Lymphedema Treatment Act Update

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littlesista30
littlesista30 Member Posts: 18
edited June 2014 in Advocacy


Lymphedema Treatment Act Update:




One of the most fundamental challenges the lymphedema community faces is lack of awareness, even among medical professionals. Some of you have shared your Lymphedema Stories (http://lymphedematreatmentact.org/share-your-lymphedema-story/), which we feature on our blog (http://lymphedematreatmentact.org/blog/), and far too many of them tell tales of misdiagnosis or delayed diagnosis.



Each of us must be our own advocate and take charge of spreading awareness in our community! Please think about applicable places you visit, or could visit, which would be willing to distribute these cards: doctor's offices, therapy offices, compression garment fitters, support groups, clinics, cancer facilities, etc. Estimate how many will be used at each site and consider your ability to refresh the supply from time to time, then simply place your order - https://docs.google.com/forms/d/13lUx2oGHqrWDh8_n77ZY_Po7zwnG52vC7K1jYi3FNXM/viewform.




Three years ago the Washington Post ran a story referring to lymphedema as "cancer's dirty little secret." The other non-cancer causes of lymphedema are hidden in even greater obscurity. It's time for us to bring lymphedema out of the shadows! Thank you in advance for doing your part to make the public aware of this disease.



The Lymphedema Advocacy Group

www.LymphedemaTreatmentAct.org

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