DCIS - Unilateral MX and reconstruction
I have read a lot on here about the choice to go bilateral with DCIS but not as much about pros and cons of staying with unilateral. I am planning for reconstruction on the right for DCIS. On my right, I had a papilloma removed by excision which was confirmed benign. Now I have to decide UMX or BMX. I am leaning toward a flap reconstruction either way. Very confused about what the deal is with staying unilateral.
Comments
-
I had DCIS and IDC in my left breast plus a papilloma in my right. I chose UMX with a DIEP flap reconstruction. It's all just personal choice. Some people want to do as little as possible others want to feel more assured that they have done everything possible to reduce the chance of needing to go through it again. I'm glad I made the choices I made - though a DIEP is anything but "as little as possible"...
I'm certain that if I should have a recurrence in my right breast I'll be heavily PO'd that I didn't opt for a BMX, but for now (2+ years out) I'm still OK and still glad I chose UMX.
-
It is just personal choice and what you feel comfortable with. I really didn't want to remove one breast so the idea of removing a "healthy" breast was out of the question. I know that I will need extra screening and that will bring on some stress but I will deal with it. At least for now I have a really breast with real feeling. If need be I can remove it. Remember once it's gone you can't get it back. Good luck!
-
If you have breast cancer (DCIS or invasive) in only one breast, all you need medically is surgery on that one breast. So if you either require (due to the size of the area of cancer) or choose to have a mastectomy, a UMX is all that is medically necessary.
If someone is very high risk to be diagnosed again, either because they are BRCA positive or have a strong family history, or perhaps because a high risk condition such as ADH or LCIS has already been found in the other breast, then there can be a medical argument for having a BMX instead of a UMX. Even in this situation, having a UMX remains a perfectly reasonable choice. For those who are not high risk to be diagnosed again, a BMX is a choice made for non-medical reasons, whether it be peace of mind, fear of another diagnosis, a desire to be even on both sides (although with reconstruction that's certainly not guaranteed even if you have a BMX), etc..
I had a UMX. I'd had several benign biopsies of my 'good' breast over the years, and I do have extremely dense breast tissue, but when my pre-surgery MRI showed my 'good' breast to be perfectly clear, I simply could not justify removal of a healthy body part. I also was concerned that a MX and reconstruction can have side effects (certainly loss of breast and nipple sensation and also the risk of pain, scarring, the need for more surgeries, etc.) and I didn't want to double my risk of problems by having both sides done. That was 7 years ago and so far, so good. I've had a couple of 6 month follow-ups on the remaining breast because of complex cysts, but nothing more serious than that. I'm very happy with my choice.
It is a very personal choice. Only you can know what's best for you to do. Some time ago I put together a list of considerations for those making the decison between a lumpectomy, MX and BMX. Here's a link to an earlier discussion thread where I posted this list: Topic: Bilateral Mastectomy Decision Look for my 2nd December 7th post on the first page of this thread. You might find it helpful.
Good luck with your decision!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team