Lumpectomy Lounge....let's talk!

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  • april1964
    april1964 Member Posts: 223
    edited March 2016

    Moondust i am not sure how to interpret the hormone receptors on my report. they are ER 10.1 positive and PR 5.1 negative and HER2 9.4 negative . I have met my med. onc. once and he drew a smiley face on my path report and said they look good and not too worry and gave me prescription for Armidex.


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  • beachw3
    beachw3 Member Posts: 30
    edited March 2016

    what does it mean when it says ER: Positive, 2+ nuclear staining in 95% of tumor?


    Is this the HER result and ER result?

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  • beachw3
    beachw3 Member Posts: 30
    edited March 2016

    I did not get an onco test, wonder why? is this something I should request?


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  • beachw3
    beachw3 Member Posts: 30
    edited March 2016

    no worries Molly :-)

    What is RO?

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  • Catfurr
    Catfurr Member Posts: 69
    edited March 2016

    Beachw3-I was told that with Her2+, onco testing isn't done. I would certainly ask your MO. RO is a radiation onc


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  • iammags
    iammags Member Posts: 216
    edited March 2016

    Beachw3- an RO is radiology oncologist. I'm not a doctor but it sounds like your report is saying that you are ER+ but it does not mention HER at all. I'm taking a stab in the dark but as far as the oncotype testing is concerned, it is a test to see if you would benefit from chemo. It's my understanding that usually chemo is not recommended for DCIS. But you should definitely ask your MO about it if you are concerned. I might be off base...

    april1964- that's my birth year/month. Is it yours, too? Your MO drew a smiley face and handed over hormones? Did he explain staging and treatment at all? What kind of tumor do you have? What is the stage? You'd think that your doc would be a little more specific!


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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    interesting articles, thank you. I also had lowprogesterone and early miscarriage is when I was trying to get pregnant.

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  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited March 2016

    great news today. No cancer in the margins!!!!! Now only have to wait on oncotype, but oncologist said that unless it's high, no chemo, only whole breast radiation and hormone blocker. I can breathe!!!!!!!!!!!!! I can breathe!!!!!!!!!! I headed to appointment thinking I might have to have a mastectomy!!!! I can breathe!!!! Thanks for all your support. I have been thinking of you all!!!!

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    wonderful! Fingers crossed for a low oncotype!!!

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  • stellamaris
    stellamaris Member Posts: 384
    edited March 2016
    Awesome, so happy for you...champagne breakfast!
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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    LovingGrouches YIPPEE!!!!!!!!!!!!!!!!!! Wonderful news. Now you can not only breathe but relax. Very happy for you. Now for a really low Oncotype score!

    HUGS!

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  • violethope
    violethope Member Posts: 32
    edited March 2016

    Congrats Sloan and Loving grouches! Great news for both of you!

    LTF- re taking time off during radiation. I am taking 5 weeks off and am so glad I was in a position to be able to do that. I thought about working part time but with my job that is almost impossible to do and you still end up involved in everything going on at work and making lots of decisions. My RO and surgeon both agreed that if I could it would be a good idea to take the time off. I didn't want to worry about being late for my appointments or if they rescheduled needing to worry about missing meetings at work etc. Also was able to get my exercise done during the day as i knew I'd be too tired to do it after working all day and with the Rads. So I was able to focus on myself and not my employment.

    Can't recall who posted about getting red "bumps" on their breast during Rads but i have them. I started having them the first week of treatment and they were almost like large brown "freckles" ( i am really fair) and now post treatments they have turned red and I have more of them. So far I don't have any skin breakdown and I am almost 1 week post-rads.

    Someone else asked about breast swelling during Rads and my breast is really quite swollen and was from about the second week of treatments.

    Take care everyone!


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  • 614
    614 Member Posts: 851
    edited March 2016

    Dear LovingGrouches: Yay

    Hello to everyone. I agree with what everyone has posted and I wish everyone well.

    I do not have side effects from Arimidex/Anastrazole.

    I took off of work for my rads because I live in Florida and I was treated at M.D. Anderson Cancer Center in Houston, TX. I had no choice. I had to take the time off. I felt fine throughout rads and afterwards too. I had radiation burns on my skin but they went away and were not bad. My skin looks absolutely fantastic now. I did not have radiation fatigue. However, that being said, I am always tired all of the time and I have been tired throughout my entire life. Rads did not make any difference to my level of fatigue. Good luck to those of you who are/will be having rads.

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    thanks for the insight with regards to rads everyone, I may just plan to take it off, I may plan to start working and see how it goes. But it's good to know that I don't necessarily have to anticipate being down and out for months afterwards.

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  • ChicagoReader
    ChicagoReader Member Posts: 110
    edited March 2016

    Loving Grouches and Sloan: Yay to the good news!

    LTF: They say that side effects of radiation peak one to two weeks after radiation ends, and that was true in my case. I scheduled my rads for the end of the day. During the early days of treatment, I went to work and left a little early for treatment. When I started to experience skin problems and fatigue, I worked from home. When the skins problems worsened, I took time off. Good luck with your treatment.

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  • molliefish
    molliefish Member Posts: 723
    edited March 2016

    Hey Jill I started my new job the da before I stared Rads so I worked every day and left early for rads at between 3 and 315 daily. I did have what the nurses described as a pretty significant reaction so I ended up taking the last few days of rads off. I think my last day in the office was around Dec 18 and I finished rads on Dec 23. merry Christmas to me.

    We are all different but I sense that you will do pretty well and if you need any time it may just be a few days at the end. fingers crossed for you. What protocol are you having? And are you at PM for treatment?
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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    Thanks chicagoreader!


    hi molliefish! I'm doing FEC-D. Just had my second Docetaxol yesterday, last one in mid April so I'm anticipating rads for May/June. I'm being treated at NYGH (I live in Thornhill!)

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  • april1964
    april1964 Member Posts: 223
    edited March 2016

    iammags yes april 8 1964 is my birthday. I have stage 1a IDC that was one centimeter. I think the doctor was trying to be hopeful when he drew the smiley face but I didn't know what questions to ask --the next time I see him I will bring a friend

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  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited March 2016

    iammags and april1964, my birthday is also April, but 1974!! Lol!!!

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  • iammags
    iammags Member Posts: 216
    edited March 2016

    I love April. My bday is the 20th and my daughter's is the 21st. So much for celebrating my bday the last couple of years, but oh well. I have a great daughter! She's turning 13 this April (help me! someone's taken over my daughter!!) and it's getting a little rough. :) luv that girl, tho. Let's all celebrate all April long!

    Here's to no chemo! And no rad SE's! I didn't realize that rads make some people so tired. I'll find out soon enough if that will happen to me.

    Happy Wednesday night everyone

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  • tbalding
    tbalding Member Posts: 449
    edited March 2016

    Hi, this is my first post & am trying to figure it all out, so just decided to jump right in :) I was just diagnosed with bc on March 10. They saw calcification during my annual mammogram & the biopsy showed that I have papillary carcinoma DCIS. I have dense breast tissue so my my Dr ordered an MRI to check that there wasn't anything else. The MRI showed an area of concern so had to have another biopsy which took almost 2 weeks to do biopsy & get results. The waiting was awful! But got the results this past Monday & the 2nd area was thankfully negative, just fibrous tissue. So now I'm scheduled for a lumpectomy on April 13 and then will have to have radiation & hormone blocker for 5 years. Dr says don't have to remove lymph nodes. Not sure what to expect from surgery but from all I've been reading, I'm dreading side affects from radiation & especially the tomoxifen.

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  • ChicagoReader
    ChicagoReader Member Posts: 110
    edited March 2016

    Welcome, tbalding. Sorry you have to be here, but you'll find a lot of support. Please keep in mind that many people go through radiation and tamoxifen without experiencing major side effects. Good luck to you and please keep up posted!

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    April1964, before you see your MO again, you might consider reading Dr Susan Love's The Breast Book. It is a comprehensive book on breast cancer (get the edition that came out in 2015). She tells it like it is. And you will know the questions to ask - which is the hardest part starting out on this journey. You don't know what to ask because you don't know what you don't know.

    Hugs!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited March 2016

    Welcome tbalding, sorry you need to be here but glad you found us.

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  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    TBalding, Welcome! We're glad you found us but sorry you needed to. It sounds like you've read enough to know we are warm, comforting, informative and funny. Glad your 2nd area was good! Don't be particularly concerned about radiation and tamoxifen. Many of us (me included) had virtually no trouble with radiation. And many have no trouble with tamoxifen. Quite often the people posting on the hormonal boards are those who do have problems and are seeking answers. Those not having problems don't post much. My advice is to start both with a positive attitude, don't anticipate problems. If they crop up then you and your onc will help you cope with them.

    HUGS!

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  • april1964
    april1964 Member Posts: 223
    edited March 2016

    Peggy thanks for suggesting the book -- I'll look it up on Amazon

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  • amhess
    amhess Member Posts: 19
    edited March 2016

    Hi ladies.

    I had a lumpectomy on Monday. Had a little pain today. But I seem to be having this "sloshing" noise in my boob where the tumor was removed. And it was a Biggin. It was 12cm x 6cm. Doc said it was the size of her fist. Plus, since it was a Phyllodes, she grabbed 1cm of tissue all around. Now my biopsy originally showed benign, still waiting on pathology for the lumpectomy. My Drs both (surgeon and PCP) both were surprised by the benign biopsy.

    Anyways, I just wanted to say hi, see if anyone had anything they could share about a Phyllodes tumor, and if someone could explain all this fluid sloppin around my chest.


    Thanks so much.

    Amanda

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  • Sloan15
    Sloan15 Member Posts: 896
    edited March 2016

    Amhess - Sorry, I don't know anything about your tumor other than what I read on the bc site. Here is the link http://www.breastcancer.org/symptoms/types/phyllod...

    Regarding the sloshing, some of the ladies had a seroma (filled with fluid) and talked about sloshing. Most of the time it reabsorbs and sometimes they have to drain it. Someone will chime in shortly and talk about their experience. Good luck!

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  • Sloan15
    Sloan15 Member Posts: 896
    edited March 2016

    Amhess - and yay for benign!

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  • amhess
    amhess Member Posts: 19
    edited March 2016

    Thank you so much for your response.

    Ok so it is fluid. This makes sense. I called my surgeon earlier and her nurse said she thought it could be normal but to call back tomorrow and they would check.

    My mom had BC and I was the one taking in all the information. And I feel like its my first time hearing it all. And I still have questions.

    Thank you again Sloan!!!!

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