Arimidex After 5 Years???

Luvmaui
Luvmaui Member Posts: 86
edited June 2014 in ILC (Invasive Lobular Carcinoma)

I have a big decision to make!  In March 2014 it will be 5 yrs since my diagnosis of LC. I had 2 tiny foci of 4mm and 2mm  with treatment consisting of lumpectomy, 6weeks of radiation, and Arimidex. 

I know that Lobular cancer is very sneaky and has a habit of showing up again after 5 years.......so has anyone continued taking Arimidex longer than 5yrs?  How long?  If you didn't continue treatment, any recurrence?

Thanks for any advice you can give me!


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  • momand2kids
    momand2kids Member Posts: 1,508
    edited November 2013


    Hi


    there has been alot of discussion about this on the hormonal therapy board. I am right behind you--go off femara in May--in my last oncology appt my onc said that the research is not there yet to make her keep me on this for longer than 5 years.... it will be interesting to see if any news comes up at the December conference in San Antonio---- take a look on the hormonal therapy thread--it is in there somewhere and there are lots of different opinions and advice-which does not make it easier.


    My plan is to go off in June, 2014. If the research changes, I will go back on, but there are some side effects to these drugs--- I like the protection, but I had chemo and radiation--so feel like I have done the standard of care.


    good luck--not an easy decision.

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  • jenni__ca
    jenni__ca Member Posts: 461
    edited November 2013

    i've been on arimidex for 8 years ... onc said some studies indicate some additional benefit .. however my tumor was huge and 99% ER+ so that definately weighs in on the decision and my bone density is holding ....

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  • MaureenA
    MaureenA Member Posts: 39
    edited December 2013


    I have been on arimidex for almost six years. When I reached the five year mark, my onc suggested I continue for another five years, for a total of ten years. My most recent dexa scan showed some bone loss. Best of luck with your decision.

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  • hlya
    hlya Member Posts: 484
    edited January 2014

    Bump up....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    This month marks 5 years on Arimidex and I believe my MO will take me off Arimidex when I see him in April.  What then?

    I was thinking of just trying keep hormone levels lower naturally but any ideas or specific quesitons to ask him?  He never really seemed to think I should stay on longer.  Appreciate all thoughts.

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