Anyone with DCIS whose siblings also were diagnosed with DCIS?

Betty14

Hello,

I'm curious to know if anyone who has been diagnosed with DCIS has any siblings with it? I know it is not hereditary.

I'm just wondering how common it is for siblings to share this type of diagnosis. I know it happens even though it is definitely non hereditary. I have three sisters and luckily non have been diagnosed with any type of bc but I have heard of many women who's sisters share a bc diagnosis even though they are not BRCA 1 or BRCA 2 positive. This question is strictly to satisfy my curiosity. I'll explain what lead me to ask it in the first place.

When I was diagnosed I was as shocked as the next person....each one of us here knows that feeling. One of the first things that my surgeon told me was "Don't worry, it isn't hereditary so you can go tell your sibling that". I was glad to relay the message to them. The thing that shocked me more was each of my sisters' reaction. My eldest sister said "No I'm not worried, I know it's not hereditary in our family." My younger sister told me she knows she wont get it because she's healthy. I just asked them all to go and get mamos regularly.

Perhaps they know something I don't.

nessie

Hello

I am one of four sisters. One sister had DCIS and then developed invasive breast cancer in the same breast four years later. I have since been diagnosed with DCIS, and had a bilateral mastectomy. And since my diagnosis, another sister has also been diagnosed with DCIS and will be having her bilateral mastectomy. So to answer your question, yes it can run in families and it doesn't hurt to have screening to be safe.

My sisters and I are waiting for gene testing.

Best of luck to you with your DCIS treatment.

Nessie

xx

MelissaDallas

There are genetic syndromes besides BRCA that make you more susceptible to breast cancer. I was checked for two of them.

As to your healthy sister, there are thin, vegetarian runners here who still got breast cancer.

flannelette

My mother had breast ca at about age 44. Radical MX, no further treatment (about 1951) lived to 81. My sis had DCIS at age 60. Then I had DCIS mixed with IDC at age 60. My reaction? why wouldn't i get it??? it was just a question of when. My sis then tested for BRCA 1 and 2. Negative. But who knows what the other inherited factors might be? Maybe soon researchers will find out.

Beesie

I don't think it's really a question of whether a sibling has been diagnosed with DCIS; it's a whether a sibling has had breast cancer. DCIS is just breast cancer that's been caught at the earliest possible stage. So if one sibling has DCIS and another sibling is diagnosed with IDC, it's quite possible that the second sibling started with DCIS but the cancer wasn't caught as early as it was for the first sibling. Approx. 85% - 90% of IDC starts as DCIS.

That said, most breast cancer is sporatic and not genetic.

Betty14

Thank you all for your quick replies. I'm not surprised by your answers and they are most helpful. I thank you all for sharing your thoughts.