Diagnosis became just a little more...

liamsgrand

Hello everyone,



After receiving my Dx on March 19, I finally got to see the BS today. Disappointed to hear that my tumor is not 1.9, but likely 2.5. Okay, forward on to the two options she presented, lumpectomy or mastectomy. However, she recommended bilateral MX because of possible LCIS in the right breast. Didn't feel a problem with bilateral MX if recurrence percentage was going to be low.



However, I experienced a DVT (deep vein thrombosis/blood clot) in my left leg in 2009 which complicates the possibility of having the reconstructive surgery. The BS said having cancer itself presents clotting problems. Therefore, because of the intracacies involved w/having both surgeries at one time, could put me at serious risk. She's recommending that I see a hematologist for special testing of my blood prior to surgery. This could delay my surgery.



Anyone else presented with similar problems or other complications?



Would anyone recommend just having the MX now and reconstruction later? Or, is there other options for cosmetic procedures later. Just not sure I want to delay surgery too long.



I appreciate any feedback.

toomuch

Liamsgrand - I don't have any information about the risks of reconstructive therapy with a history of DVT. I was diagnosed in the summer and was having trouble coordinating the BS and PS because of their vacation schedules. I knew that I wanted a BMX and reconstruction but I had a lumpectomy initially so I wouldn't have to wait. It turned out to be a good thing because I needed radiation. At that point, I decided to have flap reconstruction so I wouldn't have to worry about capsular contraction, a frequent side effect from radiation.

The planning stage is the most difficult time. I hope that you are able to move forward without too long a wait.

vlnrph

It's likely that the tumor has been present for a while so taking a little time to get all the information you need to make your best decision is probably OK. There may be ladies on the surgery/reconstruction forums who could also address your concerns, if you post there also.

Hopefully, you have had an MRI - perhaps that is why LCIS is suspected. The possible clotting disorder should be fully investigated. For DIEP or another microsurgical flap procedure it is very important that blood flow be maintained or the transplanted tissue will die.

Getting a plan in place takes away much of the anxiety that accompanies uncertainty. Ask lots of questions of all your doctors, be sure you are comfortable with their answers and understand the various options.

liamsgrand

Thank you both for responding and giving me some relief from the anxieties I've been experiencing. With all the beautiful weather we are experiencing here in New Orleans, I decided not to live and not let this DX drive me insane.