Taxol bone and joint pain: Lonely.

NantucketYogini

Hi,

I'm new here and not sure where to start. I feel lonely tonight, sitting with too many side-effects from a chemo drug which supposedly has few. The joint and bone pain I feel a few days after each treatment makes me feel isolated and hyper-sensitive, and I find little solace complaining about it.

I just want some empathy.

😞

Skigirl72

I am having the same bone and joint pain. I asked my MO what to do and she told me to take Claritin and Benadryl for three days following treatment.

Claritin once daily and benadryl (25mg) twice a day. for 3 days.

I am starting tomorrow. I have treatments on Mondays.

I hope this helps your pain and I am sorry that you are having pain. I know exactly how you are feeling. I hope you can find some comfort soon.

NantucketYogini

Thanks Skigirl, that does help. I have treatments on Wednesdays, so I'll give this a go on Thursday. Thank you!

gailani

HI , I just had my first taxol treatment on Wed. I'm a little nervous about the joint pain that I hear is common. I had really bad pain during my AC portion due to the weekly neupogen shots. I'm so glad that part is over as I feel so much better...I was told that the effects of Taxol starts comming on after the third or forth treatment is this true? What can I do to help prevent the bone pain? Any other side effects I should know about? ALso anyone also getting Herceptin with their Taxol? Thank you!!

BethesdaMom

My very first post. Please forgive me if I'm doing something wrong in the format. Finished a/c, halfway through taxol. Mastectomy to follow. 49 years old.
Skigirl72 - Thanks for the Claritin/Benadryl suggestion. I too will try it.
Gailani- my doc stopped the neulasta shots when I finished a/c and started taxol because he didn't think I could handle the bone pain from both. He monitors my blood closely and I haven't needed the blood booster so far.

NantucketYogini - you are not alone and even if I all I can give you is empathy, sympathy and positive thoughts, you've got it. I too am tired of complaining, particularly to those want to help but who can't possibly understand. I do understand and hope that in the past month since you posted, you have gotten some relief. If you discover anything else that helps, please let us know. Take care.

TasiaB

I'm in the same boat just had my first doxytaxol on Friday and my feet all the way to my knees are like a tooth ache and can't sleep anything else that may help??

gailani

TasiaB- I have a hard time sleeping the day of and the next three days oafter treatment. I tried ambien but that did nothing and left me really tired the next day. I then went back and tried the Lorazapam that was given to me during AC. That was so much better. I take one before bed and that helps. I just finished my 4th treatment and this one is much harder than the previous ones. I guess it's slowly affecting me. Joint pain, Major tiredness...Nose bleeds..I know I should exercise but I'm just so tired!! I was taking advil but stopped because I'm afraid it may contribute to my nose bleeds..I just rested and am slowly feeling better. Take care everyone!

Motherofall6

I have had 5 taxol , joint pain, bloody nose and tired

Denise-G

Motherofall6 - a few suggestions on Taxol that worked for me and my sister. We took regular Claritin during taxol and really helped the bone pain. I would literally cry from the pain and Claritin helped a lot.

I had bloody noses, too, which I had never had before Taxol. I used saline spray for babies several times a day . It helped a whole lot. Really slowed them down.

Sending my best to you! I'm 6 years out from chemo and it was all worth it!

anotherNYCGirl

I was advised to eat foods high in magnesium (mangoes, for example) and maybe that helped. My onc prescribed pain meds, but I was able to avoid taking them.

Rest when you need to, and be good to yourself!

Spring weather is here. A warm sunny day is always nice! (Well, after the predicted snow this week! Hang in there, you will get through this!

Hugs from NYC