I always think about how these celebs might venture in here to see what it's all about, only to find a scathing judgement of them, or their decisions by the very community they seek to join.
If it isn't bad enough, to be digesting your own Dx, being misquoted in the media, and then discovering other women in the same situation are making judgements and assumptions about you. That would be an added sting that you would not be expecting, and certainly do not deserve.
I think it's an added pressure that no one should have to bear, especially from a community which is supposed to support and welcome you.
Can you imagine how it feels for them? It's life changing for us, and we have the luxury of anonymity.
TB...Celebrities DO have some control. Angelina Jolie penned an OP ED piece for the NY Times. I agree, though, that people get misquoted all the time. My point is simple. A medical editor/ correspondent should be doing the interviewing. Unfortunately entertainment editors and writers cannot be expected to properly interview a celebrity when it involves a health issue.
Last year, Chief Medical Officer for the American Cancer Society, Dr. Otis Brawley, spoke at the annual medical correspondence meeting and was given a standing ovation. Look for his discussion on YouTube. It seems medical correspondants are equally frustrated at how medical issues are presented in the media.
