one rare one not so!

bonny10

I was recently diagnosed with two types of cancer in the same breast...one is Adenoid Cystic Carcinoma (ACC) and the other is DCIS.  Has anyone had this diagnosis?  If so, how was it treated?  

ziggypop

Hi bonny, I am really sorry that you have been diagnosed. I have not had this diagnosis but I do know somebody who had ACC, so I can say a couple things about it. The first thing is that ACC is not a form of breast cancer - rather it is a type of cancer that can be found in the breast (sort of like how breast cancer can be found in bones). The general treatment is surgery to extract the tumor followed by RADS. In one sense, this is probably a good thig because the general treatment for DCIS is generally either a MX (with no RADS) or a lumpectomy (followed by RADS). 

I'm not a doctor, and I'm only going by very limited info, but based on that info, it seems like you might end up with basically the same treatment plan as if you had either one or the other type of cancer going on. 

Morwenna

Just reading up on this, it appears that ACC has a fairly optimistic prognosis. Despite being triple negative it is slow-growing, and unlikely to spread to the lymphatics, so that is good news! 

http://www.medscape.com/viewarticle/732750

DCIS, of whatever type, is confined to the duct so contained, so that is also encouraging news for you! Good luck in your "journey" xxx

bonny10

Thanks so much.  From what I've been told, it is VERY rare to find the two types in the same breast and I'm not having any luck finding anyone who has ever had the same diagnosis to get an idea as to how I can expect it to be treated.  There is very little information available due to the rarity of the case.  I will know once I'm able to meet and discuss it with Oncology but was hoping to get some advance information.