saw my radiation oncologist yesterday

anamerty

Hi hope everybody is doing well. Well I don't know how many of you have followed my nightmare I'm all over this site and never really figured out where my situation fits in. So here goes, and I would love to hear from anybody that has been there and what to expect.I had bc 14 yrs ago and was treated with lumpectomy and rads. Late July this year my rad oncologist found a lump(1 hr after clear mammo at cancer clinic) following week dx with idc on the opposite side so its a new primary, also this one tn.So bmx then chemo no rads .Had 3 of 4 chemos, got interstital pnemonitis from the taxotere ended up almost dying spent 2 weeks in hospital, got out 18th Dec.Ct scans were done Dec 7 and Dec24.long story longer lol, (not) ct scans showed a spot on right posterior 3rd rib.I was told front rib.had bone scan all clear. So my chemo oncologist calls me 2 weeks after test, after my own gp called with the negative findings a week before.So he says he still thinks its bone mets,and because so small, he wants to wait and see what comes out of my March 20th ct scan. So this is spun me around again. So I called my rad oncol, asked if I could come see her, and I went in yesterday.So I did find out the reason I had not been told about this spot was because they had been looking(the internal med drs)for lung problems,and came across the spot, when documenting it they had one small line that said spot was found and to follow up, and I guess when I went to hospital on the 24th Dec they did another ct scan for my lungs, then they saw the spot again but this time with some healing around it.It could have been mets before chemo as no tests were run and that the chemo had shrunk it  My chemo doctor had missed the one line saying to follow up, thats why I had not been told 2 months ago!!!.But then bone scan Jan31 showed nothing. My rad oncol actuall showed me the ct scan and she was the one who told me it was posterior not in front.She told me if a biopsy was done at this time it would probably not be a very good one cuz its so small, but if it is bone mets in March, it should be really small as it isn't showing right now on bone scan.She said she could zap it with radiation.Then I said but it will eventually come back and she said yes it would.Anyways, because I'm no longer on chemo, she said that it would not be any problem to resume having her as my primary oncologist again,as she said we've known each other for 14 years, and we understand each other YES!! so now when my tests get done she will explain every step of the way with me. I didn't feel that my chemo dr. was doing that and actually made me feel worst,not informing me of things etc. I think that he didn't have my best interest in heart, and if I gotta fight this I need somebody that really wants to keep me in NED

Yayme

Anamerty...



The fact that those maybe " mets" are resolving is so promising. If in fact they are mets...it can be also related to your 1st estrogen positive cancer....very plausible due to the nature of ER+ breast cancer...however it it was, and it had gone undetected due to having no scans prior to Chemo, it is possible that you were very responsive to the chemo and the few you had, shrunk them down which would be a great sign that you are very responsive to chemo...good sign if this is the senario....so, that's also very plausible..or you just plain do not have mets and its an anomaly...maybe never to return...keeping you in my thoughts for a positive outcome....

Lisa

anamerty

thanks Lisa. I could use all the positive info that I can get. Actually my rad onco actually mentioned the first bc and she said if it was bone mets, because that was 14 years ago it likely wouldn't be from the first ,too bad as it was er positive, she thinks because of the timing and the nature of tn it is likely from the second bc (if it is in fact mets)I guess if it is mets I have to accept it what other choices do I have , but it is so hard, and I haven't even recovered from the surgery or the pneumonia yet then bamm this?If it is mets,hopefully I can be one of the lucky ones to be able to survive for a long time...