The merry-go-round keeps twirling - Does this ride ever stop?

mmowl

Just when you think the road is clear.

I had what was supposed to be my 2nd 6 month screening after the last excisional biopsy (4 so far, 3 fibroadenomas and 1 ADH) and be back to annual screenings -- guess who got called back to evaluate an area of asymmetry??

And in this last 6 month window my mom has been diagnosed with breast cancer (DCIS and IDC moderate oncotype).

I'm thinking the rules just changed, have an apt Friday the 13th with my BS  :-)

I re-ran my risk factor tonight - it's jumped from 16% to 40%

I am going to talk with the BS about adding the MRI's in now, I did not take anything for the ADH due to other chronic medical issues, but not sure where my new comfort level is going to be.

Thanks for listening, just needed to say it somewhere others would understand the vent.

MelissaDallas

Sorry mmowl. I understand...I was really frustrated to have the biopsy I just had just 1 1/2 yrs after LCIS diagnosis. Don't run the numbers because calculators work better on populations than individuals. If your mom was just diagnosed ask for genetic counseling. Please note I said counseling. Not just someone ordering a BRCA test. There are other genetic syndromes and only a geneticist really has the tools to fully evaluate your risk.

mmowl

Thanks for the wise words Melissa,

I had my follow-up diagnostic mammo today, which turned into 2 ultrasounds - I kinda read the writing on the wall when the Radiologist came in and wanted to re-do the ultrasound herself.............

I have a biopsy for 2 areas on 12/19

leaf

Its so hard being on the merry-go-round. After my LCIS diagnosis, I had a mammo, ultrasound, or biopsy every 3-6 months, the last biopsy being 2 years after my LCIS diagnosis. I sure haven't had as many biopsies as you. I'm not trying to advocate this for everyone, but my breasts gradually calmed down after I started tamoxifen. None of my breast biopsies (last one in 2008) have shown anything worse than my initial LCIS. So it is possible they won't find anything worse than what you already have. We all know how stressful this is. Hang in there.

cledora

My identical twin and I both found out we had bc in 2002. We both had to do chemo and radiation. Then in 2004, within a month of each other, found bc again. Chemo and radiation treatments again. Tested for BRCA and came back negative. 2007 twin had bc for third time and it spread thru her body. She died in Oct 2007. My older sister wanted to do preventive double mastectomy due to our experience. A month before her surgery they found that she had bc. Luckily, she didn't have to do any treatments just surgery. I was then dx with bc in 2012. This is a different kind of bc then the first two times. It is a merry-go-round experience. I didn't have to do any treatments this time. Though, my reconstruction surgery with expanders have been a nightmare. Those since have had to be removed due to infections. I soon will be trying fat grafting. It is overwhelming at time the emotions. My husband and I were just talking about how hard it was on him to see me go thru being so sick from the chemo. It does affect our love ones as well. I know their support was a HUGE strength for me.