Very Scared

Als920

Hi Everyone,

I have posted a few times on other boards and now I find myself here. My wife was diagnosed with HER2+ breast cancer 2 years ago and had a lumpectomy, chemo and radiation. 10 days ago she told me that she was concerned about a pinkish color as well as warmth of her previously treated breast.

She met with her radiation oncologist who said that she has treated IBC and this did not look that way to her. She went on antibiotics for 10 day and the heat is gone but there is still some pain as well as flaking of her nipple and inching.

We were both diagnosed with cancer within 6 months of each other, her while she was 36 weeks pregnant.

We got her annual MRI that was due in 2 weeks moved up to tomorrow and are now so scared and stressed that we cannot function. We've both been through this before but with positive prognosis, IBC would be so different. Both of our worst fears right now is having to break it to our 6 year old that we are going to have to go through this again. He has finally had one year that was normal and his sister doesn't even remember the treament as she was a newborn and now 2 yo.

I am just venting at this point and hope to god I am not here tomorrow posting a new cancer diagnosis. If it is then I cannot help but wonder what we did to earn this? My cancer, testicular, is rare and I was considered to old for it. Hers was a rarity as she was pregnant at the time. To get this lottery ticket makes us feel like something in the universe just does not want us around.

Thank you,

Alan

MelissaDallas

I would just try to hold on to the fact that the doc does not think it looks like IBC.



Hugs to you both. I understand. I was very, very ill from a huge ovarian cancer and pulmonary embolism as a result. Had surgery that March. Was just starting to feel good again when my November mammogram came back iffy & had to go through both stereotactic & excisional biopsies. Sure didn't seem fair. I just wanted to scream, haven't I had enough this year?

lrr4993

I had an IBC panic attack when I developed these weird reddish splotches on my treated breast.  I also had heat and pain.  My doctors did not know what it was but were sure it was not IBC.  I self-diagnosed it as truncal lymphedema.  It is a form a lymphedema that is lesser known but is becoming more common with the increase in the lumpectomy/radiation combo.  With salt control and losing a few pounds, it completely went away.  Just something to consider and look into.

Als920

Waiting on pins and needles for MRI results/