U/S and mammo inconclusive, MRI negative, but...

bobogirl

Anyone have this issue?  I could use some support, since I'm going up against the doctors again.  With my first tumor, the BS diagnosed ILC right from the mammo, told me to get ready for chemo.  But then the U/S was inconclusive, and the MRI was negative.  The biopsy didn't even really get it -- it said mainly fibro with some suspicious cells -- but since it was growing so fast they took it out (partial MX).  Then they found cancer in the tumor -- a rare kind.  Then they all studied it at panels -- four panels.  International panels.  The doctors had a great time doing that.

Now I have a new lump near the MX site.  It feels the same as the other.  It's growing.  But I'm in another state now.  Inconclusive mammo, u/s, and MRI just came back negative.

I see the BS on Wednesday.  Had to fight to keep the appointment!  I don't know her.  I feel like I'm going to have to fight for a biopsy.  And I feel like it should come out -- the whole thing -- which would mean MX.  I know something's not right.  And I know, based on my history, that it should come out.

Does this seem crazy to you? Since I had this exact same thing happen last time?  Does it seem to you that the nurse navigator should be shutting me down and speaking to me somewhat dismissively?  Meanwhile, I am being careful to speak in an extremely calm and rational matter.

Trying to not have this cancer occur distantly, since when it does, prognosis is about 18 months.  Anyone have a similar experience with medical people just jumping on the IT'S NEGATIVE bandwagon?  And don't you feel I should have it biopsied?  Don't you feel that if it's doubled in size in three months, it should come out regardless?

Many thanks for your help and support.

cheryl1946

I have always believed if you weren't born with it, get it out. If it has doubled in size in 3 months, I would insist on them taking it out.

Since I was diagnosed stage IV at the start with mets to the bone, I was told no surgery, chemo, or rads.