Lumpectomy Lounge....let's talk!

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  • MLP3
    MLP3 Member Posts: 534
    edited April 2016

    ((Hugs)) Grazy❤️

    So... The rads that are extending over to the sternum/right breast are for positioning purposes to get my heart out of the way. Got that cleared up!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited April 2016

    had RO consult today.

    5 weeks (25 sessions) with simultaneous boost. The extra week is because of that pesky lymph node.

    He was very reassuring. Also young and HOT.

    Mapping next week, rads pribably start May 23

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Jill, toss on the mascara on the days you see the RO :)

    My hair's been thinning - my hair dresser noticed what hadn't exactly registered with me. I figured it was the Arimidex but mentioned it to my BS this morning. She said most likely it is a thyroid problem and to call my PCP and get it tested. So I have and will get tested this week. I'd put up with hair loss to stay on Arimidex but hopefully I don't have to! I'll keep you all updated.

    HUGS!

  • MLP3
    MLP3 Member Posts: 534
    edited April 2016

    LTF- now you'll have even more incentive to go everyday!!

    Peggy- no chemo and your hair is thinning... Geez! Being bald I'll take your thinning hair right about now;)

    Exactly one week out from my last chemo and I'm making plans... Back to exercise and a cleaner diet. Although my mcl sprain is still healing, I'll start with power walks over my usual classes. I'm just so done with living in the chemo world! Last night my dh came home and I was dressed and ready to go! He asked what was going on... I told him to change chop chop and wewalked 2miles to our favorite Vietnamese restaurant and then 2 miles home. Felt so great and nice to catch up with him without distractions of the dogs, kids, mail, laundry... Never mind burning off some calories;)

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    MLP3, Your hair will come back. Hair loss has to be one of the worst things about chemo. You've been a trooper. I wasn't comparing my situation to yours (there IS no comparison). As I said, I'll glad take that as an SE of Arimidex. But if there is something wrong with my thyroid, I certainly want to have it fixed.

    HUGS!

  • Ce4758
    Ce4758 Member Posts: 2
    edited April 2016

    Lumpectomy with sentinel lymph node biopsy and breast reduction is scheduled for tomorrow. Starting to freak out just a bit. Have to be there at 6 a.m. Surgery is scheduled at 10:30 a.m. and is expected to last until 4 p.m. Should be in recovery for a couple of hours and then they are sending me home.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Ce4758, You've got a full day tomorrow. Understandable that you are starting to freak out. I don't know how long you've had to wait since Dx but if it's been a month or so, that's a long time to contemplate it all. Good luck tomorrow - I'll be in your pocket and hoping for clear margins!

    HUGS!

  • MLP3
    MLP3 Member Posts: 534
    edited April 2016

    Ce4758- it's normal to be scared but... It will be out and you'll be well on your way to treatments if needed. You got this! ((Hugs))

    Peggy- I know you would never compare situations;) ((hugs))

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    In your pocket for tomorrow CE4758! I am surprised with the reduction you are not stay for at least 23 hours. Are you prepared for having drains just in case?

  • KarenR0618
    KarenR0618 Member Posts: 78
    edited April 2016

    In your pocket also CE4758.

  • TennisPink
    TennisPink Member Posts: 22
    edited April 2016

    Ce4758 -- we are having the same exact surgery-- lumpectomy and reduction. Mine is May 4th (8am at hospital..12pm surgery) I found my lump in February and was officially diagnosed on March 1st and feel like I have had to wait extra long for a surgery date (have not met a person yet aside from those getting chemo 1st that had a 2 month wait!!). So I share your same emotions about freaking out. I cried during a family Passover Seder on Friday night and was on the edge of tears all weekend. I also have a 5 and 7 year old who are noticing I seem sad.

    I played some tennis today so it got the endorphins going and I feel a little better today.

    Best wishes on your surgery !!! Hang in there...!!

    Ps : The BS also told me if they get done early with the reduction they might send me home that day. My husband is an MD and was like "WHAT ???". I am packing a bag since they indicated if it's too late in the daythey will have me stay over.


  • Nash54
    Nash54 Member Posts: 837
    edited April 2016

    Hi Guys haven't been on in awhile...living life!! I see some of the "old timers" are still here and I'd like to say welcome the newbies!!! This thread save my sanity in the beginning. It really sucks in the beginning but it does get better. I've started loosing track of dates and rarely think about cancer (except first thing in the morning when I pop that pill) LOL

    Peggy my hair has been thinning too....I'm pretty sure it's the Letrozole.. Hopefully, it won't keep thinning.

    Hope everyone is well.


    image


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Nash, how nice to hear from you!!! You've been missed. Like you, I rarely think about BC. Only reminder besides the pill is my SNLB site which still can get tender. Oh well, not a real complaint. While my BS thinks it likely thyroid, my PCP says probably Arimidex. She said the hair could come back. Really? It didn't start till I'd been on it for a year and it will come back? Well, I should know in a couple hours what my bloodwork says.

    Stay well and live well, Nash!

    HUGS!

  • froggie
    froggie Member Posts: 92
    edited April 2016

    Good luck tomorrow, Ce4758. Fingers and toes crossed for clear margins and a speedy recovery.

  • Nash54
    Nash54 Member Posts: 837
    edited April 2016

    Thanks Peggy...let me know what you find out. Mine didn't start thinning until a year or so either....mine is right at the hairline. I think it's only noticeable by me.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Nash, mine is at the hairline and on top. My hairdresser who sees me about 4 times a year noticed it. It really showed when I was wearing bangs - I'm not now. I was wondering if the stress of my husband being so sick and dying (August & September) played a role.

    HUGS!

  • Kokomo26
    Kokomo26 Member Posts: 64
    edited August 2016

    Hi Everyone!

    Poodles, good news about your DH. For now you can both breathe a little easier till the next step.

    Jill, Hi! Sorry, so late in replying. My rads were at Sunnybrook, very happy with my team...I finished before Good Friday. So just read you were there today.... You are having the boosts at the same time as your reg tx?

    Chipsy83, I am not able to update my profile info either. Cant seem to add my rad date or HT name.

    Grazy, sorry to hear about your Mom,s surgery..hope she is feeling better now. You must be exhausted after your full days at the hospital and the added stress with other family members. hugs!

    HappyHammer, sending you big hugs!

    Lovinggrouches, hoping for good results for you...hugs!

    614, sorry you have that lipoma worry..hugs!

    Ce4758, good luck tomorrow.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Nash, just got my thyroid results. All are within normal ranges. My TSH is .91 which is on the low end but low is either .44 or .34. T3 and T4 were right in the middle of normal. Arimidex --> Guilty :(

    HUGS!

  • Kaneli
    Kaneli Member Posts: 100
    edited April 2016

    Dear Nash54, I see that you posted that you had multicatheter therapy for radiation. Was that brachytherapy? I finished up with SAVI brachytherapy on April 1st, 2016. I have not seen too many who have had this type of accelerated partial breast irradiation, so I really have not had the chance to hear about women who have experienced this. I must say that it was a bit rough for me, but the radiation and the SAVI device implant only lasted that week, so I feel fortunate about that. I would say that I feel pretty much back to normal now. I will start on Armidex after I return from my Italy trip which will be June 5th. All in all, I feel that it was a good choice for me, but I am curious about others who took the same path. And maybe I'm totally wrong and the brachytherapy is not what you had at all! Anyway, I am concerned about starting the Armidex, but I will give it a try and go from there! Best wishes and continued success to you!

  • Nash54
    Nash54 Member Posts: 837
    edited April 2016

    Kaneli....I also had the Savi and am glad I did. It was really weird having the device in but only had to put up with it for a week so the trade off was worth it to me. I did have some "sunburn" that appeared a couple of weeks after my radiation was finished and that was a bit of a surprise. I used aquaphor and it cleared up. I do have a divot where the device was inserted. I've been on Letrozole and aside from a few joint/muscle aches first thing in the morning and the thinning hair I really haven't had any problems. I do believe staying active helps. I try to walk or do yoga as often as I can. Best of luck

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited April 2016

    hi Dorothy! Yes my boosts will be done with my regular TX, RO is Dr. Soliman, who I really liked.

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Nash, what a beautiful picture of you!!

  • Kokomo26
    Kokomo26 Member Posts: 64
    edited August 2016

    Jill, very interesting. I had not heard of that tx before. You are in good hands with the rad techs....let me know how your sim goes. Best of luck to you!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited April 2016

    thanks Dorothy!!!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Nash, you are so pretty! That's a great picture!

    HUGS!

  • MJS1266
    MJS1266 Member Posts: 222
    edited April 2016

    Ce4758,  I had the same surgery about the same start time as you.  My surgery lasted about 4 hours and I was sent home around 6.  I felt I  could have used another hour or so in recovery but I was fine and able to have some soup for dinner around 8.  Good Luck, I'll be thinking of you.  MJS

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    Thanks so much to everyone for your hugs and advice. Grazy and 614, the tomatoes haven't made yet since I just planted them a few weeks ago after my second lumpectomy, they better be good for all the work I put in lol!!! HUGS back to you all. I got to have read number 8 today, no power outage! They were so nice to give me a 20 dollar gas card in apology since I drive so far from out of town. Brithael, yay for last rads!!! Ysr5861, good luck with everything and let us know how you are doing. Ce4758, ill be in your pocket and I will say prayers for all. Loves to fly, I also have never fixed my hair or worn makeup EVERY day in a long time, but make myself because my RO is young and cute too, it's just fun since I'm happily married and been with hubby over 20 years!! I also had a very cute surgeon too lol!! Grazy, hope your mom is better soon!! I had good test results, normal tsh, prolactin and ca-125!! Yay!! I just continue with high wbc's for some reason since my first surgery, but that could be the cyst I guess, the least thing I will worry about lol! Everyone please say a prayer for good results and as little pain as possible for my uterine biopsy next Tuesday with good results. Anyone here ever had one, was it very painful?? It's just being done in the office. Hugs to all!

  • iammags
    iammags Member Posts: 216
    edited April 2016

    Grazy- here's a hug from me, too. I love your sense of humor. :)

    Dear Lovinggrouches- Wow. You need all of this now like you need a hole in your head! I'm sorry. In less than a year I've been diagnosed with diabetes, bc, and Cll (stage 0 chronic leukemia). Every time I have an ache or pain I start driving myself to Crazy Town. It's hard not to go down that worry road when all of the things that you thought would never happen happen.

    MLP3 Great to look foward to you last days of chemo! Good for you!

    TennisPink- I had a bilateral reduction and went home the same day without incident. It's scary but I promise it gets better. I had my lx/reduction in March and now I'm doing well. My clothes fit so much better. And my back doesn't hurt so much. Plus, this bc crap is gone, gone, gone! I'm so glad that I had the reduction. Good luck with yours and the lx

    2 rads down for me. It's so crazy that it only takes 5 minutes. Well, not counting the 2 hours in car there and back. My RO added one more week to my regimen which kind of bummed me out. But if it kicks and remaining bc cells it's worth it.

  • froggie
    froggie Member Posts: 92
    edited April 2016

    Lovinggrouches, I've had 2 endometrial biopsies and they weren't too bad - felt like a strong menstrual cramp as they grabbed the tissue and it didn't last long. A lot will depend on your perception of pain. It was very short lived and definitely doable.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    Iammags, I feel for you! I also was diagnosed with diabetes a year ago, high cholesterol a few months ago, along with breast cancer, and now the pain and weeks of bleeding with a large ovarian cyst and biopsy coming up. When it rains, it pours! I wonder exactly what makes them decide on the number of rads we need? I was just told betweenv20 and 28, I guess they will eventually let me know for sure? No one mentioned anything about boosts. I was told not to use anything on my breasts, but I see lots of people are using lots of stuff to help- I'm just playing it by ear, day by day. A friend gave me a beautiful adult coloring book to work on when my nerves are bad to get my mind off things. I will see if it works in place of medication lol!! Today was my first good day in a while that I didn't come home and pass out in the bed lol! Good luck with your rads and Hugs to you!

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