Meltdown.... waiting too long
Hi All. I am new to this forum. I was dx with breast cancer in October 2011. Completed chemo and radiation last July and Herceptin in December 2012. My follow up mammo was hard to read due to density so I scheduled a follow up with surgeon to discuss on May 9th. My surgeon wanted to do MRI. The staff kept dropping the ball in getting it scheduled so I didn't get in for the MRI until July 19. I was told by staff something required follow up with biopsy which raised my concern... they faxed the requisition to the wrong department so had to wait until August 6th to have it done. It was a long wait and then another week and no call from doc re results. I havent seen or talked to a doctor since May 9th. I finally couldnt stand it anymore and went to hospital alone on my lunch hour and got the medical records and learned that the MRI showed abnormal mass and a bunch of other stuff and the biopsy said intraductal carcinoma DCIS. My original cancer was microinvasive with micrometastasis her2 but that path report said DCIS only too. All the waiting and wondering and lack of communication with doc caused me such anxiety I didnt answer the call when she finally got around to it... so here I am... I have two path reports and no clue what any of this means. The last month I have been working lots of OT at work to try to keep my mind off things and today I nearly collapsed. I have an appointment with a new surgeon now another wait. I am completely unable to talk to anyone... leave my house.. eat... nothing.. In 2011, i found a lump, called doc next day, monday, mammo ultrasound tues, needle biopsy thursday, core biopsy couple days later and then a call from doc two days later with invite to come to office same day and discuss... it happened so fast I didnt have time to even absorb it. it was rush rush to get me to surgery, start chemo, etc. this is probably the worst i have felt since my initial dx in 2011. i feel completely alone and lost.
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