a skin bolus. The IMRT is to get at the + nodes I had under my sternum and the skin bolus is for the fact that it's IBC I'm assuming. Going to clarify with the RO. anyone else have this? Hopping it doesnt increase my skin reaction. Got my vat of eucerin and have been putting it on like my mom used to put sunblock on me....with all the white streaks not rubbed in, lol. 

    Hope all is well!

    Jules

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  • shycat
    shycat Member Posts: 76
    edited September 2014

    Hi Jules,  I also had IMRT - 28 wide area plus 9 boosts (focused on lymph nodes and incision) - but no skin bolus.  I had wondered about it, but never thought to ask my RO why I wasn't getting a bolus like some others, especially after he told me I was his most complicated case this year.  Now I really wish I had.  Maybe I'll remember to ask at my December appointment.

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  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2014

    Jules, I'm going through rads now (had 8 treatments, 17 to go) and I believe this part of my treatment is to target remaining lymph nodes and any surface cells that may remain. Since my neoadjuvant treatment (FEC-docetaxel chemo followed by mastectomy which included an axillary clearance) appeared to get rid of my cancer, I see rads as an insurance policy for treating anything remaining that was undetected.

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  • Jules_NY
    Jules_NY Member Posts: 276
    edited September 2014

    shycat, sorry my post made you question your treatment. I'm sure whatever treatment plan was made up for you was the best one!!

    Traveltext, I'm glad that I had neo adjuvant chemo and was able to see that it worked from my path report. The only +nodes they didn't remove are under my sternum, but they no longer show up on MRI. After the RO read my path report he started to go into this lengthy speech about how I should still have rads. I told him he didn't need to convince me, I am all for the added insurance of getting the last little f%$&er cancer cells'!!

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