Tumor markers up

Maureen813

Thanks Marie. I'm sure you are correct with your advice. I'm having panic attacks and need to get a grip and carry on

bak94

Sending you cyber hugs! So sorry you are going through this, come here and vent, rant whatever you need to do. I hope you are pain free and that the panic attacks lessen as you start a plan of attack.

Maureen813

thanks bak 94. I didn't expect this at all. Totally asymptomatic just a slight rise in tumor markers

kdoole01

That stinks that you have bone mets for sure! MarieK has some good advice and you will get your "plan of attack" in order to settle in for the marathon. I once met a lady at chemo who told me that she had just had her 7th recurrence! I was aghast, but she then said to me "I have lived over 25 years with breast cancer. Back in those days they didn't tell you anything and you just did what you were told to do. Now I'm and old lady (as she laughed out loud) and bring my own hot chocolate to chemo and things to keep me busy while I am here...but I am still here!"

And I'll tell you something...she looked damn good! So I know that people are put into our paths to teach us a lesson. Cancer is a marathon...so you need to pace yourself. Give it the time and attention it needs, but get back you your like asap. It doesn't deserve the best part of you, so give it as little as possible!

Good luck!

jennyboog

I hate to hear this Maureen, hoping you have a plan and are NED soon.

Maureen813

thanks ladies. Looks like I don't belong in sIII anymore

Momine

Maureen, we would be happy to keep you

hopefour

Maureen813....I am so sorry to hear that you have bone mets, but please please don't lose hope! As I have said before MD Anderson says their patients live 10 years and more with bone mets...and just think of all the new drugs that will come out in the next ten years! You'll ALWAYS will be part of our stage III group!! There is lots of info on these boards and I hope you will find it informative as you gather your treatment plan and live well!! We are here for you!

Maureen813

All of you give me more hope and a better advice than any counselor I would ever pay to give me statistics and try to tell me how I feel with ever having experienced the heartache of this disease. Thank you from the bottom of my heart for bringing me through my darkest hour. I can't say this enough thank you for bringing me out of a very dark place

TectonicShift

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aaoaao

Hey Maureen, sorry to hear about the bad news. I'm also a Stage IV bone met person. I found out in May of this year. At first it felt like a death sentence, but with time things do get easier. I agree with what some others have said...many people live for many years with bone mets. There is a thread here in the Stage IV section for people with bone mets. You will get a lot of support here. I've gotten so much information and they made me realize you can live with bone mets.

Maureen813

thanks aaoaao can you send me the link

kdoole01

You are always a Stage IIIer.

You just have a little extra baggage. Seriously, your staging always remains your original staging.

RosesToeses

Maureen, so sorry to hear it wasn't nothing, that really, really stinks. Wishing you easy treatments and NED being the guest that never leaves. ((hugs))

Maureen813

thank you!! me too!!

NickyJ

Maureen,

I've been reading this thread and my heart goes out to you. As another bone metster I just want to repeat what aaoaao said - with time things WILL get easier. By all means, stay on the stage III threads. Just know that we're there for you in the stage IV threads when you need us. Once you have a tx in place, come and ask any questions you need to. We'll be glad to help out/listen whenever you need us.

Thinking of you,

Nicky

Maureen813

thanks Nicky. France wow would love to see it some day.

lovujja

I go to Mayo Clinic, MN and my doctor stopped doing tumor marker. He told in their system they found tumor marker was not helping to clt or practitioner, they are developing thier own pretty soon. I don't know what kind of Tumor marker they do for you. But mine they stopped after my 1.5 years check up. Hope nothing worrisome.

Maureen813

I'm glad they followed the tumor markers. For me they were right on the money showing progression before I was symptomatic not sure if it will help in the long run but short term they did their job effectively.

Happy thanksgiving to all and a genuine thank you for all your compassion and advice For all who believe in a higher power God Bless You