Need opinions & help prepare for my surgery...

SMTindell929

Hi my name is Serina...I'm having a prophylactic mastectomy with reconstruction surgery sometime next month except I'm planning on having expanders placed because I have large breasts. My surgeon said they would look more distorted if I went to the direct to implant option. its hard to find people to talk to that have had a prophyllactic mastectomy rather than having it because being diagnosed with cancer (its different because of radiation/chemo) I have a rare type of tumor called Phyllodes tumors they can be benign for years then turn into cancer at any time... I have to go get breast MRIs and ultrasounds every 3-4 mos because of that....this has been going on a long time. My grandmother and her 3 sisters have had breast cancer and my mom died of uteran cancer...so I am very cautious...long story short... I took the genetic blood tests...all negative...my Drs were very suprised. My first lumpectomy was at age 12 then again at 16 and again at 20 and at 25 I've also had 5 needle biopsies throughout the years. As of right now I have 10 tumors between both breasts (most of them are small but there are 2 large ones.) I wanted to post this blog to talk about different things to people...get different opinions. I'm planning a nipple sparing mastectomy...not sure if I would feel comfortable with no nipple... they said it was ok because it hasnt actually turned into "cancer" yet but he said because of my larger breasts they may sag and ripple.... so it might not be a bad idea to remove the nipple and take some skin...anyone else ever have this with larger breasts? (in between a D and a DD cup) I'm sure there are other people out there that have larger breasts...if you have...give me your opinion! also I'm trying to prepare myself and my house for the surgery....I have a 3 1/2 yr old so I will be relying on my husband alot to help with her...any ideas on what to buy ahead of time to help myself? or things to prepare ahead of time?

thanks for your thoughts and opinions ahead of time!

Serina