Hair loss and scalp shows.

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I was diagnosed July 2011 and had chemo and radiation finished everything May 2012. I started taking tamoxifen at that time

and
I don't have all my hair back. I can see my scalp especially on top and
in the back. I still wear a wig and it is fustrating thinking

that
summer will be here soon and I have to keep wearing a wig. I started
using rogaine yesterday. Can anyone tell me if they had the

same problem and what they did. Thanks.

Comments

  • curveball
    curveball Member Posts: 3,040
    edited March 2014

    What kind of chemo did you have? If you were treated with taxotere, that might be what caused your hair loss. I hope it is just slow coming back.

  • pinkgirl09
    pinkgirl09 Member Posts: 19
    edited March 2014

    Hi, Yes I was treated with taxotere. I am happy I am healthy now but the hair is making me feel sad as well as

    my eyelashes haven't grown back the way they were and applying false lashes is time consuming.

  • curveball
    curveball Member Posts: 3,040
    edited March 2014

    @pinkgirl09, there are several threads on bco about permanent hair loss from taxotere. I'd include some links for you, but the search function isn't cooperating with me just now, it won't let me go from the results page to the relevant threads. If you put the words taxotere, permanent, and hair in the box you will see the threads I'm talking about. There is also an organization, called A Head of Our Time, for people who have this side effect. Unfortunately, I don't think a way to reverse persistent hair loss from taxotere has been found.

  • curveball
    curveball Member Posts: 3,040
    edited March 2014

    @pinkgirl09, there are several threads on bco about permanent hair loss from taxotere. I'd include some links for you, but the search function isn't cooperating with me just now, it won't let me go from the results page to the relevant threads. If you put the words taxotere, permanent, and hair in the box you will see the threads I'm talking about. There is also an organization, called A Head of Our Time, for people who have this side effect. Unfortunately, I don't think a way to reverse persistent hair loss from taxotere has been found.

  • curveball
    curveball Member Posts: 3,040
    edited March 2014

    @pinkgirl09, there are several threads on bco about permanent hair loss from taxotere. I'd include some links for you, but the search function isn't cooperating with me just now, it won't let me go from the results page to the relevant threads. If you put the words taxotere, permanent, and hair in the box you will see the threads I'm talking about. There is also an organization, called A Head of Our Time, for people who have this side effect. Unfortunately, I don't think a way to reverse persistent hair loss from taxotere has been found.

  • pinkgirl09
    pinkgirl09 Member Posts: 19
    edited August 2014

    Thank you I checked it out I don't know what to do anymore.

  • LizA17
    LizA17 Member Posts: 159
    edited August 2014

    I'm in the same shape you are Pink. I am 19 months post chemo..7 months post herceptin and the hair on my scalp is sparse. No eyebrows or eyelashes. My dermatologist said yesterday not to waste money on hair grow products, also said I could keep taking Biotin but probably wouldn't do much good. He says it is chemically induced alopecia and is more than likely permanent. I suspected that's what I would hear eventually but didn't soften the blow any. It is what it is. I guess I've got to just let it go. I'm thankful to be alive and cancer free but I'm not going to lie, I sure miss my hair!!

  • LizA17
    LizA17 Member Posts: 159
    edited August 2014

    I might add..I do wish they would quit assuring everyone that their hair will return because mine absolutely did not!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    I have thinning after two years on aromatase inhibitors, and did not have thick hair pre-chemo.  I don't think my loss is from Taxotere as it seemed to grow back decently and thinned later.  I have looked at this link - if things get worse this is something I would consider.

    http://www.lucindaellery-hairloss.com/


     

  • LizA17
    LizA17 Member Posts: 159
    edited August 2014

    thanks Special K. My hair did not fall out at all after chemo. It just never came back in.

  • pinkgirl09
    pinkgirl09 Member Posts: 19
    edited July 2017

    Hi I would like to do an update on my hair. Nothing has changed unfortunately. 5 years after chemotherapy. Anyone out there like me?

  • mistyeyes
    mistyeyes Member Posts: 584
    edited July 2017

    How frustrating not to have something that you can do to help your hair grow. I also had taxotere, my hair is growing - a bit slower than other peoples that have posted pictures.

    I am hoping that medical technology will find a way to get hair to start growing again.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited July 2017

    I lost my hair from 4 a/c treatments. Then had severe allergic reaction to one round of taxotere, 5 years ago. My hair never came back as before chemo. I have some. It's very thin, can see scalp. But I'm still here and NED so I don't miss it that much.

  • pinkgirl09
    pinkgirl09 Member Posts: 19
    edited July 2017

    Yes the most important thing is that we have our health but its hard to deal with the scalp showing and thining hair.



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