March 2013 Surgeries

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  • dede707
    dede707 Member Posts: 48
    edited March 2013

    Thanks for the encouragement. Cant wait for one week out. Hugs back.

  • Lin43
    Lin43 Member Posts: 108
    edited March 2013

    Positive thoughts for Maureen's doctor visit tomorrow! I remember Gilda Radner--such a talented lady and she was so right about this good news/bad news rollercoaster!

    I had the same surgery as lovingmylife and also have only one drain. I am a fairly small person and this drain may be a whopper cuz it is really bothering me. :(

    Warm wishes to all you ladies having surgery thus week. It hasn't been as bad as I anticipated but I have definitely needed the help of family and friends and all of you ladies on this board.

    Gentle hugs and a peaceful night's rest to everyone!

    Linda

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    Thoughts and prayers for tomorrow's surgery sisters...we'll be with you (((cat24, LKSHER, VeganNicole))) (((Hugs))) Maureen

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    Linda...thanks so much for the positive thoughts:)

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Best wishes to those heading into surgery soon! The anticipation is the worst part. HUGS!

  • kap
    kap Member Posts: 73
    edited March 2013

    Positive thoughts for those having surgery and those seeing doctors. We will get through this together.

  • Lin43
    Lin43 Member Posts: 108
    edited March 2013

    Maureen--

    I may get path report tomorrow as well. I tell myself I can handle anything at those point, but there is always that underlying anxiety. It will be such a feeling of freedom when we don't have to ride this roller coaster anymore!

    Lovinmylife--I started feeling bad before my diagnosis also. Maybe because of the node involvement? Then chemo made me feel bad, and then surgery. I will probably need radiation and I am then just hoping for some normalcy! I wish a return to normalcy for everyone. We can move beyond this difficult blip on our radar screen!

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    Yes "Ditto" Karrie and Linda...thankful for the support of everyone on the board and for your help looking for that "little bit of normal"... I have faith we'll find it:) Linda, I'll keep my fingers crossed for your path report, hoping we both get good news...

    LovinMyLife...good question, makes me think...I was really tired before my diagnosis but I was blaming it on taking on too much at work and trying to cope with my mom's declining health due to her breast cancer recurrence...maybe I missed the obvious cause and it was the BC lurking in my body...

  • kap
    kap Member Posts: 73
    edited March 2013

    LovinMyLife..

    I was exhausted before my dx. I was convinced my thyroid was out if whack but kept coming back normal. Wonder if it was the cancer my body was fighting?

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited March 2013

    I am scheduled for partial mastectomy this Thursday the 14th, immediately followed by reconstruction. I was diagnosed with ILC on Feb 19, after further biopsies for marker placement from a diagnosis of LCIS.

    I believe my follow up will be radiation and tamoxifen, but is subject to change.

    So far I'm not stressing, too busy with 3 kids, ages 10,12,13.

    Can't worry til after all the results are in, them I will deal with that.



    Praying for all facing surgery, and for those who have already had theirs.

    Pat

  • mamasixtaz
    mamasixtaz Member Posts: 319
    edited March 2013

    I am extremely tired. Since the lumpectomy can't get my energy level back. Cancer may be some of it but stress is alot of it too. The rollercoaster ride is sapping the energy too. I'm in the final week before sugery. Preop with plastic surgeon today, anxious about lat dorsi, will be in the hospital 4 days. Making additional arrangements for dh. Keeping busy at work and home, yet always aware of the anxiety underneath. Thinking of everyone having surgery this week.

  • jk6
    jk6 Member Posts: 10
    edited March 2013

    Had a double mastectomy with expanders on Friday March 8th.

    I found my lump on January 10th after being cancer free since 1995. The lump came back in the same spot and the ultrasound found another area that also had cancer. Am so blessed that everything progressed so quickly although at times I felt as if time was standing still.

    This is my 3rd day home.  I've got a wicked headache and hoping that the pain medication will take are of it. Not able to take tylenol since it's already in the pain medication I'm taking.

    Today I'm really having a hard time getting comfortable and it's hot.  I've asked my son to turn the heat down since my daughter is here from Texas (I live in upstate NY) and she was cold yesterday.  I took off my PJ top and put on a tank top.

    I see the medical oncologist tomorrow and he'll let me know if I have to have chemo this time around. I had a bone scan and abdomen & pelvic CT scan which shows the cancer didn't spread any place else. The tests they do on the tissue will determine if I have chemo.  Last time I had a lumpectomy, 6 moths of chemo and 36 treatments of radiation. Would be nice to not have chemo ago.

    I see the plastic surgeon Thursday so he can check the stitches. Hoping the drains come out next week. Also had a visit yesterday from the county nurse who was sent by the hospital. Not sure how long she'll be involved but it will be nice to have someone else in my corner.

    My daughter who is 31 is staying till the 25th and that weekend my sister is bringing up my mom to stay for 2 weeks.  My son is 29 and lives with me. He's developmentally handicapped but very high functioning. He's a big help when it comes to feeding pets and making that cup of tea. He also brings me toast in the morning so I can take my pain meds with food.  My daughter has already cleaned the house and is taking me to appointments.  Mom is elderly and tires easy but just having someone to sit with me will be great. Last time around she took me to every single doctor visit. We don't live close any more so I'm sure that having her stay for 2 weeks eases her mind a bit. My best friend coordinated a list for work friends to cook meals. She will be brining dinner a few times a week.  Since my daughter is here now and loves to cook we'll freeze those meals for when my mother is here.  

    I'm longing to sleep on my side.

    Keeping good thoughts for all of us going through this. 

    Janice

  • 3mom
    3mom Member Posts: 45
    edited March 2013

    Janice. So glad you have your daughter in. I would do the same for my mom but the tables are flipped and she is coming in 2 weeks to take care of me.

    Thinking of all if you in surgery this week , also of all those path reports coming back (my biggest fear also), pre and post op visits and those a few weeks ahead starting to determine their treatment plan.

    By the way Kiki and I found out we are practically neighbors know same docs and everything!

  • LuvinMyLife
    LuvinMyLife Member Posts: 65
    edited March 2013

    Thanks for sharing your stories on being tired before dx.  For sure after surgery I've done a lot of NOTHING. I try but it doesn't take much to put my butt back on my bed.  I even get short of breath by doing the smallest things. Body is just too worn down and stress has been too high. Thanks for letting me know that you all have been dealing with exhaustion too.

    Today is my birthday and it's 4 days past surgery. last night around midnight I had some extreme pain in my arm - it was throbbing, and I also had some pain above my surgery area. below my clavical. boring(sp) pain - like I was being dug into.  Hurt pretty bad, let me know I could feel lol.  Then the nerve stuff started. I know this might freak others out, but it freaked me out. It felt as if I huge worm was moving in my shoulder area. I DO NOT like this sensation. I'd rather take the zaps than this one. lol  so my arm has ached quite a bit today. I guess this is just normal territory after surgery? What I mean by that is, the medication takes the peak off but this is the first time I've just had a constant aching/throbbing since surgery. It's lasted over 16 hours now. Thank goodness the pain meds help some.

    Would love to hear from others on the pain and how long of span they experienced pain before it calmed down and went back to intermittent(sp)

    Thanks all, and here's to good news and relief to all the post op appts coming up! ( Mine is Friday )

     



  • kap
    kap Member Posts: 73
    edited March 2013

    Happy birthday LovinMyLife. I too am 4 days out. I feel LOTS of uncomfortable pressure. So bad sometimes i feel its hard to breathe. The pain is mostly just in my armpits. My new implants feel really hard and tight. Not what I was expecting. Hopefully as the swelling goes down they won't feel so hard. I am tired of these drains but dont see the ps until next Tues.

    Hope today's surgeries went well. Also the dr appts. Maybe some of you are now drain free.

  • Lin43
    Lin43 Member Posts: 108
    edited March 2013

    Luvinmylife--So sorry you are hurting on your birthday! We all deserve a day in the future when we are feeling better to celebrate all the "special days" that the cancer interfered with.

    If your pain medication doesn't reduce your pain to an acceptable level you might want to contact your doctor and get something different or stronger. You and I had the same surgery and my doctor said to contact them if the Percocet isn't enough. I hope you will feel better really soon.

    I have had some burning and throbbing, but not "bore-ing" pain. That sounds really difficult! Take care and don't hesitate to contact the doctors for help--that is why they earn the big bucks!

    Very gentle hugs

    Linda

  • Gardengirl33
    Gardengirl33 Member Posts: 65
    edited March 2013

    Lovinlife, interesting about being tired. I was diagnosed in January. I have been feeling tired for well over 4 months, still tired! I hit snooze over and over every morning, barely to get up at 630. Almost always in bed by 9:00 p.m.

    I think some is my diet, or lack of diet hahah. Gray and brown days, blah. S glad spring is around the corner!

    Who knows, our bodies are still a mystery!?

    I am happy to read so many posts about post surgery! Thanks ladies!

    I feel better about my upcoming surgery. My biggest fear was the pain and scars. Keep up,with pain meds and all will be good. As far as scars, when do you get to actually see your breast unwrapped from bandages? I'm afraid to see bruising, stitches and other stuff?

    Good Luck to those having surgery this week, I will be sendings prayers, and hugs your ways.

  • 2girls-2spaniels
    2girls-2spaniels Member Posts: 10
    edited March 2013

    Ladies 5 days out from surgery. Really no huge pain issues. Discomfort in the armpit and the drain area. Implant is very hard and numb.See the ps tomorrow afternoon hope these drains come out ! Now my path. Reports came back negeative on margins and lymph nodes. My concern is chemo. What more should i belooking for or asking ?

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    Welcome to two more new members of our March 2013 Surgery group...

    (((Janice/jk6))) welcome to our group, we're here for you, so sorry you have to go thru this again...sounds like you are a long term survivor...so very glad surgery is over and the diagnositics are looking good:)

    (((Pat/Pattysmiles))) welcome to our group - so sorry this disease has struck you, with three young pre-teens/teen you sound very busy, sure hope you have help after surgery:) /we'll be here for you...Kayrem will be your surgery sister on the 14th:)

    Here's the latest list for our growing group, please let me know if there are any corrections, additions, etc...

    (((Hugs))) to all our 3/12 surgery sisters recovering from surgery today and (((Shelley))) we're thinking of you as you prepare for surgery tomorrow 3/13:)

    March 1st - Left mastectomy with TE's - jj52

    March 1st - Bilateral mastectomy with immediate reconstruction/TE's - Keke

    March 4th - Left mastectomy with axillary node dissection - anne11595

    March 4th - Bilateral mastectomy with DIEP reconstruction - ironmagnolia

    March 4th - Bilateral mastectomy with immediate reconstruction/implants - Maureen

    March 5th - Reconstruction: Tissue expander placement (Right) - Cocok

    March 5th - Preventive skin and nipple sparing mastectomy with TE's - Jenamae

    March 5th - Right mastectomy with immediate reconstruction/TE's and axillary node dissection - Marian

    March 5th - Bilateral mastectomy with reconstruction and sentinel node biopsy - Tracey

    March 5th - Bilateral mastectomy, with anxillary lymph node dissection on ipsalateral side and sentinal node biopsy on contralateral side - tx_anne

    March 5th - Lumpectomy and sentinel node biopsy (clear node - YAAY) - LibraryLynn

    March 6th - Right mastectomy and axillary node dissection - Linda

    March 6th - Bilateral mastectomy with immediate reconstruction/TE's - jrose

    March 6th - Left mastectomy with immediate reconstruction/possible TE - 2girls-2spaniels

    March 6th - Right lumpectomy - RiverFlows

    March 6th - Left lumpectomy - TXWildFlower/Emily 

    March 7th - Right Mastectomy with Reconstruction/Tissue expander placement (Right) - Denise (dede707)

    March 8th - Bilateral mastectomy with immediate DIEP reconstruction - Cuetang

    March 8th - Mastectomy with tissue expanders - hunter1105

    March 6th - Bilateral mastectomy with tissue expanders - jk6/Janice

    March 8th - Bilateral mastectomy with immediate reconstruction/implants - Karrie

    March 8th - Right mastectomy with axillary node dissection - LuvinMyLife

    March 8th - Right lumpectomy - whisperwhillow

    March 12th - Exchange surgery with scar revisions - cat24

    March 12th - Bilateral mastectomy with left axillary node dissection and right sentinel node biopsy and possible TE, plus a port placement. - LKSHER

    March 12th - Bilateral mastectomy with tissue expanders - VeganNicole

    March 13th - Latissimu Dorsi flap surgery with implant - Shelley

    March 14th - Prophylactic bilateral mastectomy - Kayrem

    March 14th - Right lumpectomy/partial mastectomy with immediate reconstruction - Pattysmiles

    March 15th - ? procedure - Nikstar

    March 18th - Left mastectomy with axillary node dissection - Gardengirl33

    March 19th - Bilateral mastectomy with immediate reconstruction latissimus dorsi flap and implants - Mamasixtaz

    March 20th - Left mastectomy with tissue expander - Sharon (Butterflylady)

    March 21st - Bilateral mastectomy with Left axillary node dissection - Foreverchanged72612

    March 21st - Bilateral mastectomy with tissue expanders and latissius dorsi flap, axillary node dissection - Leigh

    March 21st - Bilateral mastectomy with tissue expanders - patriciahurtado

    March 25th - Bilateral mastectomy with tissue expanders - 3mom

    March 27th - Mastectomy with axillary node dissection - Lou4of7

    March 27th - Mastectomy (Right); Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Both) - MauiGirl

    March 28th - Bilateral mastectomy with tissue expanders and sentinal node biopsies - Carrie6466

    March 28th - Bilateral mastectomy with tissue expanders and lymph node dissection - Shari

    March 28th - Right skin sparing mastectomy and lymph node dissection - TinaHoff

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    Happy Birthday (((LuvinMyLife))) - sorry you are hurting today, hang in there...keep taking those pain meds and don't hestitate to call the doctor if you need more help with the pain...I am still having alot of burning pain under my arms, like a hot poker sometimes but it is intermittent not constant...are you milking/stripping the drains to make sure they aren't clotted off and are draining okay?

    Wanted to share my good news with everyone - I saw both surgeons today and my pathology report came back completely clear - no abnormalities or cancer found lurking in the breast tissue removed by the mastectomies - YAAY!!! So...I am very grateful I have this behind me and the pain is worth it! I got 2 of the 4 drains out, hopefully will get the other two out later this week or by next Tuesday. I couldn't get any of the steristrips or stitches taken out yet...another couple days to a week for those as well. I asked why two drains instead of one since several of us have wondered about that. My breast surgeon said she uses a longer flat drain and she can use just one of them instead of the shorter round drains that the plastic surgeon uses - he needs two drains to cover the whole area that she covers with just one...Also I complained about the "tightness" and she prescribed some Valium as a muscle relaxant to help the pec muscles and the chest wall muscles to relax, that seems to be helping with the tightness although she said it wouldn't completely go away. All I have left are the little steristrips so I took a look at my "new" breasts and was surprised to see that they look alot like the old ones except for some bruising underneath - when the swelling goes down and they "relax" they should look pretty "normal" - just no nipples until I get tatoos or new ones constructed. 

    Hugs and best wishes for good outcomes to my sisters having post op visits and those having surgery...You are in my thoughts and prayers...Maureen

  • kap
    kap Member Posts: 73
    edited March 2013

    Maureen, so happy for you!

  • 3mom
    3mom Member Posts: 45
    edited March 2013



    Maureen. Just checked in to see how your visit went. So GLAD for you! What a relief😃

  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited March 2013

    I picked up my precriptions for pain med, antibiotic and anti-nausea med, so I am all set.  Not looking forward to going through the discomfort again or being put so deeply under (that always scares me), but I know it is short lived.  The nerves kicking in now, but it helps being busy preparing the house and such for after the surgery.  I am on vacation for a few days for my offical medical leave starts next week.  Going to Monterey on Friday, Sat and Sun...will be nice to relax by the ocean.  The beach, the waves, always bring me peace.  I need it right now!

    3 Mom, yup my mother is coming also to take care of me, arriving Monday.  Her help will be so much needed and welcome.  My boyfriend will be there too and will do a lot those first few days out, but he is also preparing for a business trip the following week.  When you need help, sometimes your mommy is the best fit.  LuvinMyLife, Happy Birthday to you!!  I'm so sorry you are in pain and I agree with what others said, be on top of your pain meds and call doctor if you are still not feeling much relief, please don't allow yourself to suffer.  Maureen1, CONGRATS on the wonderful news!  Hearing that is a huge relief!  You contribute so much to this board, thank you for everything.

    To all the 12th gals, my healing thoughts and prayers are with you right now.  Please keep us posted when you are able.  Shelley - My best thoughts and healing wishes are with you for tomorrow.  Be strong and well! 

    Hugs,

    Sharon

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited March 2013

    gardeninggirl, I saw my new breast the morning after surgery when the resident had a look and the hme care nurse as changed the dressing twice. Protocol here is no big bandages or bras etc. I was happy if one can use that word, about how it all looks though there has been a bit more swelling and bruising since the first day. It is hard and numb.

    The narcotics did a big constipation number that finally resolved yesterday and last night after lots of Sennokot S, Metamucil, prunes, gallons of water and coffee. Today I have been tired and have done nothing and am hoping I will have more energy tomorrow. Home care nurse is coming and probably the drains will come out.

    maureen, good news for you!

    For those with surgery coming up, I would say that it is really doable and revovery is a lot faster than from chemo in my estimation! Another step on the journey too.

    Now if I can just summon some energy tomorrow! I really hate feeling lazy and it makes me mentally down as well.

    luvinmylife, I hope you did have some bright spots on your birthday. 

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited March 2013

    A very disappointing day today.



    Surgery scheduled for this Thursday only there has been NO COMMUNICATION in regards. I finally call the insurance company to see if they have the approval # for hospitalization...and they don't!



    I tracked down my nurse navigator, who did NOT answer my email to her from yesterday (she was out sick, so I don't blame her) AND I HAD LEFT HER A VOICEMAIL THIS AM (apparently she couldn't retrieve it as she was in a different office, different town today!)

    She said my surgery was not this Thursday as I had opted for BRCA testing and they were awaiting results. She also said I had told the geneticist I would wait for the results. I NEVER told that to the geneticist! I had told her I was keeping my surgery and she seemed dismayed and told me I better let the plastic surgeon know when I saw her the next day...and that is exactly what I did! WTH!



    I hung up on her.



    Then I gathered my thoughts and started sending her an email. Why would I see the plastic surgeon before getting my BRCA results if I thought it would change my mind? Why would I have complete pre-surgical clearance if I did not have a surgery date? Who is failing to communicate! Why is the geneticist agenda being advanced and not mine. BTW, I COULD NOT STAND LISTENING TO the GENETICIST, I tuned her out in 15 minutes, my notes all say things like "why am I here" , "this is dull", "get me out of here"! Why , because I had told her regardless of the outcome I would NOT opt for mastectomy at this time, so why would I listen to her!



    Ugggh, so now they think they MIGHT have my BRCA results by this Friday, and if negative can reschedule me , to "fit me in" at some point next week. ""Fit me in"? I'm a surgery, don't "fit me in". , I don't want anyone rushing through because I was "fit in"!



    If the results are positive then my surgery will be in April as I will need to meet with the PS again to discuss options, and I told them I would want to meet with an oncologist to discuss options.



    Okay, maybe I should not have agreed to do a surgery without all the info? But then TELL ME I'm off the calendar. I had sitters lined up,I let people know what was going on, and I was MENTALLY READY,



    I know all things happen for a reason, keeping my fingers crossed that the "reason" is something small.



    Pat

  • printpal
    printpal Member Posts: 14
    edited March 2013

    Oh Pat, how frustrating and disappointing.  It takes a lot of planning to get through all this, and it's helpful for me at any rate to know that things are all set.  I didn't test for the BRCA gene until after my mastectomy.  

    Happy Birthday to LuvinMy Life, next year will be SO much better, and you will really appreciate it.  And I like seeing Cat24 post, as I see you also had lat flap surgery like I will.  Tomorrow.

    And I am in AWE of you women posting so quickly after surgery!  

    Much love to my fellow March ladies.  

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    so much going on...

    (((Butterflylady/Sharon))) ahhh, the sounds and smell of the ocean is so renewing...good time to recharge your batteries and enjoy the beach! Glad you have helped lined up for next week...and...there's nothing like "mom" being around to help:) Miss my mom so much...always makes me smile and feel closer to her when I hear others talk about their moms:)

    (((Marian)))...so sorry you had to battle constipation while trying to recover from such major surgery...you have every right to be tired and to take some time to get your strength back, that's not lazy it's being exhausted, get some rest, hope tomorrow goes better...

    (((Pat/Pattysmiles))) Wow...so sorry you are going thru this crazy mix up! So much to arrange to get ready for surgery, especially with little kids in the picture AND not to mention that none of us really wants to to thru this if there was another answer so it has to be very hard to get your mind and body ready for surgery once let alone have to gather yourself together again when they reschedule you!! Hang in there, it will work out...Let us know about your surgery plan...

    (((Hugs))) to all, Maureen

  • LuvinMyLife
    LuvinMyLife Member Posts: 65
    edited March 2013

    Maureen:

    Yes I am still stripping the line every 8-12 hours. I am not pulling much fluid out a day - maybe 30ml if lucky. Mostly just a little fluid and sediment.

    I have used ice packs all day and taken it VERY easy to try and make sure another night like last night doesnt happen. I was told that due to the node removal amount I may have some pain.... I'm thinking more pain than usual. Anyhoo I've taken it easy because the anesthesia and pain meds have kept me out of the bathroom. I have upped my vit c today to 5000 mg  to help this issue and it's starting to work. I've also had a glass of grape juice to help. I was wondering why I looked so poochie. LOL Duh.

    Time to settle for the night. Almost 11 my time. So glad to hear others are doing pretty good. Well wishes to those still to have surgery and hope to hear more from them and from all those who have already come home from surgery.

    {{HUGS}}

     


  • Lin43
    Lin43 Member Posts: 108
    edited March 2013

    So happy for those of you with clear margins and nodes. :)

    Gardengirl--I had the same surgery as you will be having, only on the opposite side, and I was also apprehensive about what it would look like. But my stitches are internal and will dissolve, and I was glued together at the surface. All I can see are some narrow white tape/steri strips (no real bandages) and one visible stitch where the drain comes out on my side. I hope your surgeon does it the same way because there is nothing scary or gross. I basically look like a guy on that side of my chest with some extra loose skin left for reconstruction six months after radiation is done.



    Pat--So sorry for your crazy mix up. Our emotions and anxiety are already all over the place, plus we are juggling personal and family schedules. We really don't need our medical teams confusing things further. I hope it gets worked out right away so you can move forward without additional stress!!!



    2girls-2 spaniels--with your negative nodes and margins, what chemo are they talking about doing? I had positive nodes when first diagnosed and did 6 months of chemo first, then surgery, and probably radiation next. I know each situation is unique...

  • mamasixtaz
    mamasixtaz Member Posts: 319
    edited March 2013

     Shelley-Wishing you all the best for your surgery.  I will be watching your progress as i am approaching my surgery date.  Having bx with lat dorsi recon, hopefully straight to implants, if unable to fit ps will use TEs.  I really don't want another surgery to exchange but know its a possibility. Hope you have a restful night, as all our sister's say the anticipation is the worst. Can't stand the waiting!   Sending many healing thoughts and hugs your way!

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