Alternative Treatments- My great experience

exbrnxgrl

kay,

I agree with much of your post regarding alternative meds an that is why I continue to read these threads. However, Abigail is not a scapegoat for anything as far as I'm concerned. She had been on this forum for a while and many of us were initially indulgent oh her. But I think I let go of that after she claimed she had AIDS three times, undiagnosed, and cured it herself. I have really lost all ability to tolerate her after she made those horrible assumptions about the "cause" of wornoutmom's bc. This is not being a mean girl, period. Abigail mayor may not have bc but it is pompous and arrogant for her to be spouting off her alleged wisdom about a disease or diseases that she may not have.

NattyOnFrostyLake

Hi JoJo,

Glad to see your post.

How is it going with Dr. Wong? Does he have any more recommendations to accompany the Chinese herbs?

jojo68

Hi Natty!

Glad to see you here as well!

I am doing very very well!  The recommendations he had were ECGC/Curcumin/Milk Thistle/COFFEE ENEMAS 2x day and highly recommended Pau Darco from an authentic source.  He thought I was crazy for considering metformin and/or LDN...But, I am my own advocate and trying to cover all my bases....plus, I don't feel he researched those last two to really have an educated opinion?

jojo68

Oh, He HIGHLY recommended Iodine Protocol and Lynn Farrow.

NattyOnFrostyLake

Thanks, Jojo,

That's good to hear. I know he goes to the conferences and keeps up. I want to try Pau D'arco but need to find a good source. I can do one coffee enema a day but the caffiene bothers me so I dilute it. The Gerson people have been using that for years--I think Gerson got it from the Merck Manual and traditional sources to detox. I know Dr. Wong is very focused on getting the liver to clean up the die-off from the herbs' effect.

Even my local GP recommends milk thisle for the liver. He recommended it to me after anesthesia. Again, I need to find a good source. There are so many poor quality herbs out there.



Thank you for sharing the recommendations of this wonderful man!

Momine

Jojo, it is in the Merck manual as a remedy for constipation, nothing else. There is no other evidence that I have seen anywhere that it does anything other than give you a caffeine high, cleans out your colon and sometimes causes infection. Please research some more before you do this.

jojo68

Natty, Do you take Dr. Wong's herbs? 

I do take Milk Thistle to support the liver, but I know the enema is better...I think it's ALL about the liver with cancer die-off.  Do u juice?  I had found in research that if you do enemas, you must juice as well or would get rid of beneficial enzymes?  Correct me if I am wrong.  I need to find a good Thistle source as well.  Wong had recommended a Pay Darco from Japan but VERY expensive.  I get a very good quality from Roger on Yahoo's Cancercured...he has a company website I will have to look it up.

NattyOnFrostyLake

Jojo,

I did take Dr. Wong's herbs at one time but I'm currently not taking them due to finances. But I know several breast cancer patients he's brought back from the brink of Stage IV. He is very well-respected. People fly in from all over the world to see him. About the juicing, I think that would be a very good companion to the coffee enemas. Many use an empty large Fleet enema container instead of the enema apparatus.

One of the docs suggested salt added to the coffee protected from electrolyte depletion. But juice would be a really good, if not better add-on. Dr. Nicholas Gonzalez (sp) is a big advocate of coffee enemas in his protocol because the enzymes destroy the protein cover of the cells and the coffee flushes the dead debris that's trapped in the liver.

kayfh

I am sorry, that I said you, who try to counter Abigail's rambling usually not too useful posts, were mean girls. It is just that she seems harmless and so out there, that I am sure no one gives credence to anything she says. I think she is lonely.

And no, Momine, exbrxngirl, yorkiemom, suzie, and everyone else I have offended, I don't think you are mean girls. Quite the opposite. I have learned over the past few years that you are generally supportive, kind, inquisitive and suppliers of good information to your sisters and brothers on this website. Its just that if I was new to this thread as a reader I would wonder why you seemed to be picking on a dazed member. I agree, no one has the right to judge another based on the decisions only s/he can make and Abigail's comments about another and or the etiology of her cancer are beyond the pale. Kay

Momine

Kay, no offense taken and I usually agree with you on the harmless/lonely bit. However, there were some truly over the top comments made that needed to be addressed, IMHO.

jojo68

Natty...That's a shame you cannot do the herbs...do you plan to do them in the future?  Do you take Metformin and/or LDN?  Feel free to PM me if you like.

exbrnxgrl

Kay,

No worries. I was very tolerant of Abigail, for a while, but when she became the dispenser of erroneous info and then made incredibly hurtful,statements about a member who just passed, well, I reached my limit on tolerance. I hope you can understand how painful this is for those of us really fighting bc.

pupmom

Kay, I understand where you're coming from. Abigail is a babbling, usually incoherent, pathetic interloper. She obviously does not belong on a bc message board, but somehow wandered onto our site and is trying to make it her internet "home." But she does have a mean streak, and it came out today in spades. It is also very offensive for an uninformed poser to lecture people about their treatment protocols. May have made things worse with this rant, but that's how I feel.

NattyOnFrostyLake

Jojo,

I'm saving up to go back on Dr. Wong's herbs. I think they're especially important in the first five years out from diagnosis.

Have you been able to take LDN? I've gone on and off it. There's an online LDN cancer group. I should ask there why I get little mouth sores sometimes. Maybe it's a coincidence. My RX for Metformin ran out and I need to get it refilled. I found that helpful plus the 12 clinical trials for breast cancer patients made it really promising. I still don't know how it works but I don't think it's the blood sugar lowering properties.

Do you take Metformin? Do you have any side effects?

jojo68

Hi Natty!

I get Metformin from a friend!  I am trying to convince my GP to give me an RX but he wants me to send him the studies.  I am also going to go for a fasting test to see if I may be diabetic anyways, but am probably not.  I was taking 500mg a day but feared not enough as studies show 750mg helpful?  So, I did take the whole 1000mg at once a few days and no side effects.  I belong to the yahoo group LDN, again trying to get my GP to RX it with my studies.

suzieq60

I really don't think Abigail meant to be nasty - we can tell that she has trouble expressing herself.

flannelette

for those of you concerned about the integrity of your herbal products - you can make your own tinctures using vodka and following the instructions of Susun Weed, one of america's renowned herbalists. You need to find an organic herbalist/farmer & buy say, milk thistle seeds in bulk, then make your own tincture following specific but easy directions. I make my own astragalus tincture and in earlier years made my own milk thistle tincture for after each chemo tx. Provided the organic herbalist/farmer is honest, maybe even someone from your area, you know what you are getting, and at a fraction of the price of a health food store product, which may have none or very little of what it says it has in it.

kayfh

Flannelette that is such a good suggestion and definitely not hard to do. There are people (including our First Nations People) who say that if an herb/plant is not from your bio region it probably won't be efficacious. Kay

Momine

Suzie, I really hope that is true.

planetbananas

nattygroves, I am NOT looking for a fight and I ask this question respectfully, can you please explain what you mean by the brink of stage 4?

NattyOnFrostyLake

Thank you flannelette, I will look this up in my books and try. I have a book by Dr. Christopher that should say how to harvest and what parts of the plant to use.

NattyOnFrostyLake

Planetbanannas, I guess there is no "brink" of Stage IV. My intent was to convey they were newly diagnosed Stage IV. One of these women is a friend, dx 19 years ago. She had a mast, then a few years later had mets to chest wall, a focus on the chest bone and it had broken thru the skin. The other person had newly dx liver mets. I hope this clarifies.

Beesie

jojo, in an earlier post you stated "I don't know wornoutmom's whole story...I think maybe she had a botched surgery that made it spread terribly?". I've noticed that no one has replied to your question.

Surgery doesn't cause cancer to spread. Unfortunately wornoutmom was diagnosed with a very serious, very aggressive breast cancer - she had 4 positive nodes and her cancer was HER2+. The prognosis for someone with that type of diagnosis, if they opt out of any treatment except surgery, is extremely dire.

exbrnxgrl

Beesie,

Good catch and thank you for pointing that out. Wornoutmom was diagnosed at surgery, with a very aggressive cancer. As Beesie points out, surgery doesn't cause bc to spread. We've had several threads on "seeding" and the mods have posted info about it.

Anonymous

Where or how did anyone learn about the death of wornoutmom? So sad to hear it, she was trying so hard, to heal herself.

Sympathy to her family.

suzieq60

Actually, I think she had a recurrence at the original surgery site. However, anyone with any positive nodes HER2 or not cannot dismiss having chemo. I see enough stage 1 node negative women who end up Stage IV.

suzieq60

Sun - I saw it on her facebook page - her husband posted

Lily55

SuzieQ - can you say more about what you mean by this comment please?

I see enough stage 1 node negative women who end up Stage IV.

exbrnxgrl

Sunflowers,

Wornoutmom lived fairly close to me. I followed her Facebook page and occasionally chatted with her. She hadn't updated the page since early November and I was worried. Suzie had been following her husbands page and learned of her passing, early last Sunday, there. Since the summer, when extensive brain mets were found, things had been getting worse. We are all saddened by her passing.

Anonymous

flannelette, would you please be able to give us a link to the instructions to make a tincture? Do you use the exact same one or have you varied it some?