Herbal alternative to Tamoxifen??? Long ILC survivor
Hi everyone!
I am researching like crazy to try and keep ILC mets away after my surgery this past January. My team is really pushing Tamoxifen, but it scares the crapola outta me...LOl In my research, I have run across some testimonials about Dr. george Wong in NYC who has a 99% rate of keeping mets away from his breast cancer patients...One of them is Ann Fonfa of the Annie Appleseed Project. She has been cancer free (ILC) for about 20 years or so...She used Wong's herbs as well as many other modalities.
I have read recently, that Dr. Wong now has an herbal alternative to Tamoxifen called TAMWO....I am not sure if Fonfa has used that particular herbal or not. has anyone heard of this TAMWO?
I am looking to get in to see Wong within the next month or so. He states he has better success, obviously, before mets take place so I want to run in as fast as I can.
I also found Fonfa's protocol on her site and am listing it below...I find it interesting that she has had success with NAC and Melatonin, both of which have conflicting studies....so hard to figure evrything out...sigh
Here is her protocol..
"I began using nutritional intervention and supplements in 1995. I take the basic antioxidants: Vitamin C, E, A, Selenium. I also take garlic tablets, green tea capsules, melatonin(in the evening), N-Acetyl Cysteine,Vitamin D, niacin, flavinoids, and Co Q10. I also take various other antioxidants like alpha lipoic acid and grape seed extract.
These choice are based on my readings. I do not believe in taking just one vitamin. Most studies in Western medicine try and reduce to a single element and look at how that element works with cancer. I do not believe that it is a useful method. I am convinced that it is much more appropriate to take a panel of vitamins and supplements.
I also juice daily. This is a part of most holistic protocols. I use the Gerson method, i.e. carrot and green apple juice mostly. I add potassium to the juice. Lately I have begun putting some greens into it also. I added ginger some time ago. It tastes great and it is very healthy and full of vitamins and nutrients.
I have been using a Champion juicer since 1996. I own 4 different types. Anyone who has used a juicer knows that cleaning it is the hardest part. I find the Champion easiest to clean. I just place a plastic bag over the spout and tie it with a rubber band. There are other manufacuters who have made a similar style juicer.
I also use detoxification methods. There are several that seem useful. One of the most important is coffee enemas. I learned about this from the Gerson program as well. Since Max Gerson, MD figured out his protocol by working with cancer patients in the early 1900's, he has one of the few well researche alternative methods. He found ways to keep the most patients alive for the longest time.
The coffee is prepared by placing 3 tablespoons into a quart of distilled or bottled water. Then bring the mix to a boil for 3-5 minutes or until all bubbles have dissipated. Then cover and simmer for 20 minutes. Filter and let cool to room temperature. I use organic coffee and a gold filter, the coffee is ground for drip.
It is administered using an enema bucket or bag, and retained for about 12-15 minutes. You can learn to do this as I did. Lay on your right side and when the coffee is in, roll onto your forearms and knees. You can massage your abdomen clockwise gently to help retain. It takes some practice. At the end of the time, release at the toilet.
I do not drink coffee and was initially concerned about a caffeine rush. This has not happened to me. I generally feel relaxed and calm afterwards. Some people have felt the caffeine but this seems to be rare. Do it in the morning if this is a problem for you.
The Gerson program actually calls for 4-5 per day at 4 hour intervals. I did follow this protocol for 18 months but was able to move to 2x a day within the first year. Now I do one in the morning, sometimes two. It is said to open the bile duct in the liver and speed detoxification. (for more on this check out http://gerson-research.org/ or http://www.gerson.org"
Comments
-
-
Hi Joellelee, I'm using detox too and I wanted to respond to your post to say, "You go girl!" Hard to find support here for detoxification, which I think, is the way to true healing. Do you know about Dr. Robert Morse? He has many videos on You Tube and he wrote a brilliant book called "The Detox Miracle Sourcebook". He's a bio-chemist, healer and master herbalist and his theories just make sense and resonate with me. I don't think chemo "cures" and that true healing, and ridding the body of acidosis is the way . Blessings to you
-
NAC was recommeded by the holistic dr I saw. I finally got some and have been researching it for the past 2 days. This supplement has so benefits its like a miracle, from detox to psychiatic, the list is too long to mention everything good that it does! Its like the king of antioxidants. Really glad I decided to listen to that doc!
-
Hi ladies! I just posted my visit with Dr. Wong! I am a little concerned with NAC...I was taking it until I saw in research that it can cause tumor growth...I do see Ann Fonfa takes it and I am going to ask Dr. Wong! He told me not to waste my money on Artemesinin and IP6 Gold.
-
Not to waste money on ARteminisin and IP6 Gold? What is IP6 Gold?
Assume NAC is N Acetyl Cysteine - it is used to protect kidneys from toxins......but probably best to use in short bursts not as a regular supplement
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team