BC w/neurofibromatosis (NF1)

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MaryR12
MaryR12 Member Posts: 13
edited July 2014 in Breast Cancer with Another Diagnosis or Comorbidity


Is there anyone out there with NF 1 and BC?


If so, lets talk

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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited July 2014

    Hi Mary - 

    I realize your post was many months ago.  I was diagnosed with NF1 / Neurofibromatosis type 1 yesterday and tomorrow I'll see a geneticist to figure out what this means for me.  I am very petite, I have some skin discolorations and what I was told are fatty tumors.  Beyond that, I'm not sure.  

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