Lumpectomy Lounge....let's talk!
Comments
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Rosierosie- Peachy is right about the needle locator- the only issue I had was sitting around for a few hours with them hanging out- wires were taped down but just weird feeling. Also, I didn't have the SNB scar as my BS was able to remove the node through the lx incision. I've heard of others with this as well so maybe you will be as fortunate. I did take pain meds for a day or 2. Tried to stay ahead of it. Be sure to take Colace or something similar due to the anesthesia and pain meds to try to prevent digestive issues. Hugs to you!
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Rosie, Welcome! You've come to the right place to have your questions answered. You seem to be speaking of two different things: biopsy and lumpectomy. Most of us had a biopsy well ahead of our lumpectomies. And for the biopsy I was awake and given lots of Lidocaine. For the lumpectomy - had wire locators done and again lots of Lidocaine so it seemed scarier than it was (I had had a wire locator 10-15 years ago and it was not pleasant; this one was fine). My surgeon gave me Lidocaine before injecting the dye for the SLN. Again, not painful. BTW, I was given Dramamine prior to surgery to help with any anesthesia nausea - and it worked perfectly.
I had no trouble with my Lx. Nor did I really with the SLNB being painful. But it was so damned annoying. Everything seemed to rub it. I still have tank tops and a few other tops that I can no longer wear because they rub that site and it reminds me that it is there. Again, not real pain, just annoying. I took one pain pill in recovery and then regular Tylenol. But do fill your pain med rx. You do not want to be in pain so take what you need to so you stay comfortable.
It IS all very scary but you'll do fine. When you get a chance, please fill out your profile AND make it PUBLIC so we know what your Dx and treatment schedule are. It helps us immensely. Ladies with a similar diagnosis can answer Dx specific questions for you. We'd also love to know where you are located. We have BCO sisters (and brothers) all over and some of us get together in real life.
Take a deep breath and try to relax. You'll do just fine.
HUGS!
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LTF- same meds! They seem to work much better than the Decadron. I think I'm feeling better today because the decadron is getting out of my system. Also... Because we can't buy unpasteurized juices... Mix up some pasteurized carrot, pineapple, ginger and garlic juice. Great for a cold and the pineapple(bromeline) is great for anti-inflammatory purposes for the sinuses. My all time fave is carrot, green apple, orange, lemon and ginger. Keeps colds away. My mo said that I could juice my own at home after a thorough scrubbing of the fruits and veggies.
Rosie- Welcome! But... Take a deep breath my friend! We are all here for you. Have you had your appt with your breast surgeon(bs)? I had a radioactive seed implanted a day before my lx and SNB. It's pretty much just another way to locate the tumor dead center and get clear margins. Just like the wire. They should shoot you up with lidocaine when they put the wire in. And you ARE NOT awake during the lumpectomy(lx) and SNB. You're out! As in la la land. Mine went well and I'm a month out. Truth be told, SNB is more bothersome but manageable. I did a lot of research prior to surgery, asked questions here and found that it empowered me heading into appts and surgery. In the past 5 years, I have had major neck surgery(skiing accident), hysterectomy and now this. And I'm still here! I went into this breast surgery excited and relieved to have it out of me. Try thinking that way and keep yourself focused on ridding yourself of your breast cancer and looking ahead to a plan to live a long and healthy life!!😘
Found this on the Livestrong site re: lavender oil. I love it in my body scrubs but as I'm 100% ER... I'll steer clear!
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RosieRosie - as others have said - please take a deep breath. Try to relax. We understand your terror and most of us here had moments of terror as well but let me assure you it's not nearly as bad as you're imagining. As you gain more information, you will calm down...............I promise!
I had lumpectomy and SNB just last Tuesday, same as the procedures you're facing on March 4. I am fine and only took Tylenol for the discomfort. Notice I didn't say "pain", just discomfort.
Assuming your experience will be like mine, here's what it's like:
You'll check in and change into surgical robe. They'll make you comfortable in a nice chair, probably with a pre-warmed blanket on top of you. Once all the paperwork is done, someone will come get you and take you into an Ultrasound room. A US technician will find the tumor in your breast (the one they already know is there) and a radiologist will come in and explain the wire procedure. In short, he/she numbs the skin on part of your breast, then injects a needle, (you feel just a little pinch - tiny needle). Inside that needle is a wire and radiologist will locate tumor with that needle/wire (using US to help find it). Once it's properly in the tumor, he'll cause the wire to come loose and stay right there in your breast with about 2 inches sticking out of your breast. The wire sticking out will have a cap on the outside. They'll put bandages or a little cup over the needle so it doesn't get in your way and take you back to your waiting area to rest up and wait for surgery. That's it. In my experience, it wasn't nearly as involved as the original biopsy (which didn't cause me much discomfort either).
Once it's time for surgery, you'll walk (or be wheeled) to the OR. After they put the IV into your hand in OR, you'll go to sleep and won't feel or remember a thing until you wake up in recovery.
The wire left in your breast helps the surgeon locate your tumor. In my post-op appointment, I asked my surgeon what she saw when she opened me up and she said she only sees healthy tissue when doing the surgery. She doesn't see the tumor because she's removing a ball of healthy tissue all around the tumor. Imaging and the wire in my breast helped her find exactly what tissue to remove. It's not until they take the tissue "ball" to pathology and slice it like a loaf of bread that they can see the tumor inside. If your surgery is successful, there's a margin of healthy tissue all around the tumor thanks to that wire (and your imaging) that helps your surgeon find exactly where to do their job. Once it's over, wire AND your tumor are gone. You simply have a bunch of gauze and tape over the area.
As far as the "biopsy", I presume you already had a biopsy to confirm your BC. A far more complete "biopsy" (examination) will be performed on the tumor AND the lymph nodes removed from you and the pathologists will write a final report for your surgeon. That report comes several days after surgery.
About the Sentinel Lymph Node - during surgery (when you're peacefully sleeping), the surgeon will probably inject a dye to help him/her find the first lymph node leaving your breast. (Sometimes it's more than one). Surgeon will also look at lymph nodes to see if any look unusual. The first (sentinel) lymph node, and any other unusual-looking ones will be removed and sent directly to pathologists waiting in a lab near OR. Pathologist will examine frozen sections of those nodes and immediately notify your surgeon if the nodes have visible cancer in them (called clinical examination). If so, your surgeon will take out more nodes and the process is repeated. You don't feel any of this because it's done during surgery. After surgery, you'll have bandages under your arm - the extent of the bandages and discomfort will depend on how many nodes were removed - (surgeon wont' know until they're in there.) Oh, and by the way, if this dye was used, you'll probably pee it out over the next 24 hours or so - your pee can turn bluish-green!!
Overall, this procedure is much easier than I imagined. I took it easy for two days and feel perfectly normal now with only swelling and slight tenderness in my breast and armpit. (Just for reference, please note I only had one lymph node removed, so my experience might have been less painful than others with many more nodes removed.)
I hope this has helped in some way and not confused you. It is still fresh in my mind because I just went through surgery four days ago and my post-op appointment two days ago. AND I ask A LOT of questions!
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Nice job describing the day Sunny!
Rosie- I had 6 removed, 2 from each level. The dye that they inject on the day of surgery follows the path that the cancer cells would take to the lymph nodes. The first node they take is the sentinel node or "gatekeeper" node. And they may take another if it lights up or is suspicious, as sunny said. But I had 6 negative nodes.
Please follow Peggy's advice and fill out your profile. After you do that, go to settings and scroll down to make your surgery "public". Then we can all see the who, what, when of your dx(diagnosis), surgery and treatments.
Breathe...💓💐
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feeling pretty good today. I was only sick one last night. Keeping up on my fluids and eating small meals every couple of hours.
Mlp3 glad you are starting to feel a bit better.
Praline I say go for the rename of the red drug.We have to have a little fun while gng through the this.
LTF Hope your cold doesn't get worse. Just take is easy and take care of you Wonder Woman.
Rosie Rosie. I had my lumpectomy and snb dec 30. The only part I found painful was the dye they injected in the aerola it felt like a bee sting for a few minutes. It's not that bad just remember to do the exercises they tell you to do for your arm. Remember whatever side they take lymph nodes out you need to have all future blood work and blood pressure checks on the opposite arm due to increased risk of lyphemena.
You will be fine and get through this. Just remember to take deep breathes
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Yes, nice description Sunny!
Rosie- I'm having the same surgery on the 2nd. I'm a bit nervous also, but I'm trying not to be. Fear of the unknown is the worst.
I've had several surgeries on my ankle and if there's one thing that I learned it is, don't hesitate to say that you are in pain or are extremely anxious. Don't be shy!
Good luck with your procedure on the 4th! We can compare on the 5th
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I'm curious. What is the largest area of dcis they can remove during lumpectomy with chance of getting good margins? I have multifocal calcs adding up to 3 cm.
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thank you so much, I guess my dx was the best to get if your are going to have BC, I have DCIS, cribriform pattern, low nuclear grade. gross description reads
specimen is received in formalin, labeled left breast with calcification. "A" and with two patient identifier and consists of two pieces of cylindrically shaped light ten soft tissues measuring from 3.1 cm in length and 0.5 cm in diameter to 4.0 cm in length and 0.5 cm. in diameter. This specimen is entirely submitted n two cassettes.
B] specimen is received in formalin labeled left breast without calcification "B" and with two patient identifiers and consists of thirteen pieces of cylindrically shaped light tan soft tissues measuring from 1.4 cm in length and 0.5 cm, in diameter to 4.0 cm in length and 0.7 cm I diameter . the specimen is entirely submitted in seven cassette.
Does anyone know what this means are the size of the tissues big? will I have a large part of my breast removed. this is the report from my stereotactic biopsy
thank you in advance for all your help Rosie
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Great news on the low nuclear grade Rosie! That's another plus. That looks more like an lx specimen to me. I'm sure someone can chime in to help interpret that med talk.
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Just wondering when I look at the bottom of the page it says a lot of women have chemotherapy if I have low nuclear grade non invasive DCIS will I need chemotherapy and is it the pill form ( sorry do you lose your hair with pill) I sorry again I am so so nervous and when I talk to my surgeon I just bottle up I don't know how to handle this. This web site is good for me I can express my fears. I not married I take care of my elderly mother (95) your friends call in the beginning., I have no sisters, its hard.
so I guess all of you are my sisters. thanks for letting me get this off my chest.
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Hi rosie - though I am not a medical expert, my experience and that of most here is that DCIS does not require chemo because it is well contained. Chemo wasn't in my plan until it was found that my IDC had invaded not just the surrounding tissue but one lymph node. Those who don't have lymph node involvement but do get chemo have it because their cancer is high grade, their tumor's hormone profile is triple negative (ER-, PR-, and HER-), or they have had genetic testing that indicates high probability of recurrence.
Glad we can help and be your sisters.
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I guess I found this out after my surgery? when then test the lymph node??
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I echo Peachys comment. There are many different factors in determining treatments. Grade 3 usually lines up with chemo, but not always. Mine was an aggressive grade 3 as they found cells swimming on over to the nodes during my lx and SNB. That was called extensive lymphatic vessel and channel invasion(LVI). You won't have that with DCIS and with a low nuclear grade.
Yes, you will find out much more after the lx and SNB. And you may find out that the tumor is smaller as well.
Try and educate yourself. Write a list of questions to take to your appts. Don't be afraid to ask questions. It's YOUR body, YOUR journey in this. The more you know, the better you'll be heading into each phase of this.
FYI... Today is the start of feeling so much better!! I may even go out to our favorite farm to table restaurant and feel like a human again! Hold a wine glass(filled with water) and sit at the bar with the fire roaring behind us. I haven't stepped foot outside since tuesday😬
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yeah MLP!!
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The LX incisions are itchy but other than that they are fine. Bruising on both breast is extensive and turning a lovely shade of green yellow. The left SNB incision is also itchy and that arm is starting to some back on line and range of motion improves every day. There is no numbness in that arm at all. the right arm is a different matter. The muscle on the upper back shoulder are screaming, range of motion sucks and it just won't go, back of my right arm from arm pit to almost elbow is numb and the incision is over 3" long. the first part of the incision is nice and neat and mirrors the one on the left side. However, once he had to start mining for the darn SN, the rest of the incision looks like it was made with a chain saw. The arm pit is swollen and I am acutely aware of it as the area feels full when my arm is down. I managed to wash and dry my hair yesterday but it was no easy feat and the hubby tried to help but was useless. I'm still sleeping in the recliner and my rear end is getting sore. Both of my arms are useless in shoving off of them so I see no way to get out of a bed so I haven't even tried sleeping in one. So that's where I am in terms of recovery.
Right now I am scared spitless of developing LE. I have no good arms. A doc asked Lily over in he JHU 'ask an expert' forum if they did blood draw in feet or something like that since he had a bilateral BC patient. She said that wasn't necessary, they pick the side with the less worse nodes. this is something I worry about alot.
MLP, so glad you are starting to feel better and are keeping meals down. Your three pooches are doll babies. My chocolate lab will be gone 2 years in March. There is not a day that goes by that I don't think of him. Once I get the BC TX behind me, I will start looking for another rescue. I made it clear that I want Oncotype DX but it is not clear if the BS will send it out or if I will have to wait for the MO. My follow up is on Feb 29 with BS and I also see the MO for the first time that same day.
Welcome iammags, PiNKiDC, Minnesota and simsoka.
Minnesota, good luck with your surgery on Feb 23. I'll be in your pocket. I bought a bunch of bras to wear after surgery and they are all no goes - each one cuts across the SNB incisions. I am in my regular Bali underwire. It gives the support I need and doesn't come near the node incisions.
Poodles, so sorry o hear of the latest news. Hopefully, PS will get you up and running again and get the problem under control. geez, you have had your share of problems with surgery so hopefully things will start to go your way soon. Keep us posted on the thigh numbness.
Sunnyone, glad you are recovering from surgery with no problems and had a decent path report.
LTF, glad you are tolerating chemo as well as you are.
blamoms, glad your first chemo session was uneventful and you came ou e other side fine.
Praline,glad you continue to do well with your chem sessions - another one down.
rosie, welcome. Wire locators are not bad. You will be numb and other that a little sting when the lidocaine first hits, you won't feel anything. Make sure you don' look and hopfully the radiologist hat places iwill cover it completely with gauze so you won't see it. I got dressed afterwards and then went over to nuclear medicine for the radioisotope injections for the SNB. The BS came down and did my injections, He rubbed topical lidocaine over he area where he would be doing the injection as well as the whole area that the isotope would be traveling on the way to the nodes. They say the isotope stings but honestly I didn't feel anything. rosie, did the path report have any receptor information for the non invasive DCIS?
I'm still trying to catch up, so apologies to anyone I overlooked.
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Rosie and Minnesota, you both might want to consider getting Dr Susan Love's Breast Book. It has tons of information about breast cancer and treatments. Dr Love answers many of your questions. And don't forget that breastcancer.org (yup, right here) has many excellent articles on deciphering path reports and other opaque things you get from your doctors.
Rosie, as others have said there are many reasons you might have to have chemo. Most of with estrogen positive/progesterone positive hormone receptors are on hormonal therapy such as Tamoxifen (pre-menopausal) and Arimidex (post-menopausal). Those are NOT chemotherapy. You will most likely have an Oncotype test done (Oncotype ) to determine what comes next.
It is very hard when you have no one to talk to. We're here for you. We'll do our best to give you answers or steer you in the right direction.
HUGS!!
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Froggie, glad you through with surgery. Pooh on the bad SNLB. Don't hesitate to call your BS if you are concerned - even over the weekend. It's better to get things taken care of sooner than later. Don't wait! Do keep icing.
HUGS!
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Hi Ladies,
Just checking back in I am moving onto day 4-16 of Rads on Monday. It has been interesting my first day my tears dripped into my right ear from stress and fear. I did to want to talk to anyone just in and out and off the table please! Now my fear is less but I still want to jump off the table. My skin is fine at this point and I am keeping up with a ton of water each day. I think i now make a sloshing sound when i walk.
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Brightsocks, I'm sorry that you are finding rads so difficult emotionally. We all have things that terrify us and you found yours. I can't imagine how you manage to slosh from all your water. Don't you have a direct connection that goes straight through without ever stopping - drink in, pee out? I swear it takes like 10 seconds for that in and out trip. No time for it to stop and slosh
HUGS!
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As I ran into for my treatment there was a man outside smoking right and the entrance. Part of me want to yell at him and say "What are you doing?" But I realized that is the power of the highly habit and he does not need me telling him that for I have not a clue what he is dealing with. Next time if I see him I might just give him a smile for I am sure others would have questioned what he was doing yet he has now control over his smoking.
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froggie- hang in there! Do you know your grade? If it's a 2 or 3 id definitely demand the oncotype.
Brightsocks- do you mind me asking what the emotions are with rads? I don't mean to sound insensitive😘 That's my next step and I'm curious as I have no idea what to expect.. I just saw a great natural remedy to help with rads... I'll find it and send along.
Again I'm Peggy's echo...! Dr Loves book has been a great source for me as well! Get the latest edition.
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Rosie, the radiologist did my locator-seed placement, and she first injected lidocaine--after the first needle prick my breast went numb and I didn't feel a thing. The nuclear-medicine nurse did the sentinel-node isotope injection. Because it was into the areola, which is more sensitive, the lidocaine really stung--but then the isotope injection didn't. I had to massage my armpit so the nodes would get active and the sentinel(s) light up--they actually use a nuclear camera to see if they do. It took about 10 minutes to massage my armpit, but they did put a nice alt-folk/Americana mix on the stereo to help me pass the time. I had to go back to pre-op for a little while to prep some more (IV started, Zantac given, surgeon putting the mammo up on the screen and showing us where the tumor was--then they wheeled me back to nuclear med: I could have walked with my IV pole, except it was a very long walk and since I was already in a johnny-gown my butt would've been flapping in the breeze. Much nicer to be swathed with a warmed blanket and wheeled by my “chauffeur"). Two nodes lit up like a neon sign (and my surgeon said they crackled loudly on the Geiger counter in the OR). I was wheeled to the OR on the gurney from the pre-op room--because of the “happy juice" (Versed) they squirted into my IV, I don't remember anything between being wheeled into the elevator to the OR and waking up in Recovery. I didn't get blue dye (my pee remained normal-looking) because I guess the sentinels were so clearly apparent. But because two regular nodes were “stuck" so close on the same “stem," they had to be removed because they'd have fallen off. Surgeon said they didn't look suspicious, just that they were in the way. I awoke in a tiny bit of pain--they squirted some Fentanyl into the IV, wheeled me into my post-op room, where there was orange juice and a bagel-and-schmear awaiting. For pain they gave me two plain Tylenol--I kid you not, the regular 325mg ones--and NO opioid scrip to fill. All I needed for a couple of days were Extra-Strength Tylenol and ice. Period. My breast didn't bruise. The SNB incision was more annoying than painful. It formed a seroma because I tend to blister easily. And the only reason I had any trouble with it was because of the weight of my extremely large (I cup, or “D6" Universal Cup Size) breast. Had I wanted reduction, I probably would have had it at the same time, but the recovery would have been much longer and more complicated.
For sinus problems, I swear by the Neil-Med saline sinus-flush bottle. You mix up the buffered saline solution, fill the bottle, bend over the sink, stick it in your nostril and squirt till it drips out the other side. Repeat till you get halfway and then switch sides. Wipe up your nose and wash out the bottle. Much less messy & more effective than a neti pot. I stopped eating grapefruit & drinking grapefruit juice when I started letrozole, since it can block the action of AIs. Grapefruit flavoring in olive oil or vinegar is ok, acc. to my MO. As for lavender, I gave up Earl Grey tea and pick the buds out of herbes de Provence before cooking with that blend. I don't use enough oregano in cooking for it to be dangerous--it's the concentrate in the oil that's problematic.
Hate to disappoint you, but only MANUALLY grinding coffee beans (i.e., with a hand-crank portable grinder) tricks the Fitbit into thinking you’ve climbed stairs. (And it was more the pumping of the little manual espresso maker that did that). Pouring beans into an electric grinder and hitting the switch does nothing but give you good coffee!
Suzanne, my L hand is almost fully healed--the cut is scabbed over and the bruise is easing. The LE is flaring, though. Wore compression all day yesterday, and my ring was nice & loose (almost fell off) by bedtime; but tight on awakening despite not sleeping on that side--my hand and wrist are sore and my L hand knuckles swollen too--so it’s probably the AI (and typing) making my arthritis worse, but Voltaren gel eases it considerably. Did MLD twice yesterday and am about to do it a second time now. Then will don compression for the rest of the day.
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The fear comes from holding it all in for just another treatment waiting upon a reaction. What will happen? Will i get burnt? Will I be fine ? Can I just keep on going and keeping up with my family activities and events? What does it mean to be tired? As well if you have seen Goldfinger you would get the image of James on the table with the laser. It does get better and now my ear does not get filled with tears and I talk to the people around me.
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Sandy, what this about Earl Gray tea and lavendar? Never heard of that. Or is that a blend you buy? Does regular ole Earl Gray have lavendar?
HUGS!
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RosieRosie, Don't let those horror stories bother you!!. I had my surgery in October 2011 and it wasn't all that bad. I did have some post surgery nerve pains that my RO explained was from the nerves being disturbed and healing. It took several months for those to get over it, but was survivable, just sharp jabs causing a bit of discomfort for a few seconds. BETTER THAN HAVING THE BEAST CANCER HANGING AROUND!!
I am sure you will do fine If it is okay, I would like to add you to my prayer list that God will give you peace and comfort as you begin this journey non of us wanted to do...
Vickie
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I just would like to know after the inject the armpits for the snb, do they do the biopsy to check for cancer while you are under, for the luumptecomy ?? so worried and scared. thank you so you are not awake for the biopsy
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Rosie - You will be completely out for this. I didn't have a sentinal node biopsy because I already knew I had one positive node. They did however, take 27 nodes of which 3 were positive. I felt nothing during this because I was completely out. I also had a reverse where they ran the dye like they do for an SNB, but that was to check and see which nodes my arm was draining into, and to hopefully, not take those. There will be a pathology report done on the lumpectomy. That is what all of us wait for because it is the final word on the size and type of tumor.
Afterward, as everyone has said, the node biopsy or dissection (in my case) is the most annoying. The lumpie seems to heal very fast with minimal pain.
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thank you so much for posting that I really needed someone to say that to me thank you
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rosierosie, one more thing that might help put your mind at ease. With my IDC both surgeons I consulted with estimated 10 - 15% chance of lymph node involvement. I would venture to guess that with DCIS the chance is much, much lower to almost nothing.
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