May 2013 surgeries

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  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Ckmoss- you made me laugh so hard it made my drain site hurt when you asked if gowiththeflow got lost at Walmart. Mine are itchy/burning too even though they are still in.



    gowiththeflow- How did it feel to get rid of them?



    I am sweating up a storm, dh didnt get a chance to put the window units in for AC before he left this week. Thank god for good neigbors because mine is going to come over tomorrow and put them in for me. Meanwhile Im sleeping with ice packs!

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  • dlm425
    dlm425 Member Posts: 209
    edited May 2013

    Hey cher I also 48 must be our lucky number I was diagnosed with Bc on march22; 2013 and had bilateral masectomoy 4/26/13 now im scheduled to do chemo and now the doctor is recommending ACT I'm so angry I cant stand it. "

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Ok I just turned to my husband and told him he was going to have to take me to ER because i must have infection as the itching was so horrible felt like I was going to cry (where drains taken out). He went to look at it..and is not drains (although they are somewhat sore) was the @^!%@&#^ TAPE. We took that off and put on two bandaids..and now just feel a bit sore.

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Yea, I forget what I'm saying in the middle of a sentence.  Worst part is, it doesn't bother me.  I figure if I can't remember what I'm saying, it's not important. 

    Ya, I'm tired and my drains hurt (I empty them at 9 and 9 each day).  

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Gowith- now that is funny about forgetfulness.....

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Well going to attempt sleep again..Hope yall sleep well and guess we will meet here around 2am? Lol

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    sweetpickle, it was kind of hard.  Some of them were barely worn and I couldn't help wondering if I should hold onto a few.  A little panicked that I don't have a bra to wear (although I did keep the sports bras I bought back in December when I needed to wear them 24/7 after the biopsies).

    But cleaning out the bras gives me more room in the drawer for all the camisoles I've bought.

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    Hey Ladies, I stepped out for a bit and look at how well healed some of you are.  Best wishs to those headed to surgery and speedy recovery to those who are recently done.  I met my MO yesterday.  She's young, beautiful (from Pakistan) and she's as aggressive about this as I am.  We're a good match in that respect.  She did give me a bit of a "time" about having ignored my lump for six months.  She said my breast may have been saved.  I countered with I'm not lactating, I won't miss it.  I told her I was considering having the other taken and she seemed quite displeased by that. She asked why opted not to have reconstruction done.  I told her I simply wasn't interested, I am not my breasts.  I think she has a decent understanding of who she's dealing with now.Wink

    So, I have my treatment plan!  I swear that wait from drains out to meeting with her was more painful than waiting for my pathology report even though I have been back at work---FULL TIME!!!  It's super tiring (I work two 10s, have a day off, work two 10s and have two days off) but I made it!  Today, I begin my baseline diagnostics: MUGA, MRI etc. You have to drink 32 oz of contrast medium in juice.  THIRTY TWO ounces!  I don't drink that in an entire day.....and I am going to lie in a tube for how long?  I hope they put down chucks...  oh, my poor bladder.

    My plan follows and it doesn't include cancer in it anywhere!

    Today, MUGA, MRI. Monday Chemo class. Wed consult with BS for a port. Friday, MO to go over diagnostics. Mon or Tuesday Port in, under general anesthesia. Friday, CHEMO! Taxere, Carboplatin and Herceptin infusion (6 hours) q21d x6 txs. Start radiation 33 tx daily M-F for six weeks concurrent with additional Herceptin infusion (2h) q21d for 5 additional txs. Quarterly MUGA, PET, MRI scans. Because it cannot be determined if the DCIS I have is a separate cancer event (it is focally positive <1% for ER) or if it's what my IDC looked like before it went nuts and eradicated ER (highly unlikely but not implausible), I will take oral Tamoxifen for five years to protect my other breast.

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Maine-Hi, well you are amazing! You had surgery one day before I did and I am still worried about when I will be able to work. Where lymphs were removed is still so tight that I can't imagine typing for 8 hours and pain from where drains removed is still so sore have to take lortab..although am going to try today to just take prescrip ibuprofin to get my head to clear some.

    You have a great attitude in ref to your breasts. For some reason I am very attached to mine.  Trying to stuff one side of bra until I can get reconstruction to have it match the remaining breast has been a trial and sometimes I wonder should I have done both...but it was too hard to let go of the one. I guess everyone is different.

    Well, best wishes on continued good feelings and great attitude!

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Good Morning all! No traffic on here last night..maybe everyone slept?  I did kinda off and on..but ok for the most part.

    My oncologist nurse said yesterday to try sleeping a little on the side of MX every night...just a bit at a time and about the travel pillow or a heart shaped pillow helping. I did stick a small but still too big pillow and was able to lie on that side about 20 minutes. Enough to know that the smaller pillow will maybe do the trick..going to buy today. Even still sore from where drains were thats not what hurts on that side or lymph..the feeling is a faint burning/bear claw feeling that we've exp getting up/down..like you can feel it shifting inside when you lie on that side..doesn't hurt but really uncomfortable..will get travel pillow..can you even find a heart pillow now?..today and see.  Getting bed sores on left side

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    Hi ckmoss!

    You're doing great, step by step and better every day.  Laughing

    Heart shaped is great but butterfly might be better, if you can find one.

    The Hospital gave me a butterfly shaped pillow rather than a heart shaped one.  It's perfect because there are three different sized "grooves" depending on which way you use it.  One of them is bound to be just right (so I have found).  They look super simple to make if you sew at all (think 6th grade home ec simple). I'm determined to make a few to replace the one I was given but it would be a 4th grade home ec student quality.

    Do you sew at all? I could send you a picture and measurements.  Hope you find something that works.  Are you driving?  Driving is still the most uncomfortable part of my day---that and trying to put down a sticky interior window.  OUCH!

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Maine-I can sew..somewhat. I would love to get the pic and measurements, as I can't think where I could find a butterfly pillow..not expensive...(bills starting to pore in).

    I drove yesterday..not far about 5 miles all in all.  Didn't take pain meds so was somewhat sore..but it FELT SO GOOD..to do something "normal". I felt like driving to the beach..felt as in mentally!

    The other night it felt like something lightly touched my nipple...the one thats not there and like it was still out at end of breast..Ive read this is normal..but I can tell you its startling..however, kinda was like hearing from old friend..nipple ghost..Im being haunted by my breast.

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    I've gotten phantom boobie pains too, and they are both gone.  I'll gently place my hands where the pain is, and it's weird that nothing is there.

    I want to see a pic of the pillow too.  There are a few butterfly pillows on amazon.  I have prime shipping and would be happy to send one to you ckmoss.  If we can pick one out today that has prime shipping, I can have it delivered to you tomorrow.

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Thanks again!

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    you're welcome.  I hope it gives you some relief.

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    I'm sure it will. Did you get you one?

    For all of you that got both MX..I am thinking maybe I should have. You have no idea how hard it is to stuff a bra to match a 1966 breast! I think I've posted about this before, but am in same frustration again this morning. I can do perky one..but shoving all this down in bottom of bra and it staying is a challenge! lol..Theres so much that is aggravation about this whole thing.

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    No, I didn't get one.  I have a tube pillow, very soft stretchy fabric, that I got in a gift basket from a friend.  I've been sticking that under my arm with the nodes removed.  Let me know how it works.  I'm planning on getting back in a bed tomorrow night after the drains are removed.  I've got a very comfortable, soft memory foam mattress on it.  I just think I'll sleep better in a bed than in a recliner.

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    I'm so excited.  Just got a delivery of an edible arrangements.  Digging into the melons now.  :D  

    hmmm...does that sound bad being posted on a breast cancer board?

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    So, there is a new non-profit in my area.  They are going around the country and doing makeovers for cancer survivors.  Hair, makeup, new outfit, and professional photography.  I wasn't able to get in on my local event this time, but am on the list for next time (and they asked me to join their survivor's council).

    I don't know where to post this because "resources" is for admin's to post only.  So I'll do it here and in the chemo may 2013 threads because those are the ones I'm most active in.  Pass the info along to anyone you want.  Here is their website to see if they're coming anywhere near you.  

    Their facebook page has pictures from recent events.  :D

    http://www.bigcnewme.org/

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    GoWith-Your memory foam mattress sounds heavenly! And no doesnt sound bad about edible arrangements..those are glorious! I had 2 friends of my moms bring homemade pimento cheese, cheeseballs and rotise chicken plus whole big thing of strawberries from strawberry farm over yesterday and have been in heaven.

    I know what you are talking about with makeup. I'm not sure what state you are in if different name. "Look good Feel better" done by a group. Its like you said you come without makeup and the teach you different ways to apply, also how to draw on eyebrows/eyelashes, also help with styling wigs..Im signed up to go to that Monday night. So i'll let yall know how that goes. I don't know if they are just in the south or what but I know they go around to different cities.

    Where is everyone today? Ann's been MIA since yesterday.

    I keep thinking of Jakig..last she posted was in severe pain..I hope she is ok.

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    I took pictures!  I had my daughter model the pillow.  Now let's see if I can figure out how to post them.

    I agree that sleeping in your own bed is much more restful than trying to sleep in a chair.  I propped myself up the first couple of nights but was fine with being flat by the weekend.

    DRIVING=FREEDOM!  On the way to recovering something that resembles normal.  A beach day would have been wonderful today.  Instead I was MUGA and CT x3.  Oral contrast medium is AWFUL!

    pictures forthwith.....

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    Butterfly Pillow----may prove more useful than a heart?

    .....hmmm.  I couldn't get it to work so I will just link it to a FB album.

    https://www.facebook.com/media/set/?set=a.10200880590633725.1073741834.1133494564&type=3&uploaded=6

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  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    All this talk about going to Walmart prompted me to head to ours! It was nice to get out again and today I feel REALLY GOOD (other than dealing with these darn drains). So glad to hear everyone is doing well.



    Ann

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    did you drive with drains?  I'm so tempted....

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  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    I have slept in my bed the last two nigts propped up on six pillows. Its easier to sleep in my bed but a challenge to get in and out. Damn drains! Kudos to those brqve enough to venture out with the drains, Im still not feeling up to an outing yet.



    Spending my evening on the recliner bossing my kids around. lol They have been very helpful this week.

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  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    I did! I got along fine. The drains are just so bulky and awkward. Plus I wasn't gone long. My husband is taking tomorrow off and we are going to goof off all day or until I need a nap. I am looking forward to it.

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Ann-I'm so glad to hear your outing went well and guess you were the one that I should have asked did you get lost at Walmart! lol..The drains are bulky..I wore this oversized shirt and probaly looked horrible, but decided I didn't care.  My mom said that she has seen several people at Walmart in pajama bottoms and slippers and said she didnt think I would have to get dressed (she hates that look..)LOL.

    I couldn't drive unless I stopped with these meds..and even then, not far as they are still in my system.

    Sweetpickle-No sense in hurrying out until you are ready. I had lumpectomy first..had only been released from surgeon for 3 days and had to go back for MX..so I had actually been in the house a while except for Drs appt.  So sheer madness got me going to Walmart with drains in.

    Do any of ya'll have like a "bad day" from all this emotionally? It seems about once a week, everything makes me weepy and people around me know not to say anything negative or I burst into tears.  Most days I'm fine, but until then I don't realize how tight I'm holding all this inside me..as I am normally cheerful person.  I think lack of sleep brings these days on as well.

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  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    I have had my weepy days but since the surgery I see more anger coming out. Im here with my two twelve year olds and nine year old and y 81 yr. Old mil. There are things that none of them can do and I have had to do it pain or not. Sucks.

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Sweetpickle-by things none of them can do..is that sarcasm? If so, You need to just not do it and put foot down..you need to take care of yourself...and if wasn't sarcasm..you are right that does suck.

    My husbands been pretty good..but like loading unloading dishwasher for some reason this kills him..he will do it when I finally ask, but I go in another room as he gets very cranky..is fine with its over with..

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  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    I just got what MIL means...you live with your mother in law?? If shes like mine..God love you.

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