August 2013 Surgeries
Comments
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Good luck tomorrow Rosamund. Thinking of you and sending positive thoughts your way for an easy recoup!!!
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Good evening ladies. Rosamund, thinking of you and hope all went well. I made it through my first full day at home (well grandma's home, not mine). My surgeon arranged for home health to come by every day. That starts tomorrow. I had no idea. If I had, I may have chosen to stay at my house. Still having mega pain on left and draining a LOT on that side. A little scary. I have not had to call in for anything stronger than the Tylenol 3 yet but I was taking it every four hours yesterday. Have stretched it to six hours for most if today. Still can't really look at myself. I can't have a real breakdown in front of grandma. And unfortunately, i think that is what it is going to take for me to move on. That and some of this pain and swelling to go away I think. Ok I have been writing for some time now and don't remember what about. NOT a good sign! Lol. This Tylenol must be better than I think it is. Sorry ladies. Goodnight!
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Delirium
Hang in there -it gets better day by day. The first time you see yourself will be difficult. When I first looked, it hit me pretty hard. I cried for a few and then said to myself "move on it's only a breast and what's most important is that you're still here." I needed that moment to move on-just like you said! Better to do it in private. I waited until my DH and my Dsister wasn't with me so I could just go with it.
Wishing you only easy times ahead!!!!
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Well, here I am on the other side!! Phew! So glad to have the surgery behind me!! My SNB came back negative for the initial test, BS say they will do another and to call Friday for that report. She seemed well pleased with it all. Surgery was 4.5 hours long. I didn't think it would be that long but since I was out, guess it doesn't matter. Surgery was the 13th, came home the 14th, can't take bandages off until the 16th! I can't wait for that shower. BS even wrote across the bandage "Don't take off until 9/16.
". I will have a visiting nurse starting on that day so she can hopefully help me with my first shower.I feel great!! The only place that bothers me is the puff of skin/fat that is buldging over the top of the bandages at my underarms. I keep ice on them the rest is wrapped so tight I can hardly take a full deep breath. I've been taking percocet every 4-5 hours but today I think I will start to cut them in half and see how that works.
I made the mistake of taking 2 at night in the hospital in hopes I could sleep through all the beeping of the machines. IV in left arm just below elbow (the first one, lower got clogged), Oxygen monitor on right hand (that was the side w/SNB so no bp cuffs there) they had to unwrap a leg every time to take bp, oxygen in nose and each leg had a compression stocking plus this wrap that would gradually inflate and then deflate to keep the blood moving. So every part of my body was tethered to some machine!! About an hour after taking the two percocet, I started hallucinating that the IV machine was talking to me! Freaky! And I really couldn't move at all to look at it. I thought I had buzzed a nurse and they said they would come but no one did. All the machines sort of became threatening but that IV machine kept saying words, like "edward o" and something else I can't remember now. So I buzzed the nurse again, and again no one came. I was freaking to say the least. I'd doze off and wake up in this weird fog. Finally around 3 the nurse came in for vitals and I told her. She said no one had buzzed them so that was part of the hallucination. Finally ended up taking some Benadryl and got maybe 2-3 hours sleep in a row. So now for sure I will only take one at a time!!
Boy was I glad to sleep in my own bed last night!! Not a back sleeper either, but I will figure out some way to deal for now.
I have 4 drains and two are hardly getting anything in them at all, under 10 ml. One gets a lot last night about 60 and the 4th about half that. I'm hoping that is a good sign & I can get them out when I see BS again on the 22nd.
My DD had to leave today so I am on my own until DS comes on the 26th. Well the cat will keep me company!!
And I'llhave the nurse starting tomorrow.All in all I feel pretty good! Tired but not too bad!
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Hi, All! My uni MX was delayed several hours as the patient before me had an unexpected finding-her SNB tested positive, and they had to do an ancillary dissection. My heart went out to this woman and her family, so I was not bothered at all to wait. I meditated and took a little nap! I did get moved all around the 3 hospitals in the course of the afternoon and evening due to this delay, but it was all good in the end.
I woke up and asked the PS resident, "What happened?" and he said, "you got everything you wanted-the cancer out, an implant, and your nipple, too!"
It was a long night of a million and one interns, residents, nurses, and med students unhooking and hooking my surgical corset (felt oddly like a 19th century hooker ;-), and I was able to be discharged by noon.
My breast looks like my breast, but like it was flattened and beaten up, but I can see the potential. I have a radial incision on the outer side where the tumor(s) was taken...path report will reveal just how large the IDC mixed in with the DCIS might be. I will definitely need a little revision and a lift on the other side in a few months, but I recognize my skin and my nipple and with the right bras, I will be just fine.
Meanwhile...although I've been doing fine with just Advil, the drain tubes in my chest and side are killing me. I'm gonna take some Tylenol 3 before bed.
Heal well, sisters! -
Rosamond - Sorry for the delay but glad everything went as you wanted.
GrammaB - adventures that never end. Be careful with the meds. Yeah for clear SNB.
Delerium - hopefully you are feeling much better by now.
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Hi ladies. These pain meds keep me up at night. I feel like I'm the only person in the world at night sometimes. It's lonely. Anyhow, so glad to hear you ladies are doing ok rosamond and gamma. Gamma you are cracking me up talking to your machines. Good to hear you are home. Don't worry too much about being on your own. I have found thy I have gotten stronger every day and never thought I'd feel this well so quickly. Still a long way to go but very different than I imagined. I know you'll be fine in kitty company. Btw I recently questioned what drugs were given to me for a CT because after I got home, all of the trees seemed more vibrant than usual and I felt somewhat threatened by them. Lol. The funny part is, I pondered whether it not I could really be crazy if I knew what I was saying sounded crazy. You know, like i Know this sounds bonkers but i dont like the way tht tree is looking at me. Hahaha. All of this certainly is a new reality. Keep an eye on those trees ladies!
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August sisters,
Well, I was going to write a post yesterday about how things one week after surgery are MUCH better. I went on a bike ride. Saw a social worker therapist who I think will be helpful. I have a lot less pain and am much stronger overall.
However, I am now experiencing much more numbness than before in chest and under arm. Very strange. So I will call the surgery nurse and see if she has anything to say! Anyone else experience this?
Meanwhile found out I will start chemo (16 weeks) in about 3 weeks, then a break (TEs then?? I'm not sure) and then radiation. Kind of a long haul!
Weird to think we will all disband and move on to different boards--September chemo for me. Worried about a reaction to the port since I reacted to the biopsy clips and ports are bigger.
GrammaB, Rosamond, Delirium, and my other sisters--keep on posting so we know how you're doing.
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Had the first visit by the home health care nurse today. After mounds of paper work, typical of any first visit. She watched me empty my drains, said I was doing it just right. Kinda hard to mess that up....short of making a mess which I did once due to a blood clot...
Then she unwrapped the ace bandage and took off the gauze and I got the first look at my new self. Pretty bruised, but not too bad. I'll be OK with the small scars I'll end up having. Not so sure about the Buddha belly though. With no boobs the belly is all that is sticking out there.... better start practicing sucking it in!!
The shower was heavenly!! All the old "hospital ick" is gone and I feel human again! The nurse wrapped me up again and it felt so good to be clean!! There is no way I could have done the re-wrap on my own, so glad I pushed for hh care. The nurse said it was good that I did too.
This is day 3 post surgery. I am exhausted from the shower, but feel even better today than yesterday. I see BS on the 22nd, I hope then she will say no more ace bandage and that I can lose a couple of drains.
Delirium, trees eh? I don't feel so bad then. At least I got to leave the creepy machines behind at the hospital!
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Hello All,
GrammaB - that shower sounds heavenly! Looking forward to my first one tomorrow-day 3.
Unplugged - perhaps numbness is due to swelling/inflammation from overdoing it? Pressure from bike ride?
My biggest difficulty right now are the drains. The exit site is on my back and it hurts to lean. Very happy with my implant and amused that my nipple reacts to temp changes although I can't feel it doing so. A little nervous about my path report as not sure it will show need for chemo or not. I have prepared myself for chemo, and then the surgeon said that if my tumors are tiny enough, I may just need Tamoxifen and Herceptin. Trying to take one day at a time. Glad to have had my SNB first, though, so at least the question of nodal involvement was ruled out.
Managing to just need Advil at this point.
My thoughts are with all of you for continued good healing! -
Did my final pre-op stuff today. One week to finish shopping and house cleaning before my surgery on the 26th.
Reading closely all your posts for anything that can help me. Glad everyone seems to be healing well.
Keep taking care of yourselves and get plenty of rest.
For those needing chemo, my prayers will be with you. Glad I did that first.
blessings to all
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JB, I will think of you on the 26th! Excuse repitition but here are some things I gleaned from SIL and from the boards: wedge pillow amazingly helpful (I can post the link if you want); start Colase the night before; get thank you cards ahead of time (here's hoping you have many people to thank!); extra pillows of varying sizes if you have sentinel / auxilliary nodes out; order camisole with drains (I can mail you mind if you'd like; it's clean and ready to go!). Lastly I got a side table that swings over the bed--not strictly necessary but very nice.
Best of luck in your preparations and beyond.
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Surgery time has finally arrived. It will be August 19. I am trying to hold it together and not collapse into a world of fear. Reading how well some of you are doing so quickly post surgery has really encouraged me. Wondering if I should take a Xanax to get me through today and tomorrow?
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I think Xanax is great--just takes the edge off. Not good if you have addictive tendencies, I believe. Sitting meditation 2 x/ day, 10-15 minutes a shot. Let me know if you want specifics on how to meditate.
Sending you support and strength, Honeybair. Physiologically the actual surgery & recovery hasn't been that bad. It's the bigger picture that's I can't deny is difficult, for me at least.
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Day 6 underway. It was such a pretty morning today. I sat on the patio for hours. A 70 degree August day in Texas is something not to miss enjoying. I think I overdid it a bit yesterday. I had a one hour each way ride to and from the doctor then decided since I had real clothes, fiber fill boobs and a wig on already that I should drop in and visit my team at the office for a while. I didn't really exert myself much but I think just moving around so much irritated my arms too much. When I got home I discovered one of my drains was leaking from the exit part which was scary. It stopped but I am going to have the nurse look at it when he comes by tonight. My entire chest and left arm are numb and it is a very uncomfortable weird feeling to touch it. My only pain so far has been under my left arm. It burns as if my bra is digging in it but when I look, it isn't. So it must be something internal. I have not taken any pain meds today and have not has an increase in pain so far. So that is nice. Not nice is that my Coumadin levels were not high enough at the dr yesterday so I have to keep giving myself these injections every day for at least another week. Ugh! I find that worse than the chemo infusions! Gamma you are right about the Buddha belly. I thought I was so swollen after surgery which I was a little but then realized that it is mostly the fact that I have no boobs to hide my fat belly under. So when I look down its just THERE. It is not helping me escape the uncle fester look that I took on during chemo.
Good luck to everyone with surgeries next week. Honeybair, try not to over think it too much. I was so very fearful and anxious before and like unplugged said, so relieved to find that it has not been nearly as bad as I expected. I am still having a hard time emotionally with having no breasts but I am ok when I don't dwell on it and just keep looking forward to what is next. I just have to get through rads and then can prepare for recon. Every step I have been fearful of along the way has turned out to not be that bad. Chemo was pretty easy on me. Surgery, check. Just have to keep going. I still have to get my pathology back and figure out what my scary CT report really means. (Worried about mets becuse spot on my lung shrank during chemo, but everyone keeps brushing it off). So try not to worry too much because I have found that nine if the obsessive worrying I have done has made anything any better it easier. Just getting through each step has. And all the wonderful ladies on this forum and everyone sharing information has been the best and most meaningful help I could hope for. So grateful for that. :-) -
Jbdayton-make sure you have plenty of zip and button up tops-also, baby wipes make for soothing and efficient sponge baths post-op
Delirium Pie-sounds like you are getting better every day! You are SO right about taking it one step at a time.
Honeybair-no shame in taking the Xanax during this time of high anxiety. I took Ativan to sleep at night as surgery approached but have no need for it right now despite the wait for the surgical path report. I find that recovery from surgery is enough of a mind-occupier. Also, a cardiologist friend gave me a tip pre-surgery. He told me to go into it as stress-free as possible as his experience has been that stressed out patients often end up with complications. To do this, I focused on the important part-getting the cancer removed from my body and releasing some things I wanted to change in my life along with it. Like unplugged, I used meditation as well and counted by breaths. Although my surgery was delayed due to complications with a previous patient, the meditation and positive attitude got me through the 3 hour delay. It really was all completely bearable, and it still is that way.
Took my first shower today and feel like a new woman! I am getting used to my lopsided Picasso breasts (can't tell in a bra) and happy to just need Advil for the pain.
A tip about stool softener-if you get off the narcotic meds quickly, stop taking it. I eat a high fiber diet, and it ended up giving me stomach cramps and diarrhea! Off it now!
Good thoughts for all. -
jbdayton and honeybair, I'll be thinking of you on your surgery days. honeybair, I know how stressful that last weekend is. Absolutely take some Xanax to take the edge off. I did and it does help. No shame it that.
Day 4 post surgery for me today. I didn't sleep well last night so feeling extra tired today. Hardly any output from my drains. I'm hoping that means a couple of them will come out on the 22nd.
My friend, a nurse, is going to come over tomorrow and help me with another shower. The weather is hot here and I am so uncomfortable in the ace bandage.
Actually, what hurts the most is the puff of fat/skin that buldges out of the ace bandage under my arms. It is really bruised and tender. There is just no way to get that under the ace. But overall, I am not as sore as I was yesterday and am beginning to gradually cut down on the percoset.
Yay, Rosamund! Doesn't if feel good to be clean again!!
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grammaB - I also didn't sleep that well and today is Day 4 for me. Maybe a pattern?! Reality of needing to pace myself through recovery is beginning to sink in. I haven't read or watched any movies but going to start doing that to pass the time away.
I am staying in a condo in Chicago that my parents and sister own that no one lives in full time. It's nearer to my hospital than my suburban home, and keeps me from my own housework, etc. I have different relatives staying with me and have had several visitors. Now, I am craving a chance for things to settle down next week, and when my drains come out, head home.
Thinking of all of you as you approach or recover. -
Unplugged, Delirium and Rosamund, thank you so much for your words of encouragement. I really thank you from the bottom of my heart. I have found that I have not needed the Xanax after all. I have been comforted by not only my own prayers but also those of my friends and relatives. I feel that many are with me in my journey. I made up my mind to be as happy and as peaceful as I could this week-end and so I have been. I trust that I will sleep well tonight. Since I recently had port surgery, the anxiety is not so great because I had a positive experience with that.
Unplugged, I would love to learn your meditation techniques.
Sending love and hugs to all.
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Ok, I'm quite late in posting. Hopefully, I've been missed. But I had a fantastic week in Lake Tahoe with my brother and his 4 children and 8 grandchildren and then had an adventurous week driving from Denver back home to Savannah. My surgery is on August 26th. I'm having a BMX because not only do I have 2 cancerous lesions in my left breast as well as LCIS in that breast, my genetic testing came back the day b4 we left and I tested positive for BRACA 1. So....I'd be a fool not to what with the high risks. I feel that I am doing well and I have a week chock full of yoga, hypnotherapy, therapy, starting juicing, and of course trying to remember daily prayer and meditation. Am waiting to hear whether relative or friend may be coming in to give me support after surgery, but even if not, I have my angel of a fiancée (June will be 10 years that were together and I do have friends and a supportive community.looking forward to continuing to hear from those of you who've gone b4 me and those going after me. Thank you all for sharing! Blessings to all!
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Honeybair and Jtroseav, blessings to you both as you approach your surgeries!
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Hi all, glad everyone is doing well that are done, and good luck to everyone upcoming.
I had 2x lumpectomy w/oncoplasty on right and left side reduction last Tuesday. Had 1 DCIS removed no problem- they found 2.2 cm combined ductal/lobular invasive on the right in the area they had thought benign, and found a 1 cm invasive in the tissue removed from the left. Not what I was hoping for!! Still in shock- but go this Friday afternoon for dmx, snb, and TE.
Im really scared/ nervous about the pain after, really with the expanders in. I understand this time Ill be in hospital a few days, which is ok, but just really scared after reading stuff about the TE...
anyone just had that same kind of surgery, and how are you doing? BS says by the time I go home Ill feel fairly ok, but thats hard to imagine! Of course results of all the testing will then tell rest of treatment, but hopefully Ill be able to get the TE out within 6 months. (gee that sound long)
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Nipple & skin sparing BMX with immeidate reconstruction (silicone implants) scheduled for next monday, August 26th .... yep, I'm freaking out!!!
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I'm tentativly scheduled for bilateral mastectomy August 27th with immediate reconstruction if all goes well and foregoing the nipple sparing by my choice. The closer it gets, I find myself going up and down in emotions . Some days I feel really good that I'll get this evil out of me and be done with it. Other times I find myself constantly second guessing my choice of surgery. My cancer is only on the right but I'm choosing the bilateral mastectomy as I never, ever want to worry about getting this again so I'm doing whatever possible to lessen the chance.
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Jenn - I am in the same exact boat. Emotions and Diagnosis (right side only). However, second guessing has never been part of it, I pretty much knew early on that my sanity was more important than anything. It has certainly been the rollercoaster ride from hell and the closer it gets the more/quicker my emotions changes. Most of the time, I just feel so out of control of just about every aspect ... I think that is the most frustrating part.
Can I ask how your meeting with your PS turned out? Did you (s)he go into a great deal of deal about what to expect day of, weeks following and years later? Mine didn't seem to elaborate on much but I am planning another discussion before going under the knife.
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D Marie- I couldn't agree with you more about your sanity. I'm having my PMX on my right side 8/29th with TE's on both sides. Had a UMX last year (8/24/12) and I knew that as soon as I could, I would do the other side-I don't ever want to experience the shock of my diagnosis again! Starting to get very anxious but, for me, this is the route I need to take. to move forward.
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Jenn and Dmarie: I had my BMX on 8/8 even though I only had IDC in the left breast. I chose my sanity too. I'm laying in bed typing on a kindle which drives me crazy so I'm keeping this brief, will write more tomorrow when I can use my laptop. I had immediate recon with TE's as well. I found the pain to be brutal at first and gladly took oxycodone as prescribed. But now I'm off them completely (take colace while on them!!!) I was up and around quickly but overdid it and developed swelling, more so on the left (also had 2 nodes removed....both neg..yay!) Now I have also developed "cording" in my left armpit....very limiting to my range of motion and painful. Meeting w/ my BS tomorrow, will share what she says re: cording and how to prevent/treat. My PS actually does say things are looking good as far as healing goes. 3 of my 4 drains are out already, 4th to be removed Thursday. My best advice is to REST AND DO NOTHING for as long as possible in the days/weeks following surgery. And don't 2nd guess your choice. Go with your gut as I did. There's no right answer, but I know i wanted to go through this once only. Hang in there and stay strong! Ask me anything you want too.....
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Just posted this on its own thread...a shower tip:
Necessity is the mother of invention. If your drains have a loop, take a very long piece of plastic wrap and twist it. String your drains on this twisted belt and then tie the plastic wrap belt around your waist.
Voila - a cheap, effective, and easy drain belt for your showers! -
Jenn and dmarie- I had BMX March of 2012. Out of this whole sucky experience that has been the one decision I haven't second guessed, ever! Like u I didn't want to deal with all this again so I took care of it right away. I have a 3 1/2yo and a 2yo and didn't want to put them through all this crap. I'm sure they are little enough to not remember mommy going through many surgeries, not being able to pick them up, having drains hanging out of her, being bald and sick all the time. We find out how strong we really are when we're diagnosed the first time, there's no reason to try and prove it again. I'm on my second attempt at recon. I had immediate TE placement when I had my MX but due to,radiation damage I had to have them both removed this past January. That was the most pain I've had through all my surgeries and the instant I woke up after they were gone the pain was gone too. What was left was the hardest emotionally. I had lost my girls completely and I felt like I had lost myself too. I know in my heart that boobs don't make a woman but I sure as hell didn't like missing what had been a part of me and who I was. It's a long arduous path we walk along, but together we can do it. With family and friends, we can do it. The physical pain may or may not be something u can deal with but it's there for a reason. If u feel like u are having pain that u shouldn't be, speak up! U have to tell ur docs what u need and don't let them brush u under the rug. And if u are on pain meds keep up on them, it makes things a lot easier. Good luck to both of u. Feel free to PM me if u have questions or just want to vent:)
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Jtrosesav - We share the same surgery date
Sorry to hear of your positive BRCA 
Rosamond - Thanks for the helpful suggestion ... keep em coming.
mmadrigal05 & CarrieFitz41 - Thanks for sharing, I will keep it all in mind.
Appreciate all you guys
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