Granular Cell Tumor

lorenayaya

After my core needle biopsy my tumor was diagnosed as a granular cell tumor. Congratulation they are always benign!!! Oh you will be fine there’s nothing to worry about at least is not cancer. Well I had my lumpectomy on July 3 and saw the surgeon a week later. The tumor had infiltrated my muscle and was touching my rib. I’m sending you to the oncologist he said. You might need radiation.  They told me that my tumor would not metastasize like cancer but it infiltrated the muscle and now the bone. I feel completely alone!!!!!! My oncologist filled in the insurance papers and my diagnosis was malignancy of the breast but she keeps telling me that my tumor is benign. I’m starting radiation tomorrow with absolutely no guaranteed that it would work. If it doesn’t work taking a part of my rib is another painful option. I don’t fit in the breast cancer community because I can’t tell you what type, grade or anything. Since I had my diagnostic and mention that the tumor is really rare and benign everybody was like ohhh that’s it you are fine nothing to worry about. But on the other hand I’m getting the same treatment with a lumpectomy and now radiation so I do worry!!!! I don’t fit in and I fell completely alone!!!! I search for benign tumor blogs and I could only find brain tumors. I try to relate to breast cancer but nobody understands me. My friends or think I have cancer when I mention radiation or think is nothing. The thing is that I have a disease that is a cousin of cancer. Anybody has an experience like mine??

lorenayaya

Almost a week and nobody even said hi!!! See what i'm talking about. I can't find support anywhere

chrissyb

Hi Loren........so sorry, I've only just seen your thread.  I've never heard of a granular cell tumor but I will certainly do some research on it now it has been bought to my attention.

It seems strange that the docs are all talking benign and yet your treatment is as with BC.  I think I would be starting to jump up and down and demanding some clear, concise answers from all of them.  

I'm sorry that no one has stopped by even to say hi but I will now put your thread in my favourites so I don't miss another post.  I'm happy to give you as much support as possible.

Love n hugs.   Chrissy

lorenayaya

Thank you so much chrissyb. I reallly apreciate you unswering me.  I was talking to the social worker yesterday at my radiation clinic and told her that I don't fit in anywhere. Im just looking for friends that are undergoing radiation. And talk about how they found their lumps and how was the lumpectomy without telling me oh yours doen't count because is not regular cancer.

Moonflwr912

Loren so sorry you have to deal with this. I have a granuloma anularis on my arm and neck. I have to keep telling people its not contagious. It just keeps getting bigger. Your lesion must be something similar in that it just keeps growing. Yours is growing into the bone and that is why they have to treat it. They have no reason for mine. It translated as " ring shaped skin thingy of unknown origin." If it were inside instead of on my skin im sure theyed have to do something too. I think you should go to the rad forum because no matter the reason you are going through rads same as they are and need the support. Much love.

chrissyb

Loren, regardless of the reason for your rads you are undergoing that treatment and as such should be welcomed on to the rads thread where I know you will get a load of good information and support.



No one here on these boards has exactly the same thing even though it is classified as BC........all are individual but we do share the ups and downs of the same treatments.



My memory is so bad lately......lol.......and I should have recognised the word Granuloma as I have one in my right lung near the top but it never changes from one scan to the next but it is always mentioned in reports.



Love n hugs. Chrissy

lorenayaya

Exactly I they have no answer for my tumor. Wow is great to finally find somebody who has something unique and weird like me. Thank you so much for sharing. How are you doing lately?

lorenayaya

Chrissy thank you so much for posting. You have a granuloma tumor?? Mine is granular they told me is a little different.

Moonflwr912

Lor, I hope they figure out something. Or at least stop worrying you. LOL

Much love.

chrissyb

Loren, sorry I meant to write granular.......my mind was on what I was writing. How are your rads going? Hope they are helping slow that thing down for you.



Love n hugs. Chrissy

Lily55

This link might help you, you may need to copy and paste it



http://www.cancer.org/healthy/findcancerearly/womenshealth/non-cancerousbreastconditions/non-cancerous-breast-conditions-granular-cell-tumors