chemo-induced neuropathic pain

Anonymous

I have had severe limb pain since startig Taxotere 9 years ago. Neuronton helped at first, then no more.  On R-ALA, mega B vitamins and palmatoylethenolamide (from the Netherlands -- a "body-own" fatty acid)  I have been on oxy forever and am at the end of my rope. Anyone else?

adele, lancsater, pa

Shrek4

Yup. I got that combined with chronic pain from LD reconstruction.

Carmen1954

Yes - I have chemo-induced peripheral neuropathy. My symptoms started when I was on about my 5th treatment of Taxol.  My MO gave me a three-week break and then got up to my 7th and last treatment of Taxol (treatment plan was for 12 weekly infusions) when the symptoms worsened.  This was back in June of last year.  I am taking LYRICA (trying gradually to reduce the dosage because of the SE's) along with Alpha Lipoic Acid (200mg daily) along with B-complex vitamins.  In addition, I'm having acupuncture treatments and massage therapy to try and improve the blood flow.  Unfortunately, to date nothing has really worked except for the LYRICA which reduces the pain by about 50%.  I don't know if the CIPN is permanent.  I hope not because I don't want to live with this chronic pain for the rest of my life.  Has anyone else tried something that seems to work?

Carmen

Time4life

I am 2.5 years post Taxol. I seems I have recently been getting worsening neuropathic pain. I am going for my general follow up Tuesday and goin to ask about all this pain. I tried Lyrica...the weight gain was insane! So I stopped that. I take Dilaudid, but only when I don't have to work. If I get more info, I will share, but really would like more advice!

cmharris59

I also have chemo induced neuropathy and I swear it is worse than diabetic neuropathy. I have the tingling, burning, numbness. My legs and hands are also very sensitive to touch.  I also have what feels like deep bone or muscle pain. Can't really describe it. I have had it now for 5 years. I tried lyrica and neurontin. In both cases the fluid retention was contra-indicated for my congestive heart failure.  I take methadone and Percocets every day for the pain. It does seem to help, but it is not pain free. I was getting physical therapy as well but had to stop due to insurance. I wish I knew of a better treatment.

I am so sorry that you are suffering as well.

C