TC Starting July 2013

Nocompromises2013

Hi piedmont girl, welcome to our feisty , July firecrackers.- not that any of us would be here by choice



Sounds you and I are on the same regime and same dates. I started July 11th and have my third TC on August 22nd Hope you continue to breeze thru #3 and #4. We are nearly finished )))).

Will you be on tamoxifen or one of the AIs ??

Christen0923

Had my 3rd round on Monday - this round doesn't seem to be too bad!

Usually by Thursday my bones are aching but not today!

A little tired, constipated ... But nothing severe.

I still have some fuzz on my head and haven't lost my eyebrows or eyelashes. That surprised me.

Can't complain ! Ready to get my last round out of the way and start on radiation.

Nocompromises2013

Well done christen

I had rnd 3 today. Early days but feeling good

Last one booked for fri 13th sept - an ironic date.

I shaved my head on day 18. But it is growing back sparsely on the top and no more has come out
Eyebrows and lashes intact and nails all good too - black nail varnish ???
All other SE in rnd 2 minimal except of cellulitis flare up

Christen0923

I spoke too soon. I have felt the crappiest with this round so far. Didn't feel well for about a week.

What is supposed to happen to your nails? I don't think I read that one. I'm wondering if everyone on this topic board kept their lashes and brows.

I'm sorry to hear about the cellulitis . I hope it goes away soon.

My last round is the 9th. Can't wait! It's not so much being sick but the emotional toll that has been the worst part. I'm 30 and newly married - so I think this was pretty hard for my husband. ( not saying it was a cake walk for me )

I definitely have a different outlook on life and people, that's for sure

CenterField

Dear Anyone -

I am a 55 year old male diagnosed in June, 2013 with aggressive b cell lymphoma, stage 4. I joined this community because its the only one where I found intelligent discussions about bone pain caused by Nulasta. I have had five chemotherapy treatments thus far (CHOP-R), and my next treatment is on 10/11/13. After each treatment, I get a Nulasta shot, which causes severe bone pain in my hip, legs, knees and ankles. The pain prevents sleep, even with a prescribed sleep agentn. My oncologist, whom I now consider to be a sadist, only prescribes oxycodone, 5 mg. twenty tablets for the bone pain, which is clearly not enough because it runs out in a few days, while the bone pain persists for weeks, right up to my next chemo treatment. My question, therefore, is how long does the bone pain caused by Nulasta persist? I have read articles that suggest Nulasta bone pain can last up to a year AFTER chemo is stopped. I am at the point where I have to go to the ER to get more pain medicine. The ER docs are recommending I see a pain managment specialist, which I am reluctant to do because my next chemo will be my last. So, have you any idea how long Nulasta bone pain persists?

Pattysmiles

I am sorry to say I can only speak for my own chemo treatment.

Mine was CT.

I did do the Neulasta. On the mornings of the Neulasta I would take 1 Claritan 24 hour tablet, and then take one each day for the following 9 days. I experienced a very minor pain of what I called a shark ripping me in half on only 2 days..I had only 4 rounds of chemo. The taking of Claritan to ward off the bone pain is currently being studied. My oncologist had never heard of it, but she said to try it if I wanted. Of course I did.

When I would go for my next Neulasta the nurse would always ask if I had bone pain and I would tell her no. She said I was their ONLY patient that did not complain of bone pain. .....meanwhile the oncologist had said so few people ever got bone pain doing Neulasta! So I was their only patient taking Claritan and not having bone pain....makes me think the Claritan did something!.

Additionally, the nurse had said IF I had bone pain they reduce the amount of the Neulasta shot the next go around...reducing it by half!

With all of that said you are on an entirely different chemo...maybe your particular drugs cause bone pain and the Neulasta doesn't have too much to do with it.

I hope you can find a solution to your problem. If it means anything I am glad you only have one more round to go. Look into that pain management specialist, couldn't hurt. And if you still aren't happy maybe consider changing your oncologist or getting a second opinion.

Pat